Working in partnership with Aboriginal Australians, their families and communities living with Machado-Joseph Disease to provide comprehensive supports
Arnhem Land
Joined May 2009
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We're excited to announce dates for the 2025 MJD International Research Conference. We look forward to seeing you in Darwin, Australia!
Further details on conference registration and Travel Scholarship applications to come soon. #mjdinternationalresearchconference2025
In this article from the @apaphysio, researchers (including @MJDFoundation's Julie Wunungmurra, Libby Massey and Ali Grootendorst) share about why co-design is important, and how to get the most out of it:
australian.physio/inmotion/c…
#machadojosephdisease #MJDfoundation
MJD Foundation retweeted
The #NDIS has not been rolled out properly in places like the Barkly Region of the #NT, and it has failed to reach its potential. Bruce Bonyhady Review co-chair
Hear more from the #NDISReview consultations in remote and First Nation’s communities.
ndisreview.gov.au/news/ndis-…
MJD Foundation retweeted
🌎Register for Ataxia Global Conference 2023!
online, 15-16 November 2023
ataxia-global-initiative.net…
@NAF_Ataxia @AtaxiaUK @CureFA_org @Euroataxia @AtaxiaCentreUCL @Ataxia_and_Me @eurordis @ionispharma @IXICOnews @MJDFoundation @AtaxiasARG @biogen @AtaxiaIndia @SCAsource
MJD Foundation retweeted
📢Save the date for ICAR 2024:
12-15 November 2024, London
Please RT!
@Euroataxia @AtaxiaCentreUCL @Ataxia_and_Me @AtaxiaFighting @ionispharma @IXICOnews @MJDFoundation @AtaxiasARG @ataxiecanada @AtaxiaIndia @hefaassociation @mdsieditor @movedisorder @iansecretary
We’re recruiting for our new CEO. If this is you, check out our full Job Pack here.
mjd.org.au/wp-content/upload…
MJD Foundation retweeted
Congratulations to @DLaGrappeRN who has been awarded a @FulbrightPrgrm Public Policy Fellowship!
Serving in Vietnam, she will explore how gender-based violence is measured and the role of nurses and Maternal and Child Health services as first responders. now.latrobe/fulbright-2023
We’ve been contacted by a family living with MJD (SCA3) in India who are desperate for support. Is there a support organisation we can refer them to?
@AtaxiaIndia
@mdsieditor
Save the date! International MJD Conference, May 2025. Darwin, Australia
@ataxia_global
@NAF_Ataxia
@AtaxiaUK @Euroataxia @AtaxiaCentreUCL @Ataxia_and_Me @CPathInstitute @eurordis @AtaxiaFighting @AtaxiasARG @ataxiecanada @AtaxiaIndia @cacna1a @hefaassociation @mdsieditor
MJD Foundation retweeted
NAA welcomes the interim report of the inquiry into the Culture and Capability of the #NDIA. The recommendations address much needed improvements to the #NDIS for people with neurological and neuromuscular conditions aph.gov.au/Parliamentary_Bus…
MJD Foundation retweeted
You might also be interested in our scoping review about developing AAC systems in languages other than English #AAC #accessforall #SLPeeps
pubs.asha.org/doi/10.1044/20…
MJD Foundation retweeted
So delighted to be able to share some core findings from our collaborative intercultural participatory action research developing AAC systems in Yolŋu languages for Yolŋu living with MJD #AAC #accessforall #SLPeeps
tandfonline.com/doi/full/10.…
At Macquarie University with a cheque for $12,000 presented to Dr Angela Laird’s @LairdNeuroLab
Funds raised by the wonderful Bec Lyons. We also got to hear the latest from the inspiring research of Dr Laird’s team, using zebra fish and mice to find a treatment for MJD.
I just uploaded “No Shame, No Blame, Just Hope” to #Vimeo: vimeo.com/760179828
MJD Foundation retweeted
Australian paralympian and disability advocate Kurt Fearnley is the new chairman of the National Disability Insurance Agency, Bill Shorten has announced.
Rebecca Falkingham is the new chief executive and Graeme Innes and Ms Maryanne Diamond join the board.
I just uploaded “MJD How to use this resource.mp4” to #Vimeo: vimeo.com/748818542