Chris (@GuyWithEpilepsy) profile picture

Hi I'm a friendly guy with epilepsy wanting to help others by raising awareness,sharing my experiences and learning from others with epilepsy.

United Kingdom
Joined March 2020
Photo by Chris (@GuyWithEpilepsy)Photo by Chris (@GuyWithEpilepsy)Photo by Chris (@GuyWithEpilepsy)Photo by Chris (@GuyWithEpilepsy)Photo by Chris (@GuyWithEpilepsy)Photo by Chris (@GuyWithEpilepsy)Photo by Chris (@GuyWithEpilepsy)Photo by Chris (@GuyWithEpilepsy)Photo by Chris (@GuyWithEpilepsy)Photo by Chris (@GuyWithEpilepsy)
Good morning all, i forgot to pick up cereal for breakfast, so we had to have bacon sandwiches instead, funny enough there weren't any complaints from Ryan, have a great day everyone.
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People with #epilepsy deserve expert care; especially if 2+ anti-seizure meds have failed. Reaching out to an accredited Epilepsy Center can provide access to specialists and advanced treatment options. -- Which center is nearest to you? #EpilepsyAwareness naec-epilepsy.org/find-a-cen…
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Open this link to join my WhatsApp Group: chat.whatsapp.com/Jmb3t00M3Z…
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Good evening hope everyone is ok and for those who like it I hope you’re enjoying the World Cup.
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I went to pick Ryan up from his daycentre and was met by a member of staff, ive got to tell you what Ryan said today she said laughing, apparently there was a member of staff singing away to himself, Ryan walked up to him and says "too noisy stop singing", the member of staff asks are you saying my singing is bad? Ryan replies yes. Sometimes he can be a little too honest lol
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Someone is grateful right now because you exist. 😊💖
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2nd July 2022. The disabled community of York came together to protest the Blue Badge ban & the proposal to close Castle car park. A year later we have a new Labour Administration who are getting on with reversing the ban & drawing up a new parking strategy. Collective power ✊
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Ryan's sat happily on his bed listening to Halloween songs 👻
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Replying to @BrainAblaze
I’ve never used the term but I don’t care if people do. Not offensive. I do care about being accused of lying or faking of having seizures though. Just because you can’t see doesn’t mean I’m not having one.
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While it seems that "fit" is used more to represent a seizure in the UK than the USA, it might offend people with #epilepsy who live on either sides of the ocean. -- Do you use the word "fit" to represent seizures? #EpilepsyAwareness
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DYKT about 30% of people with #epilepsy cannot manage their seizures through meds alone? Neuromodulation, the ketogenic diet, and neurosurgery can sometimes help, but what we really need is a cure. #EpilepsyAwareness
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Use one word.
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Replying to @autcareandshare
He really is good and I'm not just saying that...is there any way he could take some kind of art lessons?
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Ryan's been learning all about the green code at his daycentre and did this picture.
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Want to make the world a better place? Let's start by looking past the statistics to see the struggle of real people. #EpilepsyAwareness
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I have amazing sons , my son brady, who turns 21 in a few days . is off to Spain this morning with his mates. He's just about to go into his 3rd year studying law and criminology, when hes not studying, he stacks shelves at the supermarket and sometimes works in local bars too, I think he deserves a break, time to relax before he returns to university in a few weeks.
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Replying to @BrainAblaze
I find people are more understanding if I tell them and explain it to raise awareness and help them understand what to do if I have a seizure. In the past not telling people I had epilepsy then having some seizures lead to discrimination and stigma.
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Epilepsy has many varied causes and anyone can develop it. Epilepsy affects both men and women of all races, ethnic backgrounds, and ages. -- Are people surprised to hear you have #epilepsy? #EpilepsyAwareness
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Disability benefits cuts affect us all. Anyone can become disabled at any point. The government’s concessions will leave those who become disabled in the future with even less support than today. A third of disabled people are already in poverty. We cannot allow this to grow.
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