TREND Community is a digital health company using artificial intelligence to capture current perspectives of rare communities from their social data streams.
Philadelphia, Boston
Joined August 2014
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Our CEO, Maria Picone, will be attending #ACR2026!
We're excited to connect with researchers, patient advocates, and industry partners advancing rheumatology care through patient insights.
Want to meet? DM us or email [email protected].
Today, TREND Community CEO Maria Picone is attending the FDA’s Rare Disease Framework Initiative Public Meeting! We look forward to discussions on advancing rare disease drug development and ensuring the patient voice remains part of the conversation.
#RareDisease #PatientVoice
TREND Community is excited to be presenting at #CHEST2026!
📌 Poster #3137: Understanding the Lexicon and Experience of “Brain Fog” in Online Narcolepsy and Idiopathic Hypersomnia Communities
📅 Oct. 20 | 1:45–2:30 PM MST
Today’s the day! Join us for Understanding Hyperphagia: Going Beneath the Surface and hear directly from individuals living with PWS about the realities of hyperphagia—both visible and unseen.
⏰ 3:00–4:00 PM ET There’s still time to register!
RSVP: eventcreate.com/e/understand…
Meet the voices behind Understanding Hyperphagia: Going Beneath the Surface. Finn, Vanessa & Chaz share their experiences living with PWS and hyperphagia, moderated by Dr. Al Freedman.
🗓️ Oct. 15, 2026
RSVP: eventcreate.com/e/understand…
Join us for Understanding Hyperphagia: Going Beneath the Surface to hear directly from individuals living with PWS and learn about their lived experiences.
🗓️ Date: October 15, 2026
⏰ Time: 3:00–4:00 PM ET
RSVP: eventcreate.com/e/understand…
There is more to hyperphagia than what we see on the surface. Join us for Understanding Hyperphagia: Going Beneath the Surface and hear directly from individuals living with PWS.
🗓️ Date: Thursday October 15, 2026
⏰ Time: 3:00–4:00 PM ET
RSVP: eventcreate.com/e/understand…
Today is #WorldNarcolepsyDay 💚
TREND Community is proud to work alongside people living with narcolepsy to better understand their experiences and help bring patient voices into research.
Learn more and explore resources from @Project_Sleep: project-sleep.com
Today is #WorldNarcolepsyDay 💚
TREND Community is proud to work alongside people living with narcolepsy to better understand their experiences and help bring patient voices into research.
Learn more and explore resources from @Project_Sleep: project-sleep.com
TREND is heading to the @GlobalGenes Rare Drug Development Symposium this week! 🧬 Our CEO & Co-Founder, Maria Picone, and COO, Lauren Dougherty, look forward to connecting with the rare disease community!
TREND Community CEO Maria Picone and COO Lauren Dougherty are heading to Savannah for the @PWSAUSA Residential Providers Conference! Will you be there? Let’s connect and talk about how TREND is working with the PWS community.
We’re proud to share a new one-pager with @pwn4pwn What’s TRENDing: Narcolepsy and Pregnancy!
Using registry data, we highlight real pregnancy experiences to better understand challenges, decisions, and outcomes. Visit our website: trend.community to read about it!
Great few weeks for the TREND Community team at #WODC2026 and #SLEEP2026! Thanks to everyone who connected with us, shared insights, and helped make these events so meaningful. We loved seeing familiar faces and meeting new ones along the way!
Today we presented our poster, "Using Social Listening to Understand the Sleep Lexicon in Online PWS Communities," highlighting the value of patient and caregiver voices in advancing sleep research.
Thank you to Dr. Aaron Chidekel, @Nemours, and @HarmonyBio for supporting this!
Cataplexy in PWS is real—and understanding it starts with listening to those who live it every day.
Shedding Light on PWS and Sleep: Understanding Cataplexy
🗓️ June 17, 2026
⏰2:00–3:30pm ET/1:00-2:30pm CT/12n-1:30pm MT/11:00am-12:30 PT
RSVP: eventcreate.com/e/cataplexy-…
We're excited to present 3 posters at #SLEEP2026 in Baltimore, highlighting patient voice and real-world insights on:
• Brain fog in central disorders of hypersomnolence
• Sleep lexicon in PWS communities
• Treatment experiences in idiopathic hypersomnia
Join us for Shedding Light on PWS and Sleep: Understanding Cataplexy as caregivers, individuals with lived experience, and clinicians come together to share insights and experiences. 🗓️ June 17, 2026
⏰ 2:00–3:30pm ET eventcreate.com/e/cataplexy-…
Cataplexy in #PWS can be hard to recognize and understand.
Join us for Shedding Light on PWS and Sleep: Understanding Cataplexy—a discussion with caregivers, individuals with lived experience, and clinicians.
🗓️ June 17, 2026
⏰ 2–3 PM ET
RSVP: eventcreate.com/e/cataplexy-…
TREND Community is heading to:
📍 #WODC2026 | Boston | June 9–11
📍 #SLEEP2026 | Baltimore | June 14–17
We're looking forward to connecting with the rare disease and sleep communities and are proud to be presenting 3 posters at SLEEP 2026.
Will you be there? Let's connect!
