ALS Network

We invite you to our next ASK ME webinar, "Family Caregivers - Angels in Agony," on Wednesday, November 4, at 5:00 PM PT / 3:00 PM HST. Hosted by Steve Goclowski, LCSW, Vice President, Care Services, ALS Network, this informative presentation features Linda Levine, M.Ed, Speaker, Educator, Life Coach, and Caregiver to her husband, David Buseck and David Buseck, Person Living With ALS, ALS Network Board Member & Chair, Community Research Committee. Drawing on her professional background and personal journey, Linda will share insights on caregiving with sensitivity, honesty, and refreshing humor with the support of her husband, David. RSVP today to reserve your spot and take part in a live Q&A session following the presentation. Register here: ow.ly/eL2Y5101yan

Nicole Downey is running the 2026 TCS New York City Marathon with ALS ONE & ALS Network in honor of her stepmom, Lori, a passionate athlete and marathon runner who lost her battle with ALS on November 1, 2022. Inspired by Lori’s strength and her unforgettable words, “You better win!” Nicole began what she calls Lori’s Legacy, running to honor her memory and help other families affected by ALS. After completing her first NYC Marathon in 2024, Nicole is returning this year to continue raising awareness, supporting ALS research, and keeping Lori’s spirit alive with every mile. Join Nicole in carrying Lori’s legacy forward and helping to bring us closer to a world without ALS. Support Nicole’s run: ow.ly/OfTh5100Igc

The 27th annual Central Valley Ride, Walk & Roll to Cure ALS is TOMORROW, Saturday, October 31, 2026, in Woodward Park in Fresno, CA! Anyone who still wants to participate can register in person day-of for an additional fee. Join us in exceeding our $120,000 goal to help drive the search for ALS treatments and cures through ALS Network's mission priorities related to care, research, and advocacy! Grab your family, friends, and co-workers and join us for a day full of fun and purpose! Let’s #cureALStogether! For more information or to make a gift today, visit alswalkcentralvalley.org.

Ryan Donnelly is running the 2026 TCS New York City Marathon in memory of Hal Finney, an early Bitcoin pioneer and advocate for open-source technology who lost his life to ALS in 2014. As a member of the Running Bitcoin Committee, Ryan has been involved in this worldwide challenge for several years, helping to honor Hal’s legacy and raise funds for ALS. This year, he’s taking on the NYC Marathon to continue that mission and support ALS research through ALS ONE & ALS Network. Support Ryan’s run and help advance the fight against ALS. Support Ryan’s run: ow.ly/b5Go5100IeX

The final day to vote is just TWO DAYS AWAY! “Radical Possibility – Russell Andrews’ ALS Journey,” an ALS Network project developed by Persuasion Pictures, is a 2026 @anthemawards Finalist, and we need your support to help bring home an Anthem Community Voice Award. There’s still time to make your vote count! You can vote once in each of these two categories: Health – Campaign (Nonprofit) and Content & Media (Nonprofit). Help us raise awareness, foster greater understanding of ALS, and share Russell’s powerful journey. Cast your votes before voting closes! Thank you for supporting the ALS community. Vote for us at wbby.co/hecanp

The Los Angeles Walk & Roll to Cure ALS is less than two weeks away! Big thanks to our sponsors for supporting #ourALScommunity: Accessibility & Inclusivity Sponsor - @ShionogiUS Inc. @KeckMedicineUSC @MaximHealthcare Services Permobil Foundation @SuperCareHealth Apguard Medical, Inc. Superior Mobility @CedarsSinai @PennymacNews We’ve raised nearly $200,000 to date and the more people that join us and fundraise, the better! Sign up and donate today at alswalklosangeles.org.

@youralsnetwork is a long-time supporter and community partner with @HopeLovesCo (HLC), an organization that hosts camps and other resources for children, teens, and young adults who have experienced a loved one with ALS. Their camp program, Camp HLC, focuses on engaging younger communities in fun activities while also incorporating group or peer-to-peer counseling and other tools used to cope with a loved one's disease. Camp HLC is free to the families who attend! For more information and to register visit: hopelovescompany.org/camphlc

Joanna Woodson is running the 2026 TCS New York City Marathon with Team ALS ONE & ALS Network in honor of her beloved mother, Lynn, who passed away from ALS on March 5, 2026, less than a year after her diagnosis. Inspired by her mother’s strength and the time they shared listening to the memoir Marathon Woman, Joanna is dedicating every mile to her mom’s memory. Joanna hopes to raise awareness and funds to support the thousands of individuals and families affected by ALS. Join her in honoring Lynn’s legacy and helping us work toward a world free of ALS. Support Joanna’s run: ow.ly/isvG5100Icr

Looking for connection and support on your ALS journey? Join us this week for opportunities to meet others who understand, exchange insights, and learn together. Our support groups create a welcoming space for people affected by ALS and their loved ones to find community and explore practical approaches to maintaining independence and quality of life. Take a look at this week’s group offerings and meeting information. For questions or registration, please contact the facilitator listed for the group you’re interested in attending. Stay informed about upcoming guest speakers, new groups focused on specific topics, and any changes to meeting dates or times at supportgroups.alsnetwork.org.

It's official! ALS Network is proud to be a member of the new Families and Caregivers Economic Security Coalition (FACES). Family caregivers make it possible for people living with ALS to remain at home, but too many give up their own financial security to do so. Together with partners across the caregiving community, we'll be pushing for federal policies that ease that burden for ALS families and millions of caregivers nationwide. Thank you to every caregiver in our community, and to our partners for joining us in this work. Learn more: facesofcaregiving.org. #ALS #Caregiver #ALSadvocacy

We are SIX WEEKS away from the 26th annual East Bay Walk & Roll to Cure ALS on Saturday, December 5, 2026, at Heather Farm Park in Walnut Creek, CA! Bring your friends and family as we gather to support #ourALScommunity to raise more than $140,000 for care services, important public policy initiatives, and cutting-edge research. This event is open to everyone! Sign up today free of charge at alswalkeastbay.org.

The ALS Network is proud to partner with CombatRadio for a holiday tradition, bringing together an all-star cast at the Christmas Carol for a Cure. Join us November 20, 2026, at the Saban Theatre in Beverly Hills for a live theatrical experience. Be part of something special this holiday season at acombatradiochristmas.com. Get your tickets using promo code: networkxmas. Proceeds of ticket sales benefit the ALS Network’s mission priorities.

Discover the Galien Patient Summit 2026 Panel 3: Pricing, Access & Equity through an ALS Lens: Building Sustainable Innovation that Actually Benefits Patients. Featuring our own Sheri Strahl, President & CEO, ALS Network, along with Thomas Lines, Founder, CEO & Chairman of Quercis Pharma; Indu Navar, CEO & Founder of Everything ALS; and Yentli Soto Albrecht, Co-Founder of CureC9, this important discussion will explore how we can advance innovation while ensuring affordability, equitable access, and meaningful outcomes for the ALS community. Learn more: ow.ly/iHJc5100JpM #GalienPatientSummit #ALSAwareness #PatientAccess #HealthEquity

Thank you to the @acurastem research laboratory in Pasadena, California, for opening their doors to the ALS Network and special guests, including @RoydTolkien, great-grandson of legendary author J.R.R. Tolkien. Royd’s brother Mike passed away in 2015 following a three-year journey with ALS. AcuraStem is pioneering innovative ALS research, using cutting-edge stem cell technology to better understand the disease and identify promising new treatments. Their work represents the power of scientific discovery and a shared commitment to bringing hope to people and families impacted by ALS. #alsresearch #als #acurastem

As National Estate Planning Awareness Week comes to a close, it’s also a great time to look ahead and plan your year-end charitable giving. There are many tax-wise ways to support the ALS community with a gift before the new year, including gifts of cash, Qualified Charitable Distributions (QCDs) from an IRA, grants from a donor-advised fund (DAF), gifts of appreciated stock, and more. The ALS Network is a qualified tax-exempt charitable organization. Our Tax ID is 95-4163338. Consider speaking with your financial advisor or fund custodian by December 1, to explore which giving option may be most beneficial for your individual circumstances—and how your generosity can make a meaningful difference in support of the ALS community. Questions? We’re here to help. Contact us at [email protected] or (818) 616-7940. #EstatePlanningAwarenessWeek #YearEndGiving #TaxSmartGiving #PlannedGiving #ALSNetwork #Donate

Tom Horton and his circle of family and friends finished their paddle through the Greek Islands, carrying with them the memory of Tom’s mother and a commitment to people and families impacted by ALS. Every mile is helped bring greater awareness to ALS while connecting communities in Greece and the United States through a shared purpose. Thank you to these adventurers, the Hellenic ALS Association, and to every person and family whose strength inspired this journey. You can continue to support their mission: greekpaddletocureals.org #ALSNetwork #ALS #paddletocureals

Join us the morning of the Central Valley Ride at our Resource Fair! Starting at 10 AM, meet with @youralsnetwork staff and care managers; find ALS Network merchandise, and learn more about the services offered by our incredible partners. @ShionogiUS @MaximHealthcare Community Health System Pulmonic Health @mobilityworks Event-day registration will be available on-site for a fee of $20 and $175 for riders. For more information or to make a gift today, visit alswalkcentralvalley.org.

We’re proud to share that “Radical Possibility – Russell Andrews’ ALS Journey,” an ALS Network project developed by Persuasion Pictures, has been named a 2026 @anthemawards Finalist! Now, we’re asking for your support! Please cast your public vote to help our project earn an Anthem Community Voice Award and bring greater awareness to Russell’s ALS journey and the realities of living with ALS. You can vote once in each of these two categories: Health – Campaign (Nonprofit) and Content & Media (Nonprofit). Every vote helps raise awareness, foster understanding, and inspire greater possibilities for the ALS community. Thank you for your support! Vote for us today at wbby.co/hecanp & wbby.co/hecmnp. Deadline is October 29!

In recognition of National Estate Planning Awareness Week, take some time to plan for what matters most. We invite you to watch our ASK ME webinar, “Where There’s a Will, There’s a Way – Demystifying Your Estate Plan,” featuring estate planning and trust administration attorney Jacey Hayes and Mike Welling, Senior Director of Planned Giving at the ALS Network. This informative conversation offers practical insights into estate planning, helping you better understand the steps you can take to protect the people and causes you care about and create a plan that reflects your wishes. Watch here: ow.ly/uj5250ZZ875 #EstatePlanningAwarenessWeek #EstatePlanning #PlannedGiving #LegacyGiving #ALSNetwork

Thank you to all who attended the 24th annual Inland Empire Walk & Roll to Cure ALS on Sunday, October 18 at Miller Park Amphitheater, in Fontana! Over 500 people attended this year's event and together raised over $50,000 - surpassing our initial $75,000 fundraising goal. All funds raised will advance the mission of @youralsnetwork to provide care services and support for people living with ALS and their loved ones, as well as advance #ALS research and public policy initiatives on behalf of #ourALScommunity. You can still make a gift in support at alswalkinlandempire.org to help us make an even greater impact. Let’s #cureALStogether!