PostGas (@PostGasMND) header
PostGas (@PostGasMND) profile picture

PostGas

@PostGasMND

A UK multi-centre study aiming at understanding the optimal nutritional management for people with #ALS #MND who are fed enterally following a #gastrostomy.

 Sheffield, England
mndcsg.org.uk/mnd-clinical-research/research-studies/postgas/
Joined October 2018
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Photo by PostGas (@PostGasMND)Photo by PostGas (@PostGasMND)Photo by PostGas (@PostGasMND)Photo by PostGas (@PostGasMND)Photo by PostGas (@PostGasMND)Photo by PostGas (@PostGasMND)
mybreathing.mymnd.org.uk People affected by MND have been supported to develop something to help others learn from their experiences. They have taken the best evidence and their personal experiences and come up myBreathing. #ALS #MND #coproduction
Optical Jukebox (@OpticalJukebox) profile pictureOptical Jukebox@OpticalJukebox28 Feb 2020
Launched today! #myBreathing website supporting people with #MND #ALS to make choices about #breathing support, #NIV & #ventilation dev w/ @neuroshef @mndassoc @SYMNDA @MNDManchester @NWVU_MFT @mndeducation @profcjmcdermott @helloammba @designbyglass mybreathing.mymnd.org.uk/
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A fantastic addition to the ‘myMND’ information resources. Developed in collaboration with people living with MND, helping inform about the option to start non-invasive ventilation (NIV). Check it out and share far and wide @mndassoc @SYMNDA mybreathing.mymnd.org.uk
Home - myBreathing

Home - myBreathing

 

mybreathing.mymnd.org.uk
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Really inspiring talk by dietitian Sean White, on the importance of MDT working and how we present information to patients in an accessible and timely fashion to support complex decision making for alternative feeding @UKSRG2 #UKSRG2020 #MND @mndassoc
Image from Bec Kimber (@Bec_speechie)
Image from Bec Kimber (@Bec_speechie)
Image from Bec Kimber (@Bec_speechie)
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The 2019 Hawking Lecture is now available to view online. It features @profcjmcdermott presenting the latest thinking on nutrition in #MND. Visit bit.ly/RCN2019 and register for a free account. @theRCN
Image from MND Education (@mndeducation)
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Are you a healthcare professional supporting people with progressive neurological conditions to make decisions about gastrostomy placement? Please follow link below if you wish to complete national survey on current practice. Survey closes in 2 days. scharr.eu.qualtrics.com/jfe/…
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Let's start 2020 the way we mean to carry on, by raising awareness of motor neurone disease. Please retweet our graphic which highlights some of the key facts about the disease. Together we can achieve our vision of a world free from #MND 🧡 thank you for your support!
Image from MND Association (@mndassoc)
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Are you a nurse supporting people with neurological conditions such as motor neuron disease, multiple sclerosis or Huntington’s Disease to making decisions about gastrostomy placement? Please consider completing this survey: scharr.eu.qualtrics.com/jfe/…
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Once again, congratulations to @DoddieWeir5 on being awarded the Helen Rollason Award yesterday, which recognises outstanding achievement in the face of adversity. It was presented by HRH The Princess Royal at this year's @BBCSport #SPOTY. Watch here 🏉 bbc.co.uk/sport/sports-perso….
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Christmas came early for the @DiAMoNDstudy_! Protocol paper published in the @BMJ_Open today - find it online here: bmjopen.bmj.com/content/9/12… #MND #decisionmaking #decisionaid @mndassoc @mariecurieuk
Image from DiAMoND Study (@DiAMoNDstudy_)
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Over 420 posters will be displayed at this year's #alsmndsymp in Perth. These laid end to end would cover the arch span of the Sydney Harbour Bridge! What an amazing amount of #MND research 🤯
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Please complete this survey looking at use of water in enteral nutrition @PENGDT qmu.onlinesurveys.ac.uk/wate…
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Congratulations to @neuroshef awarded the #QueensAnniversaryPrize for innovation in neuroscience research - we are proud to be supporting Prof. Bandmann's work with #UDCA - understanding the drug’s potential to slow #Parkinsons sheffield.ac.uk/news/nr/roya…
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100 HCP’s have already responded to survey about how they support people with progressive neurological conditions to make decision about gastrostomy placement. Doctors, nurses, speech & language therapists, and dietitians: you can complete survey here: scharr.eu.qualtrics.com/jfe/…
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Yesterday we held an #MND equipment roadshow- @ominayasmin had a go on the Neater Eater - sadly no chocolate was available! @mndassoc
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PostGas retweeted
ProSec3 (@pro_sec3) profile picture
ProSec3@pro_sec31 Nov 2019
@pro_sec3 hit another major milestone last month-passing 400 study participants! Huge thanks to all of the patients taking part!
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Big well done to Leia, Lestyn and Alys who took on and beat the Cardiff Half recently for #TeamMND. They've raised nearly £1,000 💙 in memory of their music teacher's mother, Gwenda, who died of #MND!
Image from MND Association (@mndassoc)
Image from MND Association (@mndassoc)
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Don't forget - our #MND equipment roadshow on Wednesday 30th October 12-4pm - come and chat to our experts and see the latest equipment available bit.ly/2pah0KM
Image from LOROS Hospice (@LOROSHospice)
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Did you know that last month, our #MND Connect Helpline took 628 calls from people needing support and advice about MND? Our service is here to help. Visit 💬 mndassociation.org/connect or call 0808 802 6262!
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Congratulations to Dr Hautbergue who has been elected as a Fellow of the Royal Society of Biology, recognising his prominent contribution to biological sciences! His research focuses on gene expression in physiological and neurodegenerative diseases. bit.ly/2o5p7re
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We are looking for #HCPs and stakeholders from third-party organisations such as the @mndassoc to take part in a focus group so we can explore how we can improve the delivery of #NIV to people with #MND. For more information: sitran.org/clinical-studies/… @BTSrespiratory @neuroshef
Image from Better NIV for MND (@NIV_4_MND)
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