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MS Data Alliance

@msdataalliance

Data can transform the care of people with MS.

msdataalliance.com/
Joined April 2022
  • Tweets48
  • Following28
  • Followers62
20Media
Photo by MS Data Alliance (@msdataalliance)Photo by MS Data Alliance (@msdataalliance)Photo by MS Data Alliance (@msdataalliance)Photo by MS Data Alliance (@msdataalliance)Photo by MS Data Alliance (@msdataalliance)Photo by MS Data Alliance (@msdataalliance)Photo by MS Data Alliance (@msdataalliance)Photo by MS Data Alliance (@msdataalliance)Photo by MS Data Alliance (@msdataalliance)Photo by MS Data Alliance (@msdataalliance)
@eumsplatform and @msdataalliance leading on the final webinar on What is Next when it comes to setting up #MS registries! The way forward: ✅️ Big data ✅️ Artificial intelligence ✅️ In-depth understanding of MS characteristics and behaviors #MultipleSclerosis #registries
Image from European MS Platform (@eumsplatform)
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@eumsplatform and @msdataalliance leading on the first webinar on 'How to set a Multiple Sclerosis registry?' ➡️ as part of a series of 5 webinars with MS Societies ✅️ Step 1: Understanding the VALUE of real world #MS #data and #registries
Image from European MS Platform (@eumsplatform)
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MS Data Alliance retweeted
UKMSRegister (@UKMSRegister) profile picture
UKMSRegister@UKMSRegister16 Nov 2022
Our Pi, Associate Professor Rod Middleton @g5maniac at the @msdataalliance meeting in Baveno, Italy looking at the use of Artificial Intelligence and Data to reveal progression in MS.
Image from UKMSRegister (@UKMSRegister)
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MS Data Alliance retweeted
Menno Schoonheim (@Mennoke) profile picture
Menno Schoonheim@Mennoke16 Nov 2022
Today Cristina Granziera (@ThINk_Basel) and I were invited to speak together at the #MS Data Alliance (@msdataalliance) Stakeholder Engagement Meeting in beautiful Baveno. How can #AI help the MS MRI field to better predict progression? How do we implement findings in clinic?
Image from Menno Schoonheim (@Mennoke)
Image from Menno Schoonheim (@Mennoke)
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MS Data Alliance retweeted
Professor_Bart (@bart_professor) profile picture
Professor_Bart@bart_professor16 Nov 2022
@TZiemssen and Maarten De Vos showing how wearables and smartphones can help us remotely monitoring persons with #MultipleSclerosis #PROMS #DataSavesLives @msdataalliance
Image from Professor_Bart (@bart_professor)
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MS Data Alliance retweeted
Jana Hlavacova (@JanaHlavacova) profile picture
Jana Hlavacova@JanaHlavacova16 Nov 2022
Thanks to @msdataalliance convening a meeting on the use of #GreatData and #AI to reveal progression in Multiple Sclerosis. The progression in still the biggest unmet need for people with MS. Let’s use the great potential of real world data and machine learning to combat it.
Image from Jana Hlavacova (@JanaHlavacova)
Image from Jana Hlavacova (@JanaHlavacova)
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MS Data Alliance retweeted
Professor_Bart (@bart_professor) profile picture
Professor_Bart@bart_professor16 Nov 2022
Replying to @Mennoke
@Mennoke @MrtnStnwk showing how new MRI sequences (fe DIR) can be build from existing standard MRI by AI, and how neuronal networks lose their flexibility in #MS A big promise for AI use in imaging in #MS 💪🏻 @msdataalliance #DataSavesLives
Image from Professor_Bart (@bart_professor)
Image from Professor_Bart (@bart_professor)
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We are proud to be part of the @msdataalliance, participating in todays meeting in Baveno on a topic of The use of Great Data to reveal progression in MS. Also launching the #MSDAFellowshipProgram 2023, supporting the data collection efforts in CEE and Balkan Region!#MSDA
Image from European MS Platform (@eumsplatform)
Image from European MS Platform (@eumsplatform)
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MS Data Alliance retweeted
Professor_Bart (@bart_professor) profile picture
Professor_Bart@bart_professor16 Nov 2022
@ThINk_Basel great talk and overview on different mechanisms of #MS progression and how AI is helping to detect this on MRI of brain! @msdataalliance #DataSavesLives
Image from Professor_Bart (@bart_professor)
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MS Data Alliance retweeted
EBRAINS (@EBRAINS_eu) profile picture
EBRAINS
@EBRAINS_eu16 Nov 2022
Steven Vermeulen and Paul Triebkorn are at the #MSDA Conference in Baveno! They're presenting EBRAINS with an emphasis on brain-related #data and the challenges that need to be addressed in order to maximize the impact of #GreatData and #AI 👇 #DataSavesLives
Image from EBRAINS (@EBRAINS_eu)
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MS Data Alliance retweeted
Piet Stinissen (@piet_stinissen) profile picture
Piet Stinissen@piet_stinissen16 Nov 2022
⁦@pan_kim⁩ opent als host de ⁦@msdataalliance⁩ meeting in Baveno ⁦@BIOMED_UHasselt⁩
Image from Piet Stinissen (@piet_stinissen)
Image from Piet Stinissen (@piet_stinissen)
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MS Data Alliance retweeted
Professor_Bart (@bart_professor) profile picture
Professor_Bart@bart_professor16 Nov 2022
Today MSDA meeting!! The day before ECF meeting. Bringing together clinicians, data scientists and patients! ‘Cause #datasaveslives @LiesbetPE @eumsplatform @EuropeanCharcot @msdataalliance @TZiemssen @GavinGiovannoni @piet_stinissen @peterfeys_
Image from Professor_Bart (@bart_professor)
Image from Professor_Bart (@bart_professor)
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MS Data Alliance retweeted
EU Medicines Agency (@EMA_News) profile picture
EU Medicines Agency
@EMA_News22 Jul 2022
In a joint statement, global regulators call for international collaboration to integrate #RealWorldEvidence into regulatory decision-making. 💊 More info on this #ICMRA statement in our press release ⬇️

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When #HealthData is shared for scientific research, it speeds up the development of new medical products and treatments for patients who need them. Learn more about why health data is so important HERE: bit.ly/3Px9hgS
Image from DataSavesLives (@DataSaves_Lives)
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MS Data Alliance retweeted
ECTRIMS (@ECTRIMS) profile picture
ECTRIMS
@ECTRIMS30 May 2022
On this #WorldMSDay we pay tribute to #MS researchers worldwide as they work to find better treatment options for people living with multiple sclerosis. We are grateful for your work and will continue to promote & share your advancements and learnings in research #MSConnections
Image from ECTRIMS (@ECTRIMS)
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⏰Just a month away from the #EPFCongress2022 🙌 Join us for the biggest event in patient involvement on 📆 23 and 24 June at the 📍DoubleTree by Hilton in Brussels Get your tickets now or join online for free! ➡️ epfcongress.eu
EPF Congress 2025 - Shaping the Future of Healthcare

EPF Congress 2025 - Shaping the Future of Healthcare

Join us for 2 days of learning, sharing and co-creating solutions to better connect the fragmented picture of patient involvement in digital health.

epfcongress.eu
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MS Data Alliance retweeted
ELIXIR Belgium (@ELIXIRnodeBE) profile picture
ELIXIR Belgium@ELIXIRnodeBE18 May 2022
Replying to @LiesbetPE
@LiesbetPE talking on her drive to engage in the @msdataalliance project #ELIXIRbe22
Image from ELIXIR Belgium (@ELIXIRnodeBE)
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🚀Just launched: the European Health Data Space. This is a new beginning for the EU’s digital health policy, making health data work for people & science. We are laying the foundations for secure & trustworthy access to health data in line with our fundamental values. #EHDS
Image from European Commission (@EU_Commission)
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MS Data Alliance retweeted
Universiteit Hasselt (@uhasselt) profile picture
Universiteit Hasselt@uhasselt30 Apr 2022
Kunnen jouw medische gegevens levens redden?🏥 Prof. @LiesbetPE houdt zich bezig met #bigdata en hoe we daarmee patiënten sneller kunnen behandelen. Haar motto: data saves lives!👇 bit.ly/3EV8Xnb
Image from Universiteit Hasselt (@uhasselt)
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