Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly) header
Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly) profile picture

Bit of patient knowledge/experience 2 transplants 39yrs Dx Wilson's disease. Creaky joints. Complex illness Coproduction. QI #RareDisease #Candour. Like history

N Ireland
Joined June 2012
Photo by Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly)Photo by Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly)Photo by Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly)Photo by Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly)Photo by Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly)Photo by Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly)Photo by Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly)Photo by Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly)Photo by Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly)Photo by Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ (@Imonlyslightly)
In past 2 weeks I was dropped at the door of BCH Tower Block, Belfast. Made my way to the 11th Floor. A nurse walked me down to my family 5 days later after a second kidney transplant. Again indebted to a donor, their family & the magnificent BCH multi-disciplinary renal team.
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
This is a problem. Please read and please consider blood donation (quickly)
A quick O negative update!๐Ÿฉธ Thanks to everyone who came out to donate this week, because of you our stock now sit at 4 days left. But the demand is still high going into the weekend, which is why we need anyone who is O NEG to join us next week. Booking links our in our bio!
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
๐Ÿ“ž | The Health Minister has ordered a pause on the withdrawal of the Phone First triage service. Last month the @BelTel reported use of the service had reached record levels in September. Belfast Trust has already cut the service and redeployed staff. belfasttelegraph.co.uk/news/โ€ฆ
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
Disgusting people at Mar-a-Lago at the CPAC Circle Retreat and Gala.
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
Yes. And lack of compassion compounds trauma and also lasts a life time.
"Acts of compassion during a period of trauma may last a lifetime in a personโ€™s memory." Brian Kulp describes the lasting effects of compassion and humour from healthcare professionals during a medical emergency bmj.com/content/395/bmj-2026โ€ฆ
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
I think you'll find that it's the rape that he is getting punished for...
This Post is from an account that no longer exists. Learn more
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
Waiting wearily for the usual suspects to deny that we need NHS managerial regulation. 'You can't regulate them. They're not a profession etc...' In the private sector, directors of companies can be banned cf Winterbourne Hospital scandal nitter.cf/SkyNews/status/2118711โ€ฆ
An independent investigation has found maternity files at Nottingham University Hospitals were intentionally deleted. Sky's Ashish Joshi reports on the data breach
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
๐Ÿ”ฅ Weโ€™ve always said the #Eljamel scandal goes far beyond one butcher surgeon. Damning evidence raises serious questions about potential criminality within @NHSTayside Past and present senior leadership must face intense scrutiny. No one should be beyond investigation. #PatientSafety
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
BREAKING NEWS! Serious Disorder breaks out on the London Underground Northern Line this afternoon๐Ÿ‘‡๐Ÿคทโ€โ™‚๏ธ๐Ÿ˜‚
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
Why should the organisation responsible for a patient's care also control the evidence used to investigate that care? When the institution under scrutiny holds the records, controls the audit trail and verifies its own account, who independently verifies the truth? #PatientSafety #addresstheharm
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I can be quite affable when a big fat lie about my diagnosis and inappropriate attacks on my character, are not being accepted. This is where being given the silent treatment does not work. Iโ€™m not shutting up until there is #,Candour about what happened. Vive la rรฉvolution
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MLA inaction enables the practice of overlooking concerns raised & is dismissive of the Independent Neurology Inquiry findings @RobbieButlerMLA This is how people are harmed & scandals evolve #HopeNotFear @mcguigan_philip @DannyDonnelly1 @NualaMcAllister @DianeDoddsMLA @ColinSDLP
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Have you found out if Dr Hagan still insists on accepting complaint findings given what he knows about them @RobbieButlerMLA Gives a very negative image of his Trust. And I have witnesses #HopeNotFear @mcguigan_philip @DannyDonnelly1 @NualaMcAllister @DianeDoddsMLA @ColinSDLP
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Iโ€™ll still see the dental hygienist I also have a broken back tooth. Not giving bother but dentist said it could lead to an infection in the nerve. Theyโ€™ll only know if another type of x-ray is carried out. All on hold. So, much for transplant patients looking after their teeth๐Ÿ˜ก
Replying to @HSJnews
Transplant patients R supposed to see a dental hygienist every 3 months. ยฃ200 p a. Dentist checkup this morning. Only private now. ยฃ80 - check-up & x-rays. Need 2 fillings. ยฃ370. My other bills have skyrocketed. Had to say no. Joined waiting list for private plan. Told itโ€™s long.
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
Replying to @nickbostock
The precautionary principle is dead, as per NHS England official document ๐Ÿ‘‡ โ€œit would be a waste of public health resources and capacity to attempt to [halt the spread of a new pandemic virus]โ€.
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
Absolutely agree, #whistleblowing protection is just smoke and mirrors. #FTSU just part of the facade.
The Protection for NHS whistleblowers is supposedly there but really it is a Pied Piper situation to make you think you were safe when really, once you blew the whistle you were identified as an 'Enemy' IMO @CompassnInCare @TheHonestDr @DrMohammadIAdi1 @DrTeckKhong @jem
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
The time is now. RFK Jr. must resign or be fired. End of discussion.
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
Covid damages the heart. Even mild infections can do so. ๏ฟผ Media and government seem unwilling to make it clear. The BHF acknowledges this itself. Iโ€™m afraid weโ€™re living in a time of collapsed public health and an unwillingness to treat the public like adults and tell them the truth about scary things. ๏ฟผ
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Still no response from MLAs #HopeNotFear
Your silence is putting people at risk. I donโ€™t know if itโ€™s due to fear. Only you can explain. However, you're not protecting patients & until you speak up it's not candour @RobbieButlerMLA #HopeNotFear @mcguigan_philip @DannyDonnelly1 @NualaMcAllister @DianeDoddsMLA @ColinSDLP
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Carol McCullough ๐Ÿฆ“ โšก๐Ÿฌ๐Ÿ—ฟ retweeted
NHS MADE HER SIGN A GAG ORDER. PARLIAMENT PROMISED TO STOP IT. BOTH LIED. Sue Allison was a breast radiographer at University Hospitals of Morecambe Bay NHS Trust (@UHMBT) for nearly two decades. In 2012, she reported a senior radiologist who was repeatedly failing to diagnose women with breast cancer. Two of those women died from cancers that should have been caught. What happened next is the NHS playbook, start to finish. She was ostracised. Bullied. Pushed out of her department. Blacklisted across the NHS so thoroughly that job applications in hospitals as far away as Kingston triggered questions about her whistleblowing. She described her reputation as "absolutely destroyed." After 34 years in the profession, she will never work in it again. In 2015, with no legal advice, she was pressured into signing not one but two NDAs. The trust used those agreements to try to stop her from ever bringing a claim against them. An employment tribunal later ruled both NDAs void. The judge found she had a clear case of whistleblower detriment. By 2019, her case had reached Parliament. Health Secretary Matt Hancock (@MattHancock) personally cited Sue Allison's NDAs in the House of Commons and declared he was "determined to end" the injustice of gagging NHS whistleblowers. The ban was never enforced. Six years later, it still hasn't been. She eventually settled her detriment claim in 2020 for financial compensation after admitting she would have had to sell her house to fund a full tribunal. The trust thanked her for raising concerns. The same trust that silenced her for eight years. She wasn't done. She became a governor of the same trust, trying to hold it to account from the inside. In May 2023, she resigned. The bullying culture, she said, had never changed. Governors asking legitimate questions about patient safety were being suppressed and eventually dismissed. This case runs from 2012 to 2023. Eleven years. Same trust. Same culture. Same result for the people who spoke up. The Morecambe Bay maternity scandal. The urology cover-up. The disputed emails. Peter Duffy. And Sue Allison, running through all of it, trying to hold the line, watching the institution close ranks every time. Sources: @ComputerWeekly, @BylineTimes, Lancaster Guardian, @IndexCensorship,
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