Founded 2014 & Inspired by Nicci Gerrard's father, John. For the right of people with dementia to be supported by their family carers [email protected]
Joined December 2014
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- Following11.3K
- Followers11.3K
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John's Campaign retweeted
Families shouldn't have to face end-of-life care alone.
Compassionate support at home can help your loved one remain comfortable while giving families reassurance.
Learn about our palliative care support:
ow.ly/fO1e5100rZt
#PalliativeCare #EndOfLifeCare
John's Campaign retweeted
"Without my Admiral Nurse, Lucy, I don’t know how we would have navigated it all. She was always at the end of the phone, ready to help with practical advice or emotional support."
For Jules, Lucy's support was a lifeline. Our Admiral Nurses are here for every family affected by dementia. Learn more here: dementiauk.org/information-a…
Does Jules's story resonate with you? Share your thoughts in the comments.
ALT Two people in red jackets stand on a sandy beach with grassy dunes in the background. One person wears sunglasses and a beanie, while the other leans in closely. The sky is clear and blue.
ALT Two people bundled up for cold weather, sitting next to a Santa Claus figure on a bench. They are surrounded by snow and decorations, creating a festive atmosphere
John's Campaign retweeted
Admiral Nurse Sue shares how she supported one family affected by #dementia and #sleep problems. Watch this video for her practical tips.
To learn more about dementia and sleep, visit our website: dementiauk.org/information-a….
And it's not just dying scared and alone, it's pleading for the support of your son or daughter, and being denied. People should not have to plead for something so human and basic
Time to act @andyburnham @YvetteCooperMP and make sure that never again can those in health/care be abandoned @lucethornton @JohnCampaign @LordPhilofBrum #RightsForResidents
'Do you know where my daughter's gone?' Lords being asked to stop loved ones dying scared and alone mirror.co.uk/news/uk-news/co…
John's Campaign retweeted
Somewhere, there is a family carer quietly wondering if anyone else feels exhausted, resentful, lonely, overwhelmed, or changed by this journey. Conversations about caring challenges matter.
John's Campaign retweeted
A culture of territorialism permeates health & social services, with deep ‘them and us’ battle lines drawn by staff. The cult is impenetrable.
This is the greatest obstacle to a better NHS. Not funding. No amount of funding can fix it, only a change in culture.
I wish I could see a permanent change in the culture - away from territorialism 'this is my ward / care home and I decide who gets to stay' towards Carers Welcome and putting the patient residents wishes front and centre
John's Campaign retweeted
So sorry to hear this Tracy. I very much hope your father is ok and thank you for sharing. Yes, it is exactly why the role of a #CareSupporter needs to be recognised in all healthy and care settings. #RightsForResidents
John's Campaign retweeted
Sadly reminded just how important a care supporter is for vulnerable people! Dad had a bad fall at home yesterday, we were in A&E until 04:30 this morning with him. Full mental capacity but severe infection left him confused, he’s deaf & struggled to answer Drs questions!
John's Campaign retweeted
England, Wales,Northern Ireland & Ireland are still waiting on their version of Anne’s Law.The devastating impact of residents being separated from families was highlighted in the UK Covid inquiry module 6 report which also recommends governments introduce equivalent regulation
John's Campaign retweeted
The final person to speak on Wednesday night was @Tanni_GT. Thank you for speaking and sharing your personal experiences but also those of others. The Committee comes together again on Tuesday afternoon. @JohnCampaign #RightsForResidents
John's Campaign retweeted
Fantastic open letter to #BaronessMerron. Such a late but powerful session on Wednesday, we hope all will get behind this amendment & support the changes. Never again must those in health and care settings be separated from the people who mean the most to them #RightsForResidents
John's Campaign retweeted
Will the Government remain #Faithful to their manifesto and accept the amendment in the #HealthBill made by @LordPhilofBrum - we hope so! @andyburnham @YvetteCooperMP #BaronessMerron @JohnCampaign #RghtsForResidents
When the confidence and potential happiness of millions of people depends on a handful of tired but dedicated peers late in the evening, we have to find other ways to get the message out. Please RT An Open Letter to Baroness Merron johnscampaign.org.uk/post/an… via @JohnCampaign
John's Campaign retweeted
When the confidence and potential happiness of millions of people depends on a handful of tired but dedicated peers late in the evening, we have to find other ways to get the message out. Please RT An Open Letter to Baroness Merron johnscampaign.org.uk/post/an… via @JohnCampaign
John's Campaign retweeted
Care Partners💕
“We know that organisations such as the National Care Forum and Care England support an approach, that differentiates a person crucial to the service user, & chosen by them, from the generality of visitors, however important and welcome.”
johnscampaign.org.uk/post/an…
John's Campaign retweeted
Hi, it’s @SamSmithHiggins
The last two weeks have been mentally brutal for our families. And I need to take some personal responsibility for the pain many are now feeling.
As Co-Lead, I trusted @Plaid_Cymru ‘s assurances. I believed them, and I passed that trust on to our families. I’m sorry 😞
After six years of fighting for a Wales Covid Inquiry, you can imagine the devastation and sense of betrayal they now feel.
A message to all politicians: please don’t use people like us in a political game. We are real people, carrying real grief. This is cruel, and it has to stop 🛑
Pic is our private FB group. @mabonapgwynfor @DafyddTrystan @PeredurPlaid @RhunapIorwerth @DelythJewellAM @Sioned_W @Heledd_Plaid @Adamprice @LlyrGruffydd @cefincampbell - you’re the ones we trusted 💔
she spoke from her heart
The next person to speak and share their personal story as well as lend their support to the amendments was #BaronessTylerofEnfield. Thank you. #RightsForResidents
John's Campaign retweeted
Just to remind @andyburnham and @YvetteCooperMP this was in the #LabourParty manifesto in 2024.... @JohnCampaign #RightsForResidents
Thank you to @LordPhilofBrum for your ongoing support. The amendments being introduced would ensure that those in health and care could have the person they want with them. #CareSupporter @JohnCampaign @CovidJusticeUK @PatientsAssoc #RightsForResidents