Tick-Borne Infections & Pans/Pandas in the UK #Pans #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME . Views my own. https://nitter.cf/t.co/hk1rb80CzQ
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**Please sign and share this petition for improved testing for Lyme Disease in the UK**
We NEED this. Lyme Disease is being missed and people are left to with multiple symptoms and no anwsers or "it's all in your head". The suffering is immense.
petition.parliament.uk/petit…
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Medical education also didn't teach us about complex chronic disorders that cannot be solved with a shot of insulin or a puff of albuterol. It taught us to label complex medical patients as "psych" and send them out to psychiatry and psychology, where healthcare professionals also didn't know how to approach these patients because many patients didn't respond to standard psychiatric treatment.
Some of us are working hard to change outdated practices, erroneous assumptions and ineffective diagnostic and therapeutic frameworks. Stay tuned for the work I'll be sharing here when it's published. I truly truly believe that things will get better for people living with these devastating conditions. 🤞🤞🤞
Dear physician,
Medical education taught you how to diagnose and treat different health conditions.
You dedicated countless hours memorizing intricate details in biochemistry, anatomy, physiology, and pharmacology.
Unfortunately, medical education comes with a blind spot.
It did not teach you the psychology of practicing medicine.
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‼️ The same rules apply in outpatient setting and chronic illness management. 🩺
✔️ Believe the patient! (Yes, they really DO have 30 symptoms. Yes, they really DO have fatigue that severe. Yes, they really DO have brain fog that impairs work/school.)
✔️ You may not understand what's going on with your patient as a physician and a fellow human, but you should avoid judging your patient as "crazy," "anxious," "not right in the head."
✔️ Practice compassion and hopeful-realistic attitude. You should avoid making promises for a cure, but also avoid hopeless statements like, "There is nothing we can do for you," OR "Only a good psychiatrist/psychologist can cure you."
"Acts of compassion during a period of trauma may last a lifetime in a person’s memory."
Brian Kulp describes the lasting effects of compassion and humour from healthcare professionals during a medical emergency
bmj.com/content/395/bmj-2026…
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I had dinner with a bunch of brain /pathogenresearchers tonight who nearly choked in unison when I told them about this case, showed them the before and after photos, & that doctors concluded her problem was “stress.“
🤯 Tragic idiocy! 22-year-old previously healthy gal wakes up after cleaning her newly renovated home 🤔 with Bell’s Palsy. It progresses quickly to losing ability to walk & speak, & up to 30 seizures per day. MDs are STUMPED & give her the sham diagnosis of “FND” / STRESS. FND is formerly known as “hysteria.” THEY DON’T CONSIDER an acute toxic (home reno VOC’s/ mold) or infectious exposure (Bell’s is classic Lyme symptom, & can progress this way.) My God. Someone tell this family to call me. Via @nypost:
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Great to be featured last night on @WCVB along with amazing PolyBio funder & collaborator Steve Pagliuca. We are working hard to validate novel #diagnostic tests and treatments for the millions of patients around the world suffering from Long COVID & Chronic Lyme disease @pagsceltics @JessicaBrownTV wcvb.com/article/former-celt…
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When our daughter was misdiagnosed with FND no further investigations took place.
She was discharged after 10 days in hospital - physio & psychotherapy recommended.
She was dx with B12 def 5 months later 🤷♀️
It seems to me that an FND dx means no further tests or curiosity 😔
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👏 👏 👏
Persistent viral, bacterial, parasite & other #infections are increasingly implicated in chronic diseases and aging
We’ve united the top scientists, biotech innovators, and other stakeholders working to study & treat these infections into a 3-day Summit.
Come watch the talks virtually at the link below! 👇
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🤯 Tragic idiocy! 22-year-old previously healthy gal wakes up after cleaning her newly renovated home 🤔 with Bell’s Palsy. It progresses quickly to losing ability to walk & speak, & up to 30 seizures per day. MDs are STUMPED & give her the sham diagnosis of “FND” / STRESS. FND is formerly known as “hysteria.” THEY DON’T CONSIDER an acute toxic (home reno VOC’s/ mold) or infectious exposure (Bell’s is classic Lyme symptom, & can progress this way.) My God. Someone tell this family to call me. Via @nypost:
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We’re pleased to announce the inaugural PolyBio Convergence Summit will take place this November 18 to 20.
Presentations will explore the latest advances in persistent infections and their emerging roles in conditions such as Long COVID, chronic Lyme disease, multiple sclerosis, Alzheimer’s, and aging. Discussions will focus on the practical challenges that must be addressed to translate these discoveries into validated diagnostics, clinical trials, and effective therapies.
Add the virtual schedule to your calendar here: calendar.google.com/calendar…
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Persistent viral, bacterial, parasite & other #infections are increasingly implicated in chronic diseases and aging
We’ve united the top scientists, biotech innovators, and other stakeholders working to study & treat these infections into a 3-day Summit.
Come watch the talks virtually at the link below! 👇
We’re pleased to announce the inaugural PolyBio Convergence Summit will take place this November 18 to 20.
Presentations will explore the latest advances in persistent infections and their emerging roles in conditions such as Long COVID, chronic Lyme disease, multiple sclerosis, Alzheimer’s, and aging. Discussions will focus on the practical challenges that must be addressed to translate these discoveries into validated diagnostics, clinical trials, and effective therapies.
Add the virtual schedule to your calendar here: calendar.google.com/calendar…
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Body-clock disruptions contribute to one in four cases of depression, suggests large study nature.com/articles/d41586-0… One in four people with depression could have ‘circadian depression’, disruptions to the body’s internal clock contribute to a person’s mental illness #circadian
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FND? I wonder if Lyme, B12 deficiency & other possible deficiencies have been ruled out?
nwemail.co.uk/news/26686982.…
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😞 These are the faces of 6 young people infected with tick-borne diseases that made them suicidal. RIP.
Can’t overstate how important it is to know this: Microbes cause a huge variety of psych disorders (from anxiety/depression) to BPD, psychosis, OCD, schizophrenia etc. Lyme, Bartonella, Babesia are common drivers but not the only ones. Insist on a full ID work-up in the face of psych issues. Could save a life.
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🚨 Postmortem samples from 6 chronically ill young people who ended their lives (or were chronically suicidal) were tested for Babesia, Bartonella, and Lyme. Results ⬇️ 🧵
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75.8% OF 392 PATIENTS WITH CHRONIC FATIGUE SYNDROME (ME/CFS) TESTED POSITIVE FOR BABESIA,
a parasite that infects red blood cells.
The test used was:
BLOOD SMEAR FOR HEMOPATHOGENS,
performed by Dr. Tarello
Link to the full study:
researchgate.net/publication…
According to the CDC, the Infectious Diseases Society of America (IDSA), and other leading institutions,
the blood smear is the test of choice (gold standard)
for confirming active babesiosis,
without the need for additional tests to start specific treatment.
If an adult, child, or teenager has been suffering for years from severe fatigue, brain fog, chronic pain, night sweats, morning stiffness, or symptoms that no one can explain… this finding deserves serious attention.
75.3% also tested positive for Bartonella;
33.4% for Borrelia (Lyme); and
27.8% for Mycoplasma.
Share if you know someone struggling with ME/CFS, Post-Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia, Multiple Sclerosis (MS), or another condition considered autoimmune.
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You all are SO amazing!!!! What an incredible community! Day 1 of voting and we're off to such a great start!!! It's a bit of a process to register to vote as it requires an authentication app, but it means SO much!!! Please vote, comment, and subscribe! invisibleillness.crowdicity.…
Please please sign and share. More signatures needed on this really important petition which ends in November.
@Renmakesmusic @mermhart @martineofficial
**Please sign and share this petition for improved testing for Lyme Disease in the UK**
We NEED this. Lyme Disease is being missed and people are left to with multiple symptoms and no anwsers or "it's all in your head". The suffering is immense.
petition.parliament.uk/petit…