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Can we move away from the phrase “dumb it down” - why not call this translation. Patients, clinicians, researchers, etc all speak different languages - I don’t need a dumb version, just a version spoken in my language. #PCORI2018 – at Washington, DC
Everyone has a role to play in the prevention of Adverse Childhood Experiences!
Join me at the 2023 #MIACE Initiative Conference to learn about local & national #ACE Prevention Initiatives & inform strategies to improve the lives of Michigan's children. DMgtS.regfox.com/2023aceconf…
Mat Edick retweeted
Such an easy way to spread holiday cheer to children & families facing complex care and rare conditions over the holidays. If you are able, check out the adorable wishlists below and help make the holidays a little more joyful for these families! Please retweet to your networks!
Winter is HERE and today is #WishListWednesday! With the holidays approaching, Gillette welcomes donations from either of our wishlists found at Target or on Amazon. Thank you in advance for your generosity!
1. Amazon: gillette.mn/3TsCTNK
2. Target: gillette.mn/3gjq1Lq
Mat Edick retweeted
NCC is excited to celebrate Genetic Counselor Awareness Day! We want to thank all the genetic counselors who assist in our efforts to increase the utilization of genetic services for underserved populations. #GCChat #IAmAGeneticCounselor
ALT Text: Thank you, During this year's Genetic Counselor Awareness Day, we would like to give a heartful thank you to all genetic counselors, especially those that participate in the RGN/NCC/NGEFSC system!; #IAmAGeneticCounselor Images: NCC logo, Genetic Counselor Awareness Day- Partners in Your Genetic Health Care logo
Mat Edick retweeted
#GeneChat, look what will eventually be coming down the line!
As the public health system looks to expand newborn screening using genome sequencing, the needs of all newborns and families remain at the center of deliberations. Read our blog. blogs.cdc.gov/genomics/2022/…
#ICoNS22
Mat Edick retweeted
The CDC Genomics and Precision Health Weekly Update spotlights our November 14 webinar on family health history in medically underserved populations, a new blog post on preeclampsia and genomics, CDC information on hemophilia, and more cdc.gov/genomics/update/curr…
ALT Screenshot of the CDC's Office of Genomics and Precision Public Health home page: Family History and Public Health November 14 Webinar
Mat Edick retweeted
🔥final #PCORI2022 panel. Particularly appreciated @sinsipuede's right-on comments on addressing racist systems, centering community voice, & rejection of resilience- 'resilience doesn't protect from structural racism'.
Who are the stakeholders that know and understand how to collect cost of health care utilization data…and how does a research team attract them to collaborate? Listening to experts from @RTI_Intl, @NPAF_tweets, @PAHumanServices, and @pcori at #PCORI2022 – at Michigan, USA
As #PCORI2022 is winding down, I am left wondering if @PCORI’s methodology standards are sufficiently broad to handle the increasing complexity of addressing root causes of health inequities in #PCOR. What about evidences bases for CER? Thoughts??? #CSHPAtWork
Maybe this is obvious,but it’s also profound. Speaker after speaker at #PCORI2022 is highlighting the importance of trust and relationships to improve health outcomes. Funders take note - this takes a long time with many intangible deliverables & we need room for this in budgets.
Mat Edick retweeted
Incredibly powerful storytelling from Ashley Valentine
@SickCells. Appreciate her sharing her family's experience as well as the historical context & legacy of racism on #SickleCellDisease patients & families. #PCORI2022
Individuals with #RareDisease face crushing economic burden. For individuals with #SickleCellDisease, the burden is multiplied by systematic racial inequities faced by black and brown people. #PCORI2022. Listening to Ashley Valentine @SickCells at #PCORI2022.
Mat Edick retweeted
APHL celebrates 2022 Newborn Screening Award winners -- congrats to all recipients! All recipients and their awards are listed here: buff.ly/3yUSBtc #APHLNBS
Mat Edick retweeted
#pcori2022 Advice to health researchers seeking to engage underserved communities: Building trust is the step one in building relationships between community and researchers. Trust is built when researchers show deference to community voices.
Mat Edick retweeted
ARCC & partners developed an Anti-Racist Reflective Practice Tool for Community-Academic Researchers & Partnerships: bit.ly/ARCCtool It would be great to see if there are any opportunities for collaboration on this related work... #PCORI2022
Mat Edick retweeted
#PCORI2022 talking about the transition from community-engaged to community-partnered to community-LED research prioritization and how this will impact our systems of power. It's such an exciting time to be a research trainee!
Mat Edick retweeted
Join health experts from @UIHealth and @MAHECwnc as they discuss challenges and successful strategies for the expansion and diversification of the maternal healthcare workforce to address the #maternalhealth crisis.
pcori.me/3st5XZQ
#PCORI2022
“Our lives have not been changed by what you have learned from us” This is why @CSHPatWork engages stakeholders in all aspects of our work from conception through sunset. Those most affected by our work have power to lead and influence it. Listening to @JenBrownARCC #PCORI2022
Excited to hear from @JenBrownARCC, @MelvinRT23, and Jennifer Lee speaking about #HealthEquity and how PCORI funded work can address root causes of health inequity - #PrimaryPrevention
Exactly what does it mean to “do” health equity work? I would argue that in the US almost all work you do could be contributing to advancing health equity. But advance only happen by intentional action. There is no room for passive health equity work. #PCORI2022
Exactly what does it mean to “do” health equity work? I would argue that in the US almost all work you do could be contributing to advancing health equity. But advance only happen by intentional action. There is no room for passive health equity work. #PCORI2022