All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler
Joined October 2023
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1/ We will add here links to resources for workers and stakeholders on #WorkingWithLongCovid some we were involved in.
These are mainly U.K. but some have transferability to other countries. Please share and tag us to other resources 🐝 #LongCovid
WorkingAndNotWorkingWithLongCovid retweeted
Covid is a serious illness, with long-term consequences.
Why aren't UK CMOs urging vaccine eligibility for healthcare workers and vulnerable groups?
Don't healthcare workers have a professional responsibility to protect patients from infectious diseases using PPE & ventilation?
WorkingAndNotWorkingWithLongCovid retweeted
If you want to know what the problems are with the current infection prevention and control guidance read this briefing: shh-uk.org/uk-infection-prev…
WorkingAndNotWorkingWithLongCovid retweeted
@CMO_England as you state : "Healthcare workers have a professional responsibility to protect patients from infectious diseases."
Why then is our #NHS IPC continuing to fail by not ensuring HCW wear masks to protect us ?
#FFP3 #CleanAir
@SupportingHH_UK
@LC_Physio
Flu can be a serious illness, especially for vulnerable people.
UK CMOs urge eligible groups to get vaccinated.
Healthcare workers have a professional responsibility to protect patients from infectious diseases. We urge them to take up flu vaccination.
nhs.uk/nhs-services/vaccinat…
WorkingAndNotWorkingWithLongCovid retweeted
And have you yet considered the stress of workers with #LongCovid becoming reinfected in the workplace?
And the stress related to the lack of #CleanAir and harmful IPC policies ?
WorkingAndNotWorkingWithLongCovid retweeted
Advocacy is exhausting when you are this unwell. Huge thanks to @BethDobbin and everyone else in the community who uses their limited energy to try and make a difference.
Things need to change.
We need rapid and significant investment in proper research and treatment.
Hi everyone, we’ve been working on something 🙏🏼 I’ve written a second letter to Andy Burnham, alongside 360 sports people, to urge him to meet with me and fund research into my much neglected health issue which impacts millions of others.
I can’t believe 360 people signed in just 1 week, so many amazing names and messages still coming in of people wanting to add theirs (so feel free to message to add yours, we’re keeping on the pressure!!!)
The list includes 114 Olympians, with 77 medals between them (and that’s not even including Worlds and Europeans 🤯). Also some huge names from football and many other sports!!
Thank you SO much to everyone that signed, I can’t tell you how much it means to me when I’m truly at rock bottom ❤️❤️❤️
I know everyone wants their issues taken seriously, but this has been neglected like nothing else. WE HAVE 0 APPROVED TREATMENTS!!! Please listen 🙏🏼 @andyburnham @number10gov @UKLabour @DHSCgovuk
WorkingAndNotWorkingWithLongCovid retweeted
LCSA is challenging recent political claims about health-related benefits, saying rising numbers don't prove welfare abuse
Such claims risk undermining trust in ppl with health conditions & the health professionals who support them
longcovidsupport.co.nz/news/……
WorkingAndNotWorkingWithLongCovid retweeted
A special MRI scan - hidden problems in how in lungs move oxygen into the blood. #longcovid
Their CT scans were normal or nearly normal.
researchgate.net/publication…
WorkingAndNotWorkingWithLongCovid retweeted
🚨EBOLA OUTBREAK
▪️Ebola cases in the DRC have now surpassed 10K, with nearly 5K deaths
▪️Cases also reported in Kenya, Nigeria, Uganda & France
▪️Officials warn: “We want all countries to know they are not safe if they don’t take appropriate measures”
people.com/officials-warn-eb…
WorkingAndNotWorkingWithLongCovid retweeted
New article
360 sportspeople, including 114 Olympians, have signed an open letter supporting Beth Dobbin’s call for Prime Minister Andy Burnham to “level the playing field” and increase research funding for #MECFS, an illness that has been “neglected for decades”. 2 Nov 2026
WorkingAndNotWorkingWithLongCovid retweeted
‘Encouraging’ rise in homecare services, as number of care homes falls, says regulator
#CQC #StateOfCare
disabilitynewsservice.com/en…
🎯
Sound familiar to people in UK with #LongCovid ?
Before cutting disability benefits, politicians need to understand why more NZers are unable to work
- incl the poss contribution of Long Covid
- Media release from Long Covid Support Aotearoa
@lcsaotearoa
WorkingAndNotWorkingWithLongCovid retweeted
I really hope the UK’s Chief Nursing Officers take the time to read this comprehensive challenge of the current UK IPC guidance and take steps to address the critical concerns raised by @SupportingHH_UK.
The current guidance has many flaws and urgently needs amending.
🚨 Are UK infection prevention guidelines protecting healthcare workers and patients?
Our new briefing to the UK’s Chief Nursing Officers identifies 10 critical concerns and calls for an independent review.
📖 shh-uk.org/uk-infection-prev…
#SafeAir4All #PatientSafety
ALT SHH-UK graphic showing healthcare workers in a hospital corridor alongside the cover of its new briefing to the UK’s Chief Nursing Officers. The graphic asks whether current UK infection prevention guidelines adequately protect healthcare workers and patients. Includes SHH-UK logo and #SafeAir4All.
WorkingAndNotWorkingWithLongCovid retweeted
A member of the steering group reviewing the future of personal independence payment has delivered a powerful rebuttal to research – co-written by a fellow member – which called for spending on disability benefits for children to be slashed.
#PIP #DLA
disabilitynewsservice.com/pi…
WorkingAndNotWorkingWithLongCovid retweeted
#LongCovidCostsUs and can lead to significant financial hardship and a fight for #Benefits
#LongCovidAwarenessDay
In a study of people with #LongCovid in Scotland, all
participants with LC "experienced a loss of household income since contracting the condition". Many were forced to use savings and were pushed into debt, and some lost their jobs.
tfn.scot/news/long-covid-lon…
WorkingAndNotWorkingWithLongCovid retweeted
It needs to be good and sustainable work. Not everyone can work, or do any job, and the wrong approach can damage a disabled person's health. There shouldn't be such a lack of knowledge and insight, and an employment minister should understand the barriers disabled people face.
WorkingAndNotWorkingWithLongCovid retweeted
And what seems to be missed is the amount of paid good work someone can do, and how frequently eg that’s why there are the permitted work rules for #ESA which has flexibility for #DisabledPeople
Some people may work limited hours and still need #Benefits
WorkingAndNotWorkingWithLongCovid retweeted
Disabled people will have to wait until next month, and possibly December, to discover the government’s plans for cuts and reforms to their support through the social security system, after this week’s budget offered few new hints.
#Budget26
disabilitynewsservice.com/bu…
WorkingAndNotWorkingWithLongCovid retweeted
I'm helping someone in Malaysia 🇲🇾 spread the word about the first ever WhatsApp group they created for people with Long COVID and ME:
chat.whatsapp.com/BY4lLd7FQ2…
Can we find anyone out there in the LC/ME Twitter-verse from Malaysia? With a population of 34 million, there's got to be some!
🤖 Made with AI
WorkingAndNotWorkingWithLongCovid retweeted
I represented Team GB at the Olympics. Now I’m in bed 22 hours a day thetimes.com/uk/healthcare/a…
WorkingAndNotWorkingWithLongCovid retweeted
The employment minister – backed by the Department for Work and Pensions – appears to have trashed the government’s long-held position that only “good work” is good for your health, while also calling for “everyone” to have paid jobs.
#DWP
disabilitynewsservice.com/al…
