Clinical Psychologist & Researcher | PhD, DClinPsy | 🇺🇸🇬🇧🌏 | focus: MND/ALS; improving psychological care and quality of life for all affected | views mine
Sheffield, England
Joined May 2019
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iDeliver MND. A two year research project to improve psychological care in MND. Funded by the @mndassoc.
Please see link below for more info, click on the second photo to see our aims, and stay tuned for updates and opportunities to get involved!
mndassociation.org/research/…
ALT Project title
ALT Project aims
Emily Mayberry (she/her) retweeted
Can the MND/ALS community can help? I would like some photos to use in educational materials & websites of people of colour with MND/ALS using NIV/BiPAP. I want to make our pictures more diverse. Is anyone willing to share a picture of themselves? DMs open. @alsadvocacy
Participants still needed!
We are working to improve delivery of psychological care in MND and need your help.
We want to speak with our MDT colleagues who have worked alongside psychologists to learn about the role and potential value of having psychology in the team.
Emily Mayberry (she/her) retweeted
Do you or someone you know have MND? Would you like to help us do a short interview to help us know more about how to care for people experiencing emotional distress? @SYMNDA @AmmarAlChalabi @profcjmcdermott @MNDoddie5 @DarbyRimmerMND mndassociation.org/research/…
If you are the nurse or the other person who stopped to check on a member of the public on College Street, thank you. I didn't catch your names, but you were truly amazing, while seeming to think nothing of it. We are all lucky to have humans like you in our midst. @SheffieldHosp
Emily Mayberry (she/her) retweeted
Do you or someone you know have MND and live in the UK? Please help us take part in our research to improve the way we support people experiencing emotional distress. @ejmayberry @profcjmcdermott @Char_Massey @PaulWicks @SYMNDA @neuroshef @SheffieldBRC
ALT Call For Participants! Do you have MND or care for someone with MND? You are invited to take part in confidential interviews which will explore your personal emotional experiences with MND. We aim to have up to two interviews which may take up to an hour each and can take part in person, by video call, over the phone or via email, depending on your own personal preference. You will receive a £10 voucher per interview for your time. The study aims to: Understand the different aspects of emotional distress people with MND can experience better. Understand whether the current tools of measuring distress are effective and relevant for people with MND. Improve the future provision of emotional support to people with MND. For more information, please contact Antonia Pavlou-Rodriguez at [email protected]
📢 One final request for MND carers to participate in our study looking at what helps and what makes it harder for you to access your own support.
And, thank you so much to everyone who has volunteered so far. Your input has been extremely valuable and very much appreciated.
Rosie worked with me for 4 years and is now coming to the end of her doctorate. If you work in a neuro rehab setting of any type, please consider completing her survey.
Please also help spread the word by retweeting or sharing with colleagues.
Healthcare staff working in neuro rehab services-we want to hear from you🫵about your experience caring for people with a #braininjury🧠More info and to complete the survey➡️app.onlinesurveys.jisc.ac.uk…
Please share @InruTrafford @neurorehabsrft1 @GMNISDN @cnrs_stockport @strokeAHPs
We are hoping to speak with a few more friends/family members of people living with MND. If you provide any level of support to someone living with MND, we'd be very grateful for your input.
Providing support for #MND #ALS carers is vital.
@ejmayberry is investigating what stops informal carers from seeking help for themselves.
They are asking friends/family members who have provided informal care to share their experiences.
Take part ⬇️
mndassociation.org/research/…
ALT Person pushing a wheelchair with a person pointing towards trees
Emily Mayberry (she/her) retweeted
We have a post in Neuro rehab! 🥳
This is a permanent post in Sheffield Teaching Hospitals working with a fabulous team.
The post is 2.5 days in Neuro rehab, with other opportunities across the department for those that would like full time hours!
jobs.nhs.uk/candidate/jobadv…
Emily Mayberry (she/her) retweeted
I’m really proud of Lindsey for raising awareness for the needs of carers and for shining a light on the incredible work unpaid carers do. If you can please watch Tonight at 8.30pm in support of our carers!
Thursday Night on ITV...
Lindsey Burrow is an unpaid carer for her former rugby league player husband Rob. In this ITV Tonight film she meets other carers from around the UK to find out what life is really like for them- and what changes they'd like to see.
Lindsey Burrow: Who Cares For Our Carers? | ITV1 | 8:30pm
Get involved using the hashtag #ITVTonight
📢 closing date: 22/1 📢
Very exciting opportunity to set up a service and deliver psychological support for people living with MND.
cht.nhs.uk/working-for-us/va…
You will also have the opportunity to join a peer support network of psychologists working in MND across the UK.
In case you want to know more about what the work will involve, please see the fantastic video created by my colleagues in the network. youtu.be/aG2CPHhE3Fk
Emily Mayberry (she/her) retweeted
Providing support for #MND carers is vital.
@ejmayberry and team aim to understand the support MND carers need and how best it can be offered.
They are asking friends/family members who have provided informal care to share their experiences.
Email: [email protected]
ALT Person walking and pushing person in a wheelchair, outside in a park
🆘HELP!🆘
No volunteers yet. Please consider volunteering or sharing!
We know MND carers are exceptionally busy, and we don't want to create more work. However, we think it's important to understand more about the support MND carers need and how best we can offer this.
📢Calling all friends and family members of people living with MND who are providing, or have provided, informal care.
We need your help to understand what makes it difficult for 'informal carers' to access help so we can find better ways of offering it.
📢Applications close on 13th November!
If you're interested in learning more about what the work as an MND Psychologist is like, please watch this video made by some of my fabulous colleagues.
youtu.be/aG2CPHhE3Fk
Come and join the Sheffield MND Psychology team and the Sheffield Neuropsychology Outpatients team! Two interesting and exciting clinical services with bonus opportunities to get involved in relevant research.
Deadline to apply is 13th November.
sth.nhs.uk/work-for-us/jobs?…
Come and join the Sheffield MND Psychology team and the Sheffield Neuropsychology Outpatients team! Two interesting and exciting clinical services with bonus opportunities to get involved in relevant research.
Deadline to apply is 13th November.
sth.nhs.uk/work-for-us/jobs?…
Emily Mayberry (she/her) retweeted
Research Associate – Psychology Care in MND with @ejmayberry at @sheffielduni
dementiaresearcher.nihr.ac.u… #ECRdementia
