Optical Jukebox retweeted
Against a central London skyline: the extraordinary #BreatheforElla by Dryden Goodwin, who created 1300 individual drawings for this tribute. In memory of @EllaRobertaFdn and in support of #EllasLaw.
#cleanairforall
Optical Jukebox retweeted
Clean air is a human right. Last night, hundreds gathered on the South Bank to see the unveiling of Dryden Goodwin’s #BreatheforElla, honour Ella’s memory @EllaRobertaFdn & galvanise support for #EllasLaw. Incredibly moving evening. On for 2 more nights @Rambertdance
Optical Jukebox retweeted
We are currently making a short film to promote 'Gastrostomy tube - Is it for me?' If you have MND, have used the decision aid and might be interested in taking part, please get in touch asap. We would come to you to film @mndassoc
Excited to announce the launch of the 'Gastrostomy tube - Is it for me?' decision aid on the MND Association website. This decision aid was developed as part of the DiAMoND study.
mndassociation.org/diamond-p….
Optical Jukebox retweeted
Our @starworks_cp child prosthetics programme have produced a wonderful video, highlighting the approach taken, showcasing the individual projects and spotlighting our children and young people ambassadors that make the whole programme come together - devicesfordignity.org.uk/202…
Optical Jukebox retweeted
Are you a #careworker? Could you help @NeurocareK test a new learning resource for care workers who support people with #neurologicalconditions ?
Find out more at youtu.be/6d56_aPn-60 or take a look at tinyurl.com/56bwh2kc
Hello #careworkers👋 could you help test our new learning platform? We'd like your honest feedback - shopping vouchers given to all testers! Find out more in our film youtu.be/6d56_aPn-60
@exemplarhc @HC_One @FourSeasonsHCUK @RightatHomeUK @AlliedCare @UfiTrust @HCareInsight
Optical Jukebox retweeted
Hello #careworkers👋 could you help test our new learning platform? We'd like your honest feedback - shopping vouchers given to all testers! Find out more in our film youtu.be/6d56_aPn-60
@exemplarhc @HC_One @FourSeasonsHCUK @RightatHomeUK @AlliedCare @UfiTrust @HCareInsight
Optical Jukebox retweeted
We have co-created Neurocare Knowhow for #careworkers👋 to help support the care of people living with neurological conditions in the community and in care homes. Please help us make it better. Find out more in our film youtu.be/6d56_aPn-60
@NeuroAlliance
Optical Jukebox retweeted
We are calling on the Government to define people with #MND as being extremely vulnerable as a matter of urgency.
If you have MND, we recommend that you register as extremely vulnerable at gov.uk/coronavirus-extremely….
This may help you get the best possible support! #Coronavirus
Optical Jukebox retweeted
Find out more about #myBreathing, a fantastic website to enable people living with #MND to understand more about #breathing support, #NIV and #ventilation bit.ly/2Ilb8E6 @neuroshef @mndassoc @SYMNDA @MNDManchester @NWVU_MFT @mndeducation @designbyglass @OpticalJukebox
Optical Jukebox retweeted
You can find brand new #myBreathing + #myTube via #myMND Info resources to support care choices in #MND #ALS Created w/ @neuroshef @NWVU_MFT @SYMNDA @MNDManchester @mndassoc @helloammba @designbyglass mymnd.org.uk/
Optical Jukebox retweeted
Have you seen the #myBreathing website? It's brand new.
It aims to support people living with motor neurone disease on choices they can make about their breathing support. The project was part funded by our @SYMNDA and @MNDManchester Branches.
Visit > mybreathing.mymnd.org.uk!
Optical Jukebox retweeted
A fantastic addition to the ‘myMND’ information resources. Developed in collaboration with people living with MND, helping inform about the option to start non-invasive ventilation (NIV). Check it out and share far and wide @mndassoc @SYMNDA mybreathing.mymnd.org.uk
Optical Jukebox retweeted
If you missed this great news last Friday, check it out!
We were very proud to help fund some of this work, and also have our branch play a part in the feedback to inform the final version!
Thanks to @profcjmcdermott and @cathy_soreny for their engagement with us all.
Launched today! #myBreathing website supporting people with #MND #ALS to make choices about #breathing support, #NIV & #ventilation dev w/ @neuroshef @mndassoc @SYMNDA @MNDManchester @NWVU_MFT @mndeducation @profcjmcdermott @helloammba @designbyglass mybreathing.mymnd.org.uk/
Optical Jukebox retweeted
Delighted to see this launched today, really pleased our @MNDManchester branch helped a little towards its funding.
Was a pleasure to meet with @cathy_soreny and thanks to her and @profcjmcdermott who engaged our branch during the process.
Some great work, with our local touch!
Launched today! #myBreathing website supporting people with #MND #ALS to make choices about #breathing support, #NIV & #ventilation dev w/ @neuroshef @mndassoc @SYMNDA @MNDManchester @NWVU_MFT @mndeducation @profcjmcdermott @helloammba @designbyglass mybreathing.mymnd.org.uk/
Optical Jukebox retweeted
We are pleased to have helped fund part of this project.
Please take a look at the site, we were pleased to have @profcjmcdermott and @cathy_soreny come to talk about it last year, we are proud it’s now officially launched!
Launched today! #myBreathing website supporting people with #MND #ALS to make choices about #breathing support, #NIV & #ventilation dev w/ @neuroshef @mndassoc @SYMNDA @MNDManchester @NWVU_MFT @mndeducation @profcjmcdermott @helloammba @designbyglass mybreathing.mymnd.org.uk/
Optical Jukebox retweeted
2 weeks today until screening of doc on Adam Bohman @Cafeoto w/ live music from @SecludedBronte and trio of Adrian Northover @HorseImprovClub Sue Lynch and Tom Scott. @emvickers @thesefeathers cafeoto.co.uk/events/adam-bo…
Optical Jukebox retweeted
What’s Willberry been up to? Head here to read his exciting update 😬😬 willberrywonderpony.org/blog…
Optical Jukebox retweeted
#HeadUp out there making ‘a substantial difference’ right now nitter.cf/joelangley_/status/100… – at Cullompton, England
Optical Jukebox retweeted
Thanks to everyone for their help in developing the Head Up neck support collar. Made a great difference to my quality of life. @Devices4Dignity @neuroshef @mndassoc nitter.cf/BBCLookNorth/status/10…
New motor neurone brace makes 'substantial difference' bbc.in/2IYHTtu
Optical Jukebox retweeted
Great talk by Cathy Soreny of @OpticalJukebox showing how #coproduction and #film helped normalise #patientexperience of tube feeding to reduce fear and reluctance in patients #digitalhealthinfo #myTUBE: Homehttps://mytube.mymnd.org




























