Appreciates conversations where both things can be true. | Anthropologist & bioethicist @UCSF Bluesky: @juliaehbrown.bsky.social
Joined May 2014
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Julia Brown, PhD retweeted
An excellent podcast with insightful comments from Felicity Lawrence, one of the first journalists to have doubts about the Lucy Letby case. Her colleague @JoshHalliday, who attended most of the trial, bravely explains why he has changed his mind. theguardian.com/news/audio/2…
Julia Brown, PhD retweeted
Ambassador Caroline Kennedy’s statement to the US Senate on RFKJr’s nomination for HHS Secretary
This is a reading of a letter she just sent to Senate Committee on Health, Education, Labor and Pensions
I’m so proud of my courageous mother, who’s lived a life of dignity, integrity and service.
she’s the kindest funnest smartest you’ll ever meet.
Julia Brown, PhD retweeted
In this Viewpoint, @juliaehbrown, Winston Chiong, and Nora Hutchinson explore how current ethical challenges of N-of-1 trials for serious neurological diseases could be addressed by integrating current approaches into learning healthcare systems. ja.ma/3PSN3re
Parents and kids are under too much pressure. Screening embryos for complex, polygenic conditions won't help! @daphmarts and I explain some ethical and social implications of Superbaby tech with the help of our great local newsroom @sfstandard sfstandard.com/opinion/2024/…
Julia Brown, PhD retweeted
I have some real concerns about what another Trump presidency means for women in this country — and I wanted to share some of my thoughts. If this resonates with you, send this video to every single person you know and remind them what’s at stake in this election.
‘274 volunteers joined the trial without Eisai telling them they were at an especially high risk for brain injuries’ nytimes.com/2024/10/23/healt…
Disease burden, hope, treatment burden, then hope again. Stories like these can help prepare future CRISPR patients.
nytimes.com/2024/10/21/healt…
Julia Brown, PhD retweeted
With a joyous heart, I want to share a link to my new book, Breaking Points: Youth Mental Health Crises and How We All Can Help with UC Press. doi.org/10.1525/luminos.205
I waived all royalties so everyone can read for free (download the PDF).
“Private enterprises offer preimplantation genetic testing with polygenic scores to select embryos with ‘desirable’ potential … the selected embryo would rely substantially on the choice of polygenic score method and randomness in score construction” nature.com/articles/s41562-0…
Julia Brown, PhD retweeted
My piece in the @hastingscenter Bioethics Forum on the Trump campaign's discussion of "bad genes" thehastingscenter.org/the-al…
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Every medicine has trade-offs between immediate and long-term effects, with some pediatric gene therapies really testing that threshold for acceptable risk science.org/content/article/…
Another brilliant piece from @Andrew_Solomon. This time on the relationship between social media and teen suicide, centering family stories. newyorker.com/magazine/2024/…
“You have to allow people an area of self that doesn’t submit to a mathematical program” - Zadie Smith on point as ever podcasts.apple.com/us/podcas…
Julia Brown, PhD retweeted
We are getting excited to share this upcoming event! Join us on Tues, 9/3, for "Gene Therapy for Duchenne Muscular Dystrophy" part of the Getting to Patients series featuring Drs. Alexander Fay, @juliaehbrown, and patient. The program starts at 4 PM in HSW-301.
Join us for Getting To Patients, Tues, 9/3! Dr. Alexander Fay shares “Gene Therapy for Duchenne Muscular Dystrophy” with patient perspective, and discussion @juliaehbrown tiny.ucsf.edu/Fay
Julia Brown, PhD retweeted
‼️ Mark your calendar for "Getting To Patients" next Tuesday, Sept. 3rd‼️Dr. Alexander Fay will present on "Gene Therapy for Duchenne Muscular Dystrophy." Hear a patient’s story and join the discussion with Dr. Julia Brown @juliaehbrown. Join us here 👉 tiny.ucsf.edu/Fay
Bringing the clinical-scientific and patient/family voice together is so important! Join us in person next Tuesday at UCSF Parnassus for some great conversation
‼️Don't miss "Getting To Patients" on Tuesday, Sept. 3rd! Dr. Alexander Fay will present "Gene Therapy for Duchenne Muscular Dystrophy." You'll get to hear a patient’s perspective, followed by a discussion w/ Dr. Julia Brown @juliaehbrown. Join us 👉 tiny.ucsf.edu/Fay
Glad to have written this piece for @ConversationUS to explain why ethics and patient engagement matter so much for prenatal gene editing developments, as with other controversial health technologies... my collaborations @UCSFcmfpm give me hope!
Bioethicist and Center collaborator @juliaehbrown emphasizes the importance of engaging patient communities early as gene-editing technology advances. Understanding patients' perspectives, needs, and priorities is essential for ethical progress. bit.ly/DrJuliaBrown
Julia Brown, PhD retweeted
Join us for Getting To Patients, Tues, 9/3! Dr. Alexander Fay shares “Gene Therapy for Duchenne Muscular Dystrophy” with patient perspective, and discussion @juliaehbrown tiny.ucsf.edu/Fay
Appreciating this gallery from @PositiveExpo featuring images of people with genetic differences, to de-stigmatize and empower individuals and families living with rare genetic conditions positiveexposure.org/images/