Rosie Dean (@RI_Whitehead) header
Rosie Dean (@RI_Whitehead) profile picture

Rosie Dean

@RI_Whitehead

🩺 Clinical Specialist Neuromuscular Respiratory Physiotherapist 🫁

 Sheffield, England
Joined August 2009
  • Tweets301
  • Following437
  • Followers196
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Photo by Rosie Dean (@RI_Whitehead)Photo by Rosie Dean (@RI_Whitehead)Photo by Rosie Dean (@RI_Whitehead)Photo by Rosie Dean (@RI_Whitehead)Photo by Rosie Dean (@RI_Whitehead)Photo by Rosie Dean (@RI_Whitehead)Photo by Rosie Dean (@RI_Whitehead)Photo by Rosie Dean (@RI_Whitehead)Photo by Rosie Dean (@RI_Whitehead)
Please spread the word about this online HMV patient support group! It's an ideal opportunity for HMV patients and their carers to talk about the treatment and the challenges it brings! #addinglifetoyears ⬇️⬇️⬇️
Home Mechanical Ventilation in Partnership (@HMViPGroup) profile pictureHome Mechanical Ventilation in Partnership@HMViPGroup21 May 2025
Following #WorldHMVDay, if you would like to find out more about #HMVcareiskey this will be the topic of the June @asthmalunguk HMV Support Group meeting. To sign up go to asthmaandlung.org.uk/groups-…. #addinglifetoyears

Home Ventilation Online Support Group

An online support group for those using home ventilation on a regular basis with talks from specialist healthcare providers, pulmonary rehab specialists and dietitians.

asthmaandlung.org.uk
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Celebrate #WorldHMVDay with us today! Share the hashtag #HMVcareiskey to help us highlight the essential role that carers play in HMV users living their lives to the full. #addinglifetoyears #HMViP hmvip.co.uk
Image from Home Mechanical Ventilation in Partnership (@HMViPGroup)
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We are looking for healthcare professionals who work with people with #MND have cough and secretion issues to take part in online co-design workshops to develop a clinical tool to support practice. Let us know if you would like to participate! sites.google.com/sheffield.a…
Home

Home

Through consultations with healthcare professionals, people living with MND and their caregivers, we have identified the key needs and preferences for the tool. The next phase involves co-designing...

sites.google.com
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📢 Recruitment is open in Sheffield, Cardiff and Vale, Oxford, and Leeds! 📢
Image from Emily Mayberry (she/her) (@ejmayberry)
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Do you or someone you know have MND and live in the UK? Please help us take part in our research to improve the way we support people experiencing emotional distress. @ejmayberry @profcjmcdermott @Char_Massey @PaulWicks @SYMNDA @neuroshef @SheffieldBRC
Call For Participants! Do you have MND or care for someone with MND? You are invited to take part in confidential interviews which will explore your personal emotional experiences with MND. We aim to have up to two interviews which may take up to an hour each and can take part in person, by video call, over the phone or via email, depending on your own personal preference. You will receive a £10 voucher per interview for your time. The study aims to: Understand the different aspects of emotional distress people with MND can experience better. Understand whether the current tools of measuring distress are effective and relevant for people with MND. Improve the future provision of emotional support to people with MND. For more information, please contact Antonia Pavlou-Rodriguez at apavlou-rodriguez1@sheffield.ac.uk

ALT Call For Participants! Do you have MND or care for someone with MND? You are invited to take part in confidential interviews which will explore your personal emotional experiences with MND. We aim to have up to two interviews which may take up to an hour each and can take part in person, by video call, over the phone or via email, depending on your own personal preference. You will receive a £10 voucher per interview for your time. The study aims to: Understand the different aspects of emotional distress people with MND can experience better. Understand whether the current tools of measuring distress are effective and relevant for people with MND. Improve the future provision of emotional support to people with MND. For more information, please contact Antonia Pavlou-Rodriguez at [email protected]

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As a national group of MND healthcare professionals, patients and MND charities we have written to NICE requesting an urgent review of their decision about Tofersen. @NICEComms #MND @UKMNDRI @UK_mnd_CSG @mndassoc mndcsg.org.uk/#h.vl5d4roawb9…
UK MND Clinical Studies Group

UK MND Clinical Studies Group

The UK MND Clinical Studies Group is the healthcare research arm of the UK Motor Neuron Disease Research Institute (UK MND RI), with researchers across the UK and patient advocacy groups working...

mndcsg.org.uk
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It’s 1st December. This is where Christmas really begins ✨ A few kind words can make a big difference 💙 Watch, like, share and get involved: shc.mythankyou.org/christmas… #SheffieldSaysThanks #SHC #PeteMckee #NHS #Christmas #SheffieldActually
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Rosie Dean retweeted
SiLVaH (@SiLVaH_UK) profile picture
SiLVaH@SiLVaH_UK10 Nov 2023
With that being the close of another successful #SiLVaH2023. A huge thank you to all the speakers, @janey3693 @helen_ashcroft, Claire Hogg @NHS_HomeVentEdi, @Drbenmesser, Guy and Amy Ward, @DrElliWilson and @ICUdocX.
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Thank you to everyone who completed our survey 🙌🏼 We are looking for any #HCPs working with cough and secretion problems in #MND who would be willing to take part in focus groups. Face to face and virtual dates available. See below for more info ⬇️ @mndresearch
Image from Charlotte Massey (@Char_Massey)
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More exciting job opportunities. 🚨 🚨 Clinical specialist (B7) working across a regional cardiology centre in Sheffield! Come and join in our amazing, dynamic forward thinking teams! @TheACPRC @STH_AHPs @SYB_ICS_AHPs @STH_AHPs jobs.nhs.uk/candidate/jobadv…
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Are you a clinical psychologist? Come work with in a fab team at the Sheffield MND care centre. @ejmayberry sth.nhs.uk/work-for-us/jobs?…
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Exciting job opportunities!! 🚨🚨🚨 Band 6 Physiotherapist working across Critical care, Surgical & Respiratory medicine areas in Sheffield. Come and work in dynamic and forward thinking teams! Click on the link to Apply. @STH_AHPs @SYB_ICS_AHPs jobs.nhs.uk/candidate/jobadv…
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Looking for MND speech therapists, nurses, physios, doctors in the UK to help with a survey. Please share! shef.qualtrics.com/jfe/form/…
Image from Esther Hobson (@DrEstherHobson)
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We are still looking for healthcare professionals in the UK who care for people with #MND who have #cough and secretion issues? Please fill in this survey to share your views via link or QR code. shef.qualtrics.com/jfe/form/……
Image from Charlotte Massey (@Char_Massey)
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⭐️Are you a healthcare professions in the UK who cares for people with #MND who have #cough and secretion issues? ⭐️ Please fill in this survey to share your views via link or QR code. shef.qualtrics.com/jfe/form/… @mndresearch @TheACPRC @ACPIN_UK @RCSLT @SiLVaH_UK @mndassoc @uk_hmv
Image from Charlotte Massey (@Char_Massey)
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Rosie Dean retweeted
BAFTA (@BAFTA) profile picture
BAFTA
@BAFTA20 Jul 2023
"I really believe that we need a film that talks about ableism head-on..." Ahead of her new documentary airing @josierones shares why tackling discrimination against disabled people in society is so important.
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Spread the word – tomorrow is the first-ever World HMV Day! If you or someone you know wants to learn about home mechanical ventilation, and how you can help improve awareness and equity of therapy, visit hmvip.co.uk/world-hmv-day-20… & share this post. #addinglifetoyears #WorldHMVDay
Image from Home Mechanical Ventilation in Partnership (@HMViPGroup)
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Thank you for including people on home ventilators in this advert @scope it’s such a tragic situation for people who cannot breathe without machines at home @BTSrespiratory @SiLVaH_UK @uk_hmv @AlisonArmstron @VerityFord1 @NickHartGSTT @EB_clinic @liam_campbell85 @Drbenmesser
Scope (@scope) profile pictureScope@scope9 May 2023
🔌 When your life depends on electric equipment, there’s no easy way to reduce your energy bills. Today, we're launching a new advert with the support of @ITV and @ClearChannelUK, showing how rising energy costs are disproportionately affecting disabled people.
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Really exciting to see #tofersen has been FDA approved in pwMND who have SOD-1 mutation. I was involved in the clinical trial and spent many hours with brave patients willing to have monthly lumbar punctures in the name of science. hard work and their generosity and bravery.. 1/n
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The approval of Qalsody demonstrates that we are on the pathway to ending #MND #ALS. I am always full of admiration for those facing the challenges of living with MND who take on the additional burden of trial participation. Thank you. You make this happen. #united2endMND
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