All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler
Joined October 2023
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1/ We will add here links to resources for workers and stakeholders on #WorkingWithLongCovid some we were involved in.
These are mainly U.K. but some have transferability to other countries. Please share and tag us to other resources 🐝 #LongCovid
WorkingAndNotWorkingWithLongCovid retweeted
Disabled people will have to wait until next month, and possibly December, to discover the government’s plans for cuts and reforms to their support through the social security system, after this week’s budget offered few new hints.
#Budget26
disabilitynewsservice.com/bu…
WorkingAndNotWorkingWithLongCovid retweeted
I'm helping someone in Malaysia 🇲🇾 spread the word about the first ever WhatsApp group they created for people with Long COVID and ME:
chat.whatsapp.com/BY4lLd7FQ2…
Can we find anyone out there in the LC/ME Twitter-verse from Malaysia? With a population of 34 million, there's got to be some!
🤖 Made with AI
WorkingAndNotWorkingWithLongCovid retweeted
I represented Team GB at the Olympics. Now I’m in bed 22 hours a day thetimes.com/uk/healthcare/a…
WorkingAndNotWorkingWithLongCovid retweeted
The employment minister – backed by the Department for Work and Pensions – appears to have trashed the government’s long-held position that only “good work” is good for your health, while also calling for “everyone” to have paid jobs.
#DWP
disabilitynewsservice.com/al…
#LongCovid research October 2026 focused on healthcare workers
nature.com/articles/s41598-0…
rdcu.be/UStk6tLYDTwa
WorkingAndNotWorkingWithLongCovid retweeted
@SupportingHH_UK offer free confidential online support groups for healthcare workers across all sectors who suffer from long covid.
Alison the founder of SHHUK also has lived experience.
If you are interested pop them a DM or email for the links. 🔗 See you there sometime 💛
WorkingAndNotWorkingWithLongCovid retweeted
Long-COVID is associated with increased absenteeism from work
😢The big surprise……NOT!
➡️"The two-part model revealed that individuals with long-COVID had 2.54 more missed workdays compared to those without long-COVID (p < 0.01), after controlling for relevant variables."
➡️"These results underscore significant productivity losses associated with long-COVID, highlighting the need for policymakers and employers to implement effective strategies to address this condition."
And will they recognise this……..No, of course not! THE INCONVENIENT TRUTH! #C19 #Reinfections
journals.plos.org/plosone/ar…
WorkingAndNotWorkingWithLongCovid retweeted
Economic Burden of Post-COVID Syndrome in Germany Between 2021 and 2025: A Statutory Health Insurance Claims Data Analysis
🚨LongC0VID’s real cost isn’t hospital beds, it’s sick days and doctor visits, especially among working-age adults. What a surprise, NOT!😷
➡️This interesting study used anonymous German health insurance records (real-life data, not a lab experiment).
➡️It found that people who developed longC0VID (new cases of postC0VID symptoms) kept needing more medical care, took more sick days, and cost the health system more money for a long time afterward.
➡️The biggest extra burdens were:
- More sick leave (time off work),
- More outpatient doctor visits (regular doctor appointments, not hospital stays),
➡️This was especially true for working-age adults.
➡️In other words, the long-term costs of longC0VID hit hardest in everyday medical care and lost work productivity, rather than in hospital admissions.
➡️The researchers conclude that better prevention of longC0VID is needed to reduce these ongoing effects on healthcare use and people’s ability to work.
‼️So, AGAIN, postC0VID syndrome creates a substantial, persistent economic burden driven mainly by excess sick leave and outpatient care, especially among working-age adults, rather than hospital stays! 😡BUT, let's not forget the personal impact too!!
#AvoidSars2 #AvoidReinfections #Mitigation
jheor.org/article/170196-eco…
WorkingAndNotWorkingWithLongCovid retweeted
Federal employees with Long COVID are reportedly facing revoked remote work accommodations, months-long delays, and repeated disability reviews.
Long COVID is recognized under federal disability law. Those protections mean little if patients can’t access them.
motherjones.com/politics/202…
WorkingAndNotWorkingWithLongCovid retweeted
WorkingAndNotWorkingWithLongCovid retweeted
The public discourse around the efficacy of masks is insane. When transmission rates are low, “masks don’t work”, and when rates are high, “NHS hospital trusts south of the Tyne now require staff to wear masks”.
Masks work. Period.
chroniclelive.co.uk/news/nor…
WorkingAndNotWorkingWithLongCovid retweeted
📢 UPDATE: Today I’ve written to the APPG on Long COVID.
I’ve asked them to bring my independent #petition and open letter to the UK Prime Minister to the attention of decision-makers, and to ensure our voices are heard.
#LongCOVID needs a properly funded national strategy. 💛
WorkingAndNotWorkingWithLongCovid retweeted
Alarm bells ringing after minister @AndrewHWestern says all work is good for health, and he wants ‘everyone’ to get a job
disabilitynewsservice.com/al…
WorkingAndNotWorkingWithLongCovid retweeted
Dare you tell workers who got sick at work (#LongCovid) who are still sick that all work is good for health @AndrewHWestern ? Ministers need to cite current evidence on “good work” being generally good for health NOT 2006 commissioned work that’s outdated & limited in scope
WorkingAndNotWorkingWithLongCovid retweeted
📣 CANADIAN HOSPITALS TO TEST REAL-TIME AIR DISINFECTION
“Allowing 10% of our patients to get infected is unsustainable. The cost is simply too high. Billions of $ are spent on treatment & many billions more are lost to the inefficiency of blocked beds.”
accessnewswire.com/newsroom/…
- PRESS RELEASE -
Upper Air UV Pilot Project
in Canadian Hospitals
“Allowing 10% of our patients to get infected is unsustainable,” said Hunt. “The cost is simply too high. Billions of dollars are spent on treatment, and many billions more are lost to the inefficiency of blocked beds.”
accessnewswire.com/newsroom/…
We know #LongCovidCosts and the evidence is piling high... yet we still have unsafe workplaces and a disregard for the need for #CleanAir and #Masks and the significant risks of reinfection for workers with #LongCovid
@LC_Physio
@SupportingHH_UK
jheor.org/article/170196-eco…
WorkingAndNotWorkingWithLongCovid retweeted
X/Twitter can be very annoying at times.
Try reading on from here for the rest of the thread 👇🏻
THE BIG REVEAL:
Scotland’s IPC team have decided to place COVID in the R1 category.
That means they consider that COVID:
▪️does NOT cause severe disease
▪️is UNLIKELY to spread to the community
▪️and there IS prophylaxis or treatment readily available.
nipcm.hps.scot.nhs.uk/media/…
WorkingAndNotWorkingWithLongCovid retweeted
Thanks @covidinquiryuk
The lives and deaths of the social care workforce matter very much.
Data is the bedrock for parity of pandemic protection and commemorations.
ALT Extract from p201 from Module 6 Report published in October 2026 - about collection of mortality data.
Great example of power of collaboration and need for data. Disappointed our FOI request @The_HCPC didn't yield much
whatdotheyknow.com/request/h…
Did @theRCOT track impact Covid & Long Covid on members who lost their lives and livelihoods, through membership data & Advisory Service?
WorkingAndNotWorkingWithLongCovid retweeted
We should support people who can work into employment.
You don't do that by cutting the already meagre support disabled people rely on to live.
Restricting eligibility doesn't mean less people will be disabled, just that more will be in poverty.
That's not the Labour way.
