Program Director, The Association for Frontotemporal Degeneration
Radnor, PA
Joined August 2010
- Tweets1.4K
- Following163
- Followers491
- Likes1.3K
Thank you @BuckeyeDawn for sharing your FTD experience here and in everything you do as an #AFTDAmbassador. Your efforts are a wonderful tribute to your husband. @AFTDHope
We didn't know what FTD was when Jim was diagnosed. Only knew there was no cure. 2 years for a diagnosis. He fought FTD for 8 years until he couldn't fight anymore. He lost his ability to talk. I was his caregiver. I am and will continue to be his voice.
#EveryFTDStoryCounts
Sharon Denny retweeted
Gratitude to the Willis/Moore family for defying #dementia stigma and educating the public about frontotemporal degeneration. We all can lift up #BruceWillis and his family by directing people to theaftd.org to learn more.
#SupportBruceWillisFTD #EveryFTDStoryCounts
Sharon Denny retweeted
Thank you Emma, and thank you Demi, Rumer, Scout, Tallulah, Mabel, & Evelyn. Your courage and resolve in sharing this story means so much to our community. Know that our community are here for you in this #EveryFTDStoryCounts #SupportBruceWillisFTD instagram.com/p/Cou_gFCPvjB/…
Sharon Denny retweeted
Such sad news. My husband Jim passed from this disease. Please read the statement. Together we can work towards a world free of this cruel disease. Sending prayers to him & his family. AFTD's site has so many resources if you know someone diagnosed with FTD #endFTD #FTDAmbassador
Bruce Willis has been diagnosed with FTD, the actor’s family said in a statement released today. Willis retired from acting in March 2022 due to aphasia, but the family has shared that his symptoms have progressed. Learn more: bit.ly/3YWTsnH
Thank you for including the Willis's story with your own efforts to increase awareness of FTD. We know you understand the challenges this diagnosis brings. @AFTDHope #EveryFTDStoryCounts
Our thoughts and prayers go out to his family and friends! #Ftd #EndFTD #Dementia yahoo.com/entertainment/bruc…
Thank you @PennBiNDLab. @AFTDHope is very grateful to the Willis family for publicly coming forward with their story. They are bringing new awareness to FTD, likely making it easier for families to get an accurate diagnosis and quicker access to support. #EveryFTDStoryCounts
This Post is from an account that no longer exists. Learn more
Sharon Denny retweeted
This news is personal to me, because my father faced FTD. My heart goes out to Bruce Willis and his family, and I’m grateful that they're sharing their story. Together we can move past the isolation of a dementia diagnosis and end to this disease. theaftd.org
Sharon Denny retweeted
🌎 Today begins #WorldFTDAwarenessWeek2022, a week designed to raise global #FTDawareness. It takes an average of 3.6 years to get an accurate #FTDdiagnosis. Watch @worldFTDunited's "Journey to Diagnosis" video, then share & urge people to #AskAboutFTD: bit.ly/3C7w6TP
Sharon Denny retweeted
For #WorldFTDAwarenessWeek2021, AFTD joined hands with @worldFTDunited to produce a #GlobalConversationOnFTD. Starting tomorrow, Saturday 10/2, you can tune in any time, for 4+ hours of vital information & perspectives from around the world. Watch & share: WorldFTDUnited.net
Sharon Denny retweeted
We celebrate #WorldFTDAwarenessWeek to raise awareness about the lived experiences of individuals living with FTD. In this video, our Buddy Program participants discuss the connection they made through the program.
Watch here ⬇️
youtu.be/T4AHssrZojw
Sharon Denny retweeted
Please reTweet to raise awareness about the power of #music on the #brain.
#neuroscience #Alzheimers #dementia
Sharon Denny retweeted
@FTD Week Listen to Susan Dickinson as she talks with us on our podcast @RodgerThat_show about Frontal Temporal Degeneration, an often misdiagnosed brain disease that is #notalzheimers @monkeyami @FTDtalk apple.co/3zMfGvK
Sharon Denny retweeted
Timed for the start of #WorldFTDAwarenessWeek2021, AFTD ran a full-page awareness ad in today's edition of the @nytimes. Thanks to a generous donor, and #AFTDvolunteer & designer Jody Zorn, we continue to make more people aware of #FTD: the most common form of #DementiaUnder60.
Sharon Denny retweeted
We are grateful to each of the Silver level sponsors shown below for partnering with AFTD to make our 2021 #AFTDConference possible, and free to attend for all who are affected by FTD. Join us virtually on May 13-14 to learn, connect with others, and find help, hope & support.
Sharon Denny retweeted
Today, AFTD is participating in #GivingTuesday, a global movement that mobilizes individuals & organizations to impact the world through acts of generosity. You can help us further our work toward building a #FutureFreeofFTD w/ a tax deductible donation: bit.ly/3pTx6D3
People facing FTD need a voice! Encourage people living with FTD and their care partners to complete the FTD Insights Survey to address experiences too few understand.
If you've not completed the anonymous survey for the Patient-Focused Drug Development meeting that AFTD is hosting in 2021, please do so before the survey closes at the end of the month. Share your #FTD experience. Take the FTD Insights Survey now: bit.ly/33Ebq4G
Sharon Denny retweeted
During the COVID-19 pandemic, our speech language clinical trial Communication Bridge has been able to continue enrolling and offering speech language therapy to individuals with #PPA. This clinical trial is critical in paving the way for #telehealth!
Sharon Denny retweeted
In our upcoming educational webinar on 10/29, Jamie C. Fong, MS, CGC will outline a practical approach to better understanding #FTD & #genetictesting. Former #caregiver & AFTD Board Alumna Debbie Fenoglio will share her family’s experience. Register today: bit.ly/37jFbtN
Sharon Denny retweeted
The #FTDhotshotchallenge has raised over $81k for AFTD's mission, and is generating FTD awareness worldwide! Will you join AFTD’s CEO Susan L-J Dickinson & participants across the globe in taking the challenge & helping us reach our $100k fundraising goal? bit.ly/3lr2Lsd
Sharon Denny retweeted
Decision-making around genetic testing for inherited FTD is complex. Learn more from @EndFTDregistry.
Dedicated researchers & study volunteers are leading the way to increase knowledge about FTD. The hope is that people with an FTD gene mutation may one day be able to delay or prevent the emergence of the disease. #EndFTD Learn about the genetics of FTD: bit.ly/3d8SHkX
