Haemochromatosis International - organisations supporting & representing people around the world with the genetic predisposition to store too much iron.
Joined January 2019
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Hello from AucklAt #Blood2026 in Auckland, Haemochromatosis International President Di Prince is connecting with blood health professionals at the Haemochromatosis Australia stand, raising awareness of haemochromatosis and the Australian Haemochromatosis Registry.
Good work advancing knowledge of #hemochromatosis genotypes & disease Mitch Lucas! @HaemAus @IrishHaemAssoc @IronOutCanada @ironoverloadUS
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Thanks for your ongoing research in #hemochromatosis @JaniceLAtkins @lcpilling @d_melzer @ExeterMed. Looking forward to reading the paper. @HaemAus @IrishHaemAssoc @IronOutCanada @ironoverloadUS
Post menopausal women with the #haemochromatosis C282Y homozygous genotype have increased risks of liver and osteoarthritis (compared to those without HFE mutations)
@JaniceLAtkins @ExeterMed @eshgsociety @IronMattersInt #eshg2023 #ironoverload
ALT Janice by her poster
Short video where Dr Paul Adams advisor to @IronOutCanada talks about #hemochromatosis #haemochromatosis
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Thank you @tdgarden home to @celtics & @NHLBruins for lighting up red during #WHW2023! @RedCross can use blood from people with #hemochromatosis who meet the eligibility requirements of other donors. Find out more @ hemochromatosis.org.
Shining red lights on #hemochromatosis in the USA this week. Tonight @TowerLightsCLE & June 6 @tdgarden home of the Boston @celtics. #WHW2023 #lightentheoverload #toomuchiron
Thanks @GalwayCityCo & Sligo for taking part in the international Light Up Red campaign in #WHW2023. Please keep the spotlights on the IHA’s call for a National Strategy on #haemochromatosis for Ireland which has the highest rate of haemochromatosis in the world.
Galway & Sligo City Halls light up red for World Haemochromatosis Awareness Week 2023! #WHAW2023 Hundreds of public & iconic buildings, bridges and monuments all over the world shining a spotlight this week and next on the symptoms of haemochromatosis #sligo @GalwayCityCo
Many thanks @AytoLeganes
For joining the international ‘Light Up Red’ campaign to raise awareness of #hemochromatosis in #WHW2023. Your sites look fabulous in red!
🔴#Leganes se sumará, en este 3 de junio, a la Semana Mundial de la Hemocromatosis, iluminando de rojo las fuentes ornamentales y la Plaza Mayor.
👉Se trata de una enfermedad rara que sufre uno de cada mil españoles.
Thank you @MADRID for lighting up red to raise awareness of haemochromatosis during #WHW2023. La Fuente de Cibeles is a real beauty in red.
📢Este sábado 3 de junio iluminamos de color rojo 🔴 la Fuente de Cibeles con motivo de la Semana Mundial de la #Hemocromatosis.
Congrats Team Exeter @JaniceLAtkins @d_meltzer @lcpilling & Mitch Lucas for creating this excellent resource for people with #haemochromatosis #hemochromatosis & those who care for them. Haemochromatosis International member organisations appreciate your work. #WHW2023
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Haemochromatosis International retweeted
Haemochromatosis, or iron overload, is Australia’s most common genetic disorder. It’s easy to test, simple to treat, but tragic to ignore.
To find out more, visit haemochromatosis.org.au/
#WHW2023 #lightentheoverload #RCPA #pathology #medicineispathology @HaemAus
Haemochromatosis International retweeted
Many thanks @healthgovau for raising awareness of #haemochromatosis and #ironoverload this World Haemochromatosis Week 🩸
This week is #WorldHaemochromatosisWeek📅
#Haemochromatosis (iron overload disorder) is an inherited condition, the most common in Australia. Too much iron is a problem, if undetected & untreated it can cause organ or tissue damage.
💻haemochromatosis.org.au
And so much more to learn! Thanks @lcpilling for starting up conversations with casual acquaintances about #hemochromatosis. Let’s all have more conversations about #haemochromatosis during #WHW2023 June 1-7.
My blood made the 2hr drive up the M5 to Gloucester Royal Hospital 🩸
@GiveBloodNHS - the easiest way to save a life!
Added bonus for me is a wonderful conversation with the nurses about #haemochromatosis every time. Always learn something new!
@IronOverloadUK @IronMattersInt
ALT Screenshot of a map showing the car directions from the donation center in Exeter to the NHS Blood and Transplant manufacturing centre in Filton - where they ran all the standard tests and process it into a form that can be given to a patient in need - then on to Gloucester Royal Hospital. A 2 hour and 12 minute car journey, apparently. Or 36 hours walking.
Don't delay! Last day to send in your entry is April 30. Images will be on show in the virtual gallery during #WorldHaemochromatosisWeek #WHW2023 June 1-7 Voting for the People's Choice Award will be open then.
For more info go to haemochromatosis-internation…
Register now for the long anticipated Ninth BIOIRON Congress, the leading international conference for clinicians & researchers in #ironmetabolism #irondisorders #ironmatters #bioiron2023 #chiesi #cslvifor #ionispharma #regeneron #discmedicine #resonancehealth
ALT https://aapevents.eventsair.com/bioiron2023
Get clicking this holiday weekend & submit your pic by April 30. For more info go to haemochromatosis-internation…
Could unrecognised hemochromatosis have contributed to the early death of this genius? @BeggTristan making Beethoven’s genome publicly available for iron researchers will help many others at risk of serious health problems from hemochromatosis. Thank you!
cosmosmagazine.com/history/s…
HI is delighted to announce the appointment of two new independent trustees to the Haemochromatosis International Board. Welcome Dr Melissa Yssel and Paul Johnston!
haemochromatosis-internation…
Haemochromatosis International retweeted
Dr Dianne Prince & @olynykjohn at AusIron 22. Di presented a poster on Australia's first patient registry for haemochromatosis. This national patient registry project is a collaboration between Haemochromatosis Australia, @qimrberghofer @edithcowanuni and @QUT #haemochromatosis
