Founder of the Butterfly Scheme through caring for my mother, who had dementia. The scheme helps healthcare staff to care well for people needing memory support
UK
Joined February 2013
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Great response to refresher training session for Butterfly Scheme Leads! A privilege to work with these amazing dementia care leaders.
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@alzheimerssoc @Dementia_UK How can anguished carers still be emailing me in late 2024 to say staff in their local hospitals haven’t the first idea about #dementia care? With so many hospitals delivering impeccable dementia care, how can other hospitals justify doing so little?
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A privilege to discuss #dementia care enhancement with @DrTWilliamson this morning; it always is. Great to see leadership that directly leads to benefits for people living with dementia, their carers and their local hospital teams.
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I rarely tweet these days, but what an uplifting session chatting with the fabulous @DeightonJo47103 just now! Vision, passion, graft - a real privilege to work with you, Jo!
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@zulfiqar_nabila Just read an article you’d written which included examples of inappropriate dementia care in hospital. Please be assured that lots of hospitals are now getting their care spot on. By all means email or DM me if you’d like more info.
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Huge thanks to the fabulous staff of @thelondonclinic who attended @ButterflyScheme training today; your engagement and enthusiasm were superb. We really appreciated the heartwarming feedback and the warm welcome. Enjoy using the Scheme! #dementia #memorysupport
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Well done to Nina Warhurst and #BBCBreakfast for a very sensible, sensitive, well-expressed and helpful piece this morning about LPAs and how tough it is for carers trying to support loved ones without an LPA.
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@SASHChiefNurse With warm thanks from the Butterfly Scheme for your commitment to #dementia care - and supporting the outstanding Lead and team. May you thoroughly enjoy the next phase of your life!
Post-pandemic care restoration is one thing, but new hospital #Dementia Leads coming into role and finding nothing at all in place - and no ambition from bosses to actually put anything in place - is quite another. It’s happening all the time now - like slipping back 10 yrs.
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It’s always uplifting when someone who’s had @ButterflyScheme at their previous organisation recommends it at their new one - but when the newly-appointed Lead there has also passionately recommended it for the same reason, that’s special! Loved finding this out today! #dementia
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The person-centred care document people with #dementia and their #carers have in #hospital belongs to them; it is not part of the hospital’s own documentation for electronic access only. They and the entire staff team need constant access to read/amend it. #wholeteamdementiacare
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What an excellent morning! Liaised about the smoothest #dementia care leadership takeover ever, in one of the member Trusts - then a superb session with a new Lead in another Trust who I just know is set to shine. That you to both new Butterfly Scheme Leads. Brilliant!
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Sincere thanks to Janice for having the generosity to share her experiences; in doing so, she helps others gain valuable insight into life with #dementia. Janice, your hard work is appreciated - and hearing about Eric’s care is very special, too. Love to you both xx
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Wouldn’t it be great if everyone living with #dementia had access to this wonderful support?
Happy new year! 🎉 Back in 1992 there were only two dementia specialist Admiral Nurses.
Today, we're delighted to have 409 nurses providing life-changing support for families affected by #dementia.
We’re excited to see how this number grows over the next year 💙
@BlackpoolHosp Always very special when someone feels moved to praise #dementia care. 👏🏻
Praise for Blackpool Victoria Hospital Urology Department @BlackpoolHosp for caring and supportive attitude towards a gentleman with dementia and his carer. Thank you
I’m aghast at a BBC news report looking at a hospital A & E Department, talking repeatedly about “dementia patients”. They’re patients living with #dementia, in hospital to be treated for something else. Would they call all diabetics “diabetes patients”?
At this morning’s virtual gathering of Butterfly Scheme Leads, we had people leading at hospitals in Scotland, England, Wales and Ireland. Such a privilege to be able to gather them in one “room” and have their combined participation 😊
As always when I meet up with a group of Butterfly Scheme Leads, I feel massively fortunate to be collaborating with such fabulous advocates for people living with #dementia. Thank you to all who took part in this morning’s session. 👏🏻👏🏻👏🏻