Archie's Story; Raising awareness for Duchenne Muscular Dystrophy.
Joined February 2015
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PLEASE take a few minutes to watch & RT..We'd like to share our journey & create as much awareness as possible.💙
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What an incredible achievement @Harry_OCal showing true grit & determination 💪🏼🔥❤️ #95k Honoured to see you cross the finish line @Arsenal with the amazing support from @LondonFire #hollowayfirestation @MDUK_News Please share & support
justgiving.com/page/harry-oc…
Doing great going into 2024! We are all so unbelievably proud of you Archie! @MDUK_News
❤️💪🏻
Not long til Kick-Off at Honeycroft!!
Here's your Langley FC Lineup for today v Bagshot FC.
Sam Hurrell and Ade Onasanya make a return to the squad. Leyton Hill's goal v Brook House on Wednesday night earns him a Starting XI position. Sam Saunders and Michael Olayiwola return to the bench.
#UpTheMerryMakers #CCL #LFCBFC #LU23CBHR
Happy 1️⃣8️⃣TH Birthday to this absolute superstar. A milestone we never thought we’d reach! 🫶🏻Archie we are SO unbelievably proud of you everyday with your courageousness determination & forever wearing that smile no matter what is thrown your way. Keeping being you Archie!❤️🙏🏻
Rugby legend 'humbled' to run London Marathon in support of Bucks teenager bucksfreepress.co.uk/news/23…
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Congratulations @GabbyLogan for smashing it on @Catchphrase last night, winning an incredible £9600 for MDUK! Thank you so much for helping raise vital funds - your continued support is greatly appreciated. 🧡
Amazing news!💙 We’ve been campaigning for access to Translarna since 2016 and today NICE has recommended it should be available on the NHS. Huge thanks to all of the families who have played a huge part in bringing about today’s decision. Read more at bit.ly/3Wjamet
Good luck @p_franklin5 @KFRANKS21 you’ll both smash it for sure.Thanks for all your amazing fundraising & all the training you’ve put yourself through for Archie & @MDUK_News We’re all so unbelievably grateful & proud of you both.Big love & 🙌🏻 from Archie too!🧡 @LondonMarathon
Thank you @TalkRoberto in giving your time to talk & show interest in how Archie is doing. Always so grateful for your kindness & support. A true fan of Archie & his infectious smile!💙
This severe life limiting disease stole from us the luxury of choice - and left in its place a gaping chasm of grief sadness and despair. But it couldn’t steal our hope and won’t steal our fight for Archie & all boys with Duchenne. #fightingtogether🙏🏻
@DuchenneDay @MDUK_News
GCSE…Smashed it!💪🏻📚
Never in our wildest dreams did we think Archie would be achieving this milestone! Unbelievably proud right now 🫶🏻💙🫶🏻#newchapter #sixthform #Alevels @MDUK_News
Great news💪🏻💙💪🏻
We’re pleased to share that those living with Duchenne and receiving ataluren (Translarna) can now still receive it, if clinically appropriate, when the managed access agreement ends in Jan, regardless of the outcome of the NICE appraisal. Statement from @NICEComms @NHSEngland:
There’s a certain amount people who truly touch your heart, @RussComic you will be so dearly missed. Forever grateful for all your love kindness & support over the years. #heartbreaking💔
action4archie retweeted
A huge THANK YOU to all our parents and students for their generous donations for @MDUK_News and going bright!
Tough day coupled with a big reality check at @GreatOrmondSt which puts so much into perspective but that aside so unbelievably proud of you today Archie!💙@MDUK_News
action4archie retweeted
Every child deserves to be at home with their families to celebrate Christmas. Donate to @GOSHCharity to help bring a child one step closer to home: bit.ly/3GgaEeL. Thank you 💜
