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My mom was diagnosed with Frontotemporal Dementia when she was 56. I'm a more recent stroke survivor. #FTD #Dementia #Strokesurvivor #Stroke

Salt Lake City, UT
Joined August 2009
Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)
Rare Disease Day - Frontotemporal Dementia! bit.ly/2GPDOXf A form of dementia on the rare disease list? Dementia is so common! No Way! BUT YES, Frontotemporal Dementia is a RARE DISEASE! #ShowYourStripes #RareDisease #RareDiseaseDay #EndFTD #DementiaUnder60
Learn more about Frontotemporal Dementia from the family of Bruce Willis. #FTD #Dementia #Frontotemporal #BruceWillis youtu.be/jAnrCO0S1do?si=n0Cq…
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Cindy's FTD Journey retweeted
FTD often strikes during the prime of life, typically between ages 45 and 64, when many are raising families, building careers, and planning for the future. Its impact is profound, both emotionally and financially, with an average annual cost nearly double that of Alzheimer’s. 🧠 Raising awareness is key to earlier diagnoses and better support. 🔗 Learn more: bit.ly/4lE3kOw
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June is Alzheimer’s & Brain Awareness Month! Repost to raise awareness for the more than 55 million people worldwide impacted by Alzheimer’s and other dementia. Take action at alz.org/abam. #ENDALZ
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Today Wendy Williams’ team shared that the former talk show host is living with primary progressive aphasia & frontotemporal dementia. We hope publicly sharing her diagnosis helps break down stigma and enables others facing dementia feel less alone. today.com/health/wendy-willi…
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Cindy's FTD Journey retweeted
The former talk show host Wendy Williams was diagnosed with FTD last year, her care team announced in a Feb. 22 statement. “In 2023, after undergoing a battery of medical tests, Wendy was officially diagnosed with primary progressive aphasia and frontotemporal dementia (FTD),” her care team said in the statement. Click here to learn more: bit.ly/3T7EpYf
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Attended a funeral today and heard a really touching comment about #dementia...the dementia years likened to waving someone off as they drive away, the distance increasing until you can no longer see the person, but you're still there, waving. Very poignant moment.
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Cindy's FTD Journey retweeted
"Honestly he is the gift that keeps on giving," Emma Willis told TODAY's @Hodakotb in studio, adding that as a result of her husband's diagnosis her two young daughters are learning "love, patience, resilience... so much." today.com/parents/parents/br…
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Cindy's FTD Journey retweeted
🌍 Today marks the beginning of World FTD Awareness Week – a global call to #endFTD. The theme for today is self-care. Whether you're a caregiver, someone with a genetic link to FTD, or directly impacted by it, prioritizing your well-being matters. Here's how you can join in: 1️⃣ Start with a small act of self-care today. Meet up with a friend, take a stroll, relish a favorite spot, or indulge in a good book or some treasured music. Dedicate a few moments to caring for yourself. 2️⃣ Share your self-care journey on social media and inspire others to do the same. Visit this link for messaging and graphics you can share: bit.ly/3PNSsAE 3️⃣ Show your support by changing your profile picture on social media. Follow our simple instructions at the link above.
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Cindy's FTD Journey retweeted
It is #WorldAlzheimersDay. Busy day at work. But I just want my mum. To tell me I’ve got this. She is proud of me. But she doesn’t know who I am. She couldn’t speak if she did. Thousands of daughters are feeling the same this morning. Every morning. The real face of dementia. 💔
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Cindy's FTD Journey retweeted
Jack Hanna's long goodbye: How #Alzheimers is stripping away the man the world once knew usatoday.com/story/news/nati… via @usatoday #dementia
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Cindy's FTD Journey retweeted
A stroke can occur even if you are the caregiver! Know your risk factors (high blood pressure, diet, inactivity, diabetes, high cholesterol) and do what you can to mitigate those risks. #caregiving #strokeawarenessmonth
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May is #StrokeAwarenessMonth . This is my stroke story. I had a #stroke while I was a caregiver to my mom who had Frontotemporal #Dementia . Having a stroke and being a caregiver were super hard. ftdjourney.blogspot.com/2018…
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This daughter was 20 years old when her mother was diagnosed with #FTD. #Dementia #DementiaUnder60 #Frontotemporal google.com/amp/s/www.indepen…
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I miss you, mom! ❤ Happy Heavenly Birthday! 😇
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She lost her 39-year-old husband to Bruce Willis's type of dementia. Here's what she wants others to know about this devastating disease. yahoo.com/lifestyle/ftd-bruc…
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NEW BLOG POST! YOU DID YOUR BEST AND THAT IS ALL THAT MATTERS - GUILT DURING SORROW I had guilt right after Cindy (my mother) passed away. #guilt #grief #EndFTD #Dementia #Frontotemporal ftdjourney.blogspot.com/2020…
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