Neurofibromatosis Network (@nfnetwork) header
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Neurofibromatosis (NF) Network is the national non-profit serving individuals affected by neurofibromatosis. Leading NF Advocacy, Building NF Community.

Wheaton, IL
Joined February 2011
Photo by Neurofibromatosis Network (@nfnetwork)Photo by Neurofibromatosis Network (@nfnetwork)Photo by Neurofibromatosis Network (@nfnetwork)Photo by Neurofibromatosis Network (@nfnetwork)Photo by Neurofibromatosis Network (@nfnetwork)Photo by Neurofibromatosis Network (@nfnetwork)Photo by Neurofibromatosis Network (@nfnetwork)Photo by Neurofibromatosis Network (@nfnetwork)Photo by Neurofibromatosis Network (@nfnetwork)Photo by Neurofibromatosis Network (@nfnetwork)
With Breast Cancer Awareness Month coming to a close, it’s essential to take this time to emphasize your health, particularly for individuals diagnosed with NF1. Help spread awareness by sharing these images!
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🎃 The NF Network wishes you a safe and happy Halloween! What's scarier than Halloween? Missing our Miami Day with the Docs on November 14th! 👻 There won't be any tricks, but be sure to register early to ensure we have enough treats! weblink.donorperfect.com/NFM…
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Join the MyNFGuide Team for their Clinical Trial Results Release on November 4th, 7-8 pm EST. RSVP: forms.cloud.microsoft/r/DtKF… Please contact the MGH study team directly at [email protected] with questions.
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We are just a little over a week away! Join the NF Network and members of our NF community as we rally in the fight against neurofibromatosis. Come on out and have fun as we celebrate 15 years in Memphis, TN! raceroster.com/events/2026/1…
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🎃👻 Did you know that Neurofibromatosis (NF) affects everyone equally, regardless of gender or ethnicity? This Halloween, let’s shed light on NF and break the scary stigma surrounding it! 👉 nfnetwork.org/stay-informed-… #Halloween #Neurofibromatosis #NF #StayInformed #SpookySeason
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October is Breast Cancer Awareness Month, an essential period for individuals to focus on their health, especially those diagnosed with NF1. Read more: nfnetwork.org/news/network-n… If you would like to learn
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We are just a few weeks away! Want to join this year on November 14th? weblink.donorperfect.com/NFM… NF patients and their families play for FREE. For non-NF patients and their families, we are asking for a suggested donation of $30. Every gift makes a difference!
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We must order our walk T-shirts this Monday. To guarantee a "T" in your size, register by Sunday! Haven't signed up yet? Join us at the 15th Annual NF Strong 5K for NF Sunday, November 8thhttps://raceroster.com/events/2026/114566/number-nfstrong-memphistn
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📣 iNForm Carolina is coming to Charleston this weekend. ✅ Register at nfsc.s.gy/iNFormSC Please Note: the NF Network is not the organizer for this event. For any questions, please reach out to [email protected]. #iNFormCarolina #Neurofibromatosis
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In the heart of Memphis, Carrie Wylie shines as a devoted caregiver and fierce advocate for her daughter, Kaitlyn, who bravely lives with NF. Read more: nfnetwork.org/pages-news/cha…
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Ringing the bell after a child's last chemo infusion is one of the most anticipated moments a family can have. It is also, as one NF mom recently reminded us, not the end of the story. nfnetwork.org/pages-news/aft…
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Happy #ThrowbackThursday! We are looking back at last year's Memphis Walk for NF. It's not too late to sign up for the 15th Annual NF Strong 5K for Neurofibromatosis on Sunday, November 8th raceroster.com/events/2026/1…
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October is Breast Cancer Awareness Month, an essential period for individuals to focus on their health, especially those diagnosed with NF1. Read more: nfnetwork.org/news/network-n…
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Join Us for a Special Day in Coral Gables! Saturday, November 14, 2026 Biltmore Tennis Center Outdoor Courts 1150 Anastasia Ave, Coral Gables, FL 33134 Register: weblink.donorperfect.com/NFM…
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Reminder: Early bird pricing ends Sunday! Memphis Walk for NF: Sunday, November 8th Registration and Check-In at 9:00 am | Walk starts at 10:00 am Overton Park, East Parkway Pavilion, Memphis, TN raceroster.com/events/2026/1…
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We had an amazing educational and recreational event at @topgolf in Atlanta this past weekend! Thank you to everyone who came out! Also, thank you to @alexionpharmaus for sponsoring the educational portion!
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For Breast Cancer Awareness Month, we wanted to bring back this infographic created by RARE Revolution Magazine for Childhood Tumour Trust and adapted for our region. nfnetwork.org/data/uploads/n…
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Happy #ThrowbackThursday! We are looking back at last year's Memphis Walk for NF. Sign up by October 11 for early-bird pricing for the 15th Annual NF Strong 5K Walk on November 8th! raceroster.com/events/2026/1…
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