ITT - a patient-led campaign group, with the intention of giving a voice to thyroid patients needing improved diagnosis, treatment and support.
England, United Kingdom
Joined July 2017
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- Following1.6K
- Followers2.4K
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Pinned Tweet
ITT, in partnership with Blue Horizon, is very pleased to offer 10% off all BH blood tests. Their thyroid tests also include Magnesium and Cortisol. Blue Horizon also recently reduced the price of their thyroid tests.
Please use the discount code ITT10
bluehorizonbloodtests.co.uk
ππ¦ On World Thyroid Day ITT is close to celebrating our first 9 years. We've compiled "Our journey so far". Hope you can see that we're not giving up on getting better treatment for patients! @RosieDuffield1 you may be interested to read it?
The link...
docs.google.com/document/d/1β¦
World Thyroid Day. Sadly, so many things wrong with thyroid care & on our 'to do' list, but we currently focus on access to T3.
If we were dealing with any reasonable organisation (& its many parts) this might've been a quicker task but alas we're not.
Our ITT team works so hard
π€ Made with AI
ITT is celebrating World Thyroid Day on 25th May. Join us on Facebook. Keep watching for all our posts!
π€ Made with AI
Improve Thyroid Treatment retweeted
Amazing Steve Rosenberg - our Russia Editor - has won the Outstanding Contribution Award at the Royal Television Society TV Journalism Awards
Heβs genuinely a legend β€οΈ
Improve Thyroid Treatment retweeted
@JimBethell you must remember your involvement with the scandal of denied access to Liothyronine for thyroid patients? It's still a huge mess. ICBs refuse to follow NHS guidance. @thyroiduk_org and @campaign_itt would welcome your support please.
Improve Thyroid Treatment retweeted
Common sense has prevailed. My Endo reassured my surgery that an over range result after recently taking T3 is not a big surprise. Provided I am not experiencing a racing heart or tremor nothing to worry about. Surely important this should be understood by doctors and nurses....
Improve Thyroid Treatment retweeted
Can this please also be done on the current state of hypothyroidism treatment? But it must involve patients. It's widely known that 15-20% hypo pts left very unwell. A huge number.
T3 isn't a panacea for all, but can transform lives.
This situation can't be allowed to continue.
This is brilliant news!
We would like to say a massive thanks to everyone who plays the National Lottery!
With the help of @TNLCommunityFund we will be able to spread the word about how to feel better with thyroid disease. Thank you @TNLUK from myself (CEO) and all at Thyroid UK.
Improve Thyroid Treatment retweeted
π As a small charity with no Govt funding, we rely on YOU!
You can help in many ways:
π Fundraise
ποΈ Shop & donate
π Gift shares
π Give in memory
π Leave a gift in your Will
π² Play our Lottery
β»οΈ Recycle items
π Visit our shop
Every bit helps! thyroiduk.org/support-us/makβ¦
There's no NHS data on hypothyroid pts, yet thyroxine is 3rd most Rx drug in UK. Many patients never well on it, debilitating fatigue, brain fog, depression, weight gain, unable to work. Pts refused 2nd line option
@wesstreeting @NHSEngland wake up! Talk to @campaign_itt please
Excellent summary. Desperately needed by countless 1,000s of UK hypothyroid patients.
@NICEComms @NHSEngland @TheEndoSociety @simonhpearce @DrPeteTaylor
This quoted reply says it all.
It's now well-known that some patients need T3.
T3 is not dangerous, when used properly - like all medications.
Hypothyroid pts feel left on the scrapheap, not listened to, gaslighted.
2026 must be when T3 is accepted by all clinicians
Improve Thyroid Treatment retweeted
What I learned from my daughters recent hospital admission
Different doctors. Different opinions. No ownership. No resolution. Just a revolving door of theories and prescriptions that change every shift
No one closes the loop. Responsibility moves on before answers arrive. πͺ‘
Improve Thyroid Treatment retweeted
Thyroid patients know this. What a shame clinicians don't know too. Training (& consequently treatment) is poor in UK, leaving countless 1,000s of patients, almost all of them women, very unwell, often for years @wesstreeting @lregan7 @PSCommissioner
Improve Thyroid Treatment retweeted
This time of year can be tough if youβre living with a thyroid condition.
Weβve partnered with @wren_project, which offers free emotional listening support for those with Autoimmune Thyroiditis, Hashimotoβs or Gravesβ disease.
π Visit: thyroiduk.org/get-support/thβ¦
#ThyroidUK
Improve Thyroid Treatment retweeted
Would very much welcome more views on this. Patients deserve the truth about T3. Clinicians need to be taught this too.
Current T4 treatment leaves many patients very unwell.
@britishthyroid @ThyroidBritish
@simon
Delighted our paper Risk of Death and Adverse Effects in Patients on Liothyronine is featured article of the week in JCEM β¦β¦@Soc_Endoβ© β¦@AmThyroidAssnβ© β¦@britishthyroidβ© β¦@ThyroidBritishβ© β¦β¦@ThyroidTrustβ© β¦ academic.oup.com/jcem
This... It's a national scandal. Hundreds of thousands of patients (mostly women) @westreeting @StuartAndrew @Paulscriven @TheBMA
Training is so poor, huge overhaul needed.
ITT would love to discuss with you.
Yet, after all these years, the diagnosis and treatment by Gps and Endocrinologist's of hypothyroidism is so poor. People gaslit and left to suffer @campaign_itt @thyroiduk_org
Improve Thyroid Treatment retweeted
NHS Menopause Health checks coming soon! π£
In line with current free, routine health checks offered to everyone over the age of 40yrs old, after much campaigning the dHSc is to have dedicated questions added to the NHS Health Checks about the menopause βΒ free assessments offered to eligible adults aged 40yrs + every five years β will benefit nearly 5 million women.Β
Too often, women's experiences of menopause have been minimised or misunderstood, with symptoms sometimes mistaken for other conditions or attributed to stress or lifestyle factors. With the Menopause healthcheck lifestyle, holistic and HRT options can be discussed early to support the biological transition
We have had grassroots organisation members from The Health Collective share their experiences as well as research from RCOG, Womenβs Health NHS England, Menopause Mandate, Menopause Employment, wellbeing of women, UCL womenβs health and InTune to help keep pushing for change
The next step to consult with experts to ensure the line of questioning is right for the menopause healthcheck and then roll this out in the NHS
Leave me your thoughts