@arisonsned.bsky.social Cat and Dog botherer. YP counsellor retired. Want my health back 🩵
Earth
Joined November 2011
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I‘m incredibly proud of what a small but determined group of people can do. If you’ve ever contributed then you’ve helped fund actual biomedical research into #myalgicE #positiveresearch £900k We did it for ourselves. @LetsDoIt4ME Jo Jan Paul 💙Amazing
ldifme.org/2019/07/31/8-year…
Alisontomyradioooo retweeted
If you're a member you could email a question to them for the agm - feel free to cut and paste:
'Which legal firm are you using for advice on Article of Association amendments and may we see correspondence showing what advice you requested?'
[email protected]
Alisontomyradioooo retweeted
Lewis Hamilton visits the Rafah border 🇪🇬 to inspect aid meant for Gaza 🇵🇸
Lewis is forcing media to cover aid blocked from reaching Gaza 🇵🇸
Standing for the oppressed
There are those with elevated positions who are silent to genocide
Then there is Lewis
Shining a light.
👏
Alisontomyradioooo retweeted
Our new paper about UPF is published today in @BMJMedicine - we show the proportion of UPF products which are high in fat, sugar and salt compared to UK government guidance (spoiler alert - it's a lot).
This is important because so much of the discussion around UPF has focused on whether ALL of it is unhealthy or whether we should just worry about a few categories of products.
So we took a database of products and asked two simple questions:
1. What proportion of Ultra Processed Food products are high in sugar, salt, saturated fat and energy according to UK dietary guidance?
2. What proportion of UPF is defined as 'unhealthy' by the two existing classification systems that we use to define unhealthy food,
- Front of Pack Traffic Lights and
- the HFSS definition (High Fat, Sugar, Salt)?
Here's what we did, and what we found...🧵
bmjmedicine.bmj.com/content/…
Alisontomyradioooo retweeted
That comment on the Times article announcing the SequenceME funding showed us the views of the chair of the ME Association trustee. It is unlikely to be a minority view.
Thankfully Riley resigned under significant pressure, but the renewal needs to be completed.
Alisontomyradioooo retweeted
#ME #Longcovid I have been made aware of a high court judgement that has been released in the public’s interest and could positively impact anyone being admitted to hospital. The parents requested Dr Claire Taylor to be their expert witness and it is Dr T’s report 1/
The percy pig van is delivering our shopping today. I don’t know what that means, but is sounds good 🤷♀️
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Alisontomyradioooo retweeted
Patients with hypermobile Ehlers-Danlos syndrome (hEDS) face nearly 3x the risk of developing Long COVID, according to a major U.S. nationwide study of 19+ million health records.
Despite similar COVID infection rates, the elevated risk of developing Long COVID was heavily concentrated in hEDS patients who were also diagnosed with:
- POTS
- MCAS
- ME/CFS
The study also found hEDS is far more common than previously thought (~1 in 800 people).
Better screening, earlier diagnosis, and integrated care are urgently needed for this underdiagnosed group.
#hEDS #LongCOVID #POTS #MCAS #EhlersDanlos
Read more: buff.ly/SphJNeW
Alisontomyradioooo retweeted
But why does this extremely sick athlete have to do your job for you? Sorry but it’s so bizarre to see this powerful and well-funded organisation rally behind a campaign like this when it won’t address the concerns of its own patient members regarding accountability/tenure.
Beth Dobbin interviewed on BBC Radio Sheffield!
Listen to the interview covering Beth's experience with ME and her letter to PM Andy Burnham.
Thanks to Adam (aka @ABrokenBattery ) for uploading the interview clip: youtube.com/watch?v=3UaP6csC…
#MECFS #pwME #MyalgicE
Our incredible @easyuk community has raised £260.51 for @Invest_in_ME this Donation Day! Help continue our success by supporting us on @easyuk & turn your online shopping at over 8,000 retailers into free donations: Whoop Whoop! join.easyfundraising.org.uk/…
Has anyone had the situation where a carer has arrived unwell (mask on, says they have a cold) and you sent them away because you don’t want whatever it is they have. If you did, were you charged by the care co?
Thanks
Alisontomyradioooo retweeted
Magnets, mugs and bags on my Red bubble (see pinned post). I'm pleased with how the Christmas cactus design printed. I'm getting into surface pattern design in the moments when I can! Do you have any favourite textile designers? I love midcentury design.
#ChristmasGiftIdeas
ALT pink and green Christmas cactus design on fridge magnets
ALT pink and green Christmas cactus design on a white mug
ALT blue and autumnal oranges and reds leaves on a pale blue bag
ALT dusky pink and sage green Art Nouveau inspired repeat pattern tulip design on an olive green background on a bag
Alisontomyradioooo retweeted
New publication out (Research Square) - submitted.
I am more than proud to present our publication:
"Severe and very severe ME/CFS – when healthcare is out of reach"
to you. First author and project lead: @ver_hac
1/n
