Corpal is a not for profit support group and charity run by parents, families and carers of children and adults who have DCC or Aicardi syndrome.
United Kingdom
Joined December 2017
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Hi, I'm Pete, the Fundraising Trustee at Corpal. I live in Bedfordshire with my wife and son. In 2020, during a prenatal scan, we discovered that Daniel had complete ACC. Corpal provided invaluable help and advice during this time.
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Corpal’s goal is to ensure expectant and new parents have access to the latest information and support about disorders of the corpus callosum. As a trustee I want to ensure that we have the funding to support this mission.
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Whether it's a big event or a small challenge, we'll assist you in raising money for our cause.
I'm always open to sharing my experiences with others so please don’t hesitate to get in touch [email protected]
#meettheteam #volunteer #trustee #corpal #acc #dcc #uk
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Hello,
I am Rachel I am 27 and have CACC. I live in Elgin in Scotland. I am the Family Contact for Scotland, Adult Contact for the UK and Social Media Trustee and have been on the team just over 5 years.
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If you're an adult around the UK or family in Scotland you are welcome to get in contact with me [email protected]
#meettheteam #volunteer #trustee #corpal #acc #dcc #uk
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Did You Know:
We are on Instagram (new account) corpal.charity
You can follow our page Corpus Callosum UK, Events and Awareness and join our group on Facebook (please answer the three questions provided to join the group)
#corpal #acc #dcc #uk #awareness #socialmedia
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Hello, my name is Aspa and I am Corpal’s chairperson. I am a doctor in radiation & clinical oncology and a mum of three, soon to-be four. My middle child has complete ACC. We found out when I was 32 weeks pregnant.
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There was no-one to help or guide us towards understanding the diagnosis better. Through this tough time but most importantly seeing this little boy achieve on a daily basis, this experience has somehow transformed that initial fear into a mission for me.
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I am here to help as many families as I can through my role and experience. We live in Surrey and I am happy to connect with as many of you as possible [email protected]
#meettheteam #volunteer #trustee #corpal #acc #dcc #uk
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Hi everyone,
My name is Amy Alderson and I am a volunteer for Corpal.
My son, Sebastian, was diagnosed with complete agenesis of the corpus callosum at 6 weeks old. Since his diagnosis I have made a commitment to raising awareness of DCC and how individuals can best be
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supported to reach their full potential. Through corpal, I want to be able to help and support others that are affected by this rare condition.
I live on the South coast in Bournemouth, Dorset.
If there is anybody local that would like to connect and potentially set up a local
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gathering, please get in touch!
Please don’t hesitate to email me if you any questions [email protected]
#meettheteam #volunteer #corpal #acc #dcc #uk
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Hello,
My name is Maryleigh Belcher
I recently became Corpals Marketing Trustee alongside Sacha. I currently reside in Wakefield, West Yorkshire.
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My daughter Evelyn (1YO) was diagnosed with Complete ACC on our 32weeks scan which was then confirmed with an ultrasound and MRI after birth. It was a tough end to pregnancy and I felt I recieved no support from the hospital but thats where Corpal stepped in and we wouldn't be in
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the position we are today without Corpal. This is my main reason for joining the team, to help other families as I was helped.
My inbox is always open [email protected]
#meettheteam #volunteer #trustee #corpal #acc #dcc #uk
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Plus, did you know you can help Mother Nature breathe easier by going digital? And that's not all – while you're at it, you can also make a difference by donating to Corpal.
dontsendmeacard.com/ecards/c…
Drum roll….. the winner of our Christmas e-card competition is Yvonne Williams! Congratulations Yvonne, we loved your design.
Why shell out precious pennies on stamps when you can send a thoughtful message to your loved ones with e-cards?
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