Cindy's FTD Journey (@monkeyami) header
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My mom was diagnosed with Frontotemporal Dementia when she was 56. I'm a more recent stroke survivor. #FTD #Dementia #Strokesurvivor #Stroke

Salt Lake City, UT
Joined August 2009
Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)Photo by Cindy's FTD Journey (@monkeyami)
Cindy's FTD Journey retweeted
FTD often strikes during the prime of life, typically between ages 45 and 64, when many are raising families, building careers, and planning for the future. Its impact is profound, both emotionally and financially, with an average annual cost nearly double that of Alzheimer’s. 🧠 Raising awareness is key to earlier diagnoses and better support. 🔗 Learn more: bit.ly/4lE3kOw
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June is Alzheimer’s & Brain Awareness Month! Repost to raise awareness for the more than 55 million people worldwide impacted by Alzheimer’s and other dementia. Take action at alz.org/abam. #ENDALZ
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Today Wendy Williams’ team shared that the former talk show host is living with primary progressive aphasia & frontotemporal dementia. We hope publicly sharing her diagnosis helps break down stigma and enables others facing dementia feel less alone. today.com/health/wendy-willi…
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Cindy's FTD Journey retweeted
The former talk show host Wendy Williams was diagnosed with FTD last year, her care team announced in a Feb. 22 statement. “In 2023, after undergoing a battery of medical tests, Wendy was officially diagnosed with primary progressive aphasia and frontotemporal dementia (FTD),” her care team said in the statement. Click here to learn more: bit.ly/3T7EpYf
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Attended a funeral today and heard a really touching comment about #dementia...the dementia years likened to waving someone off as they drive away, the distance increasing until you can no longer see the person, but you're still there, waving. Very poignant moment.
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Cindy's FTD Journey retweeted
"Honestly he is the gift that keeps on giving," Emma Willis told TODAY's @Hodakotb in studio, adding that as a result of her husband's diagnosis her two young daughters are learning "love, patience, resilience... so much." today.com/parents/parents/br…
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Cindy's FTD Journey retweeted
🌍 Today marks the beginning of World FTD Awareness Week – a global call to #endFTD. The theme for today is self-care. Whether you're a caregiver, someone with a genetic link to FTD, or directly impacted by it, prioritizing your well-being matters. Here's how you can join in: 1️⃣ Start with a small act of self-care today. Meet up with a friend, take a stroll, relish a favorite spot, or indulge in a good book or some treasured music. Dedicate a few moments to caring for yourself. 2️⃣ Share your self-care journey on social media and inspire others to do the same. Visit this link for messaging and graphics you can share: bit.ly/3PNSsAE 3️⃣ Show your support by changing your profile picture on social media. Follow our simple instructions at the link above.
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Cindy's FTD Journey retweeted
It is #WorldAlzheimersDay. Busy day at work. But I just want my mum. To tell me I’ve got this. She is proud of me. But she doesn’t know who I am. She couldn’t speak if she did. Thousands of daughters are feeling the same this morning. Every morning. The real face of dementia. 💔
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Cindy's FTD Journey retweeted
Jack Hanna's long goodbye: How #Alzheimers is stripping away the man the world once knew usatoday.com/story/news/nati… via @usatoday #dementia
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Cindy's FTD Journey retweeted
A stroke can occur even if you are the caregiver! Know your risk factors (high blood pressure, diet, inactivity, diabetes, high cholesterol) and do what you can to mitigate those risks. #caregiving #strokeawarenessmonth
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Cindy's FTD Journey retweeted
Rare Disease Day - Frontotemporal Dementia! bit.ly/2GPDOXf A form of dementia on the rare disease list? Dementia is so common! No Way! BUT YES, Frontotemporal Dementia is a RARE DISEASE! #ShowYourStripes #RareDisease #RareDiseaseDay #EndFTD #DementiaUnder60
Cindy's FTD Journey retweeted
In the wake of Bruce Willis’ diagnosis of frontotemporal dementia, a doctor breaks down what it is, the causes, the symptoms and treatment options. on.today.com/3Egm5Ei
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Cindy's FTD Journey retweeted
I learned with Dementia to . . . NOT set high expectations, for it will only lead to disappointment or sadness. Instead, I learned to JUST BE. Just be present. Just be in the moment. Just be happy. Just be thankful.
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Cindy's FTD Journey retweeted
NEW BLOG POST! Raw Emotions From A Son Who's Mom Has Frontotemporal Dementia | bit.ly/2TBxBQK "62 years old with many years of dementia behind her. I won't lie I miss my mom. She's still alive, but so much of her has disappeared." #Dementia #EndFTD #ThinkFTD #FTD
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Cindy's FTD Journey retweeted
Never give up on someone with #dementia. #Alzheimers #quote
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Cindy's FTD Journey retweeted
Sometimes, carers who are most in need of respite are so mentally exhausted that they struggle to think of what to do when they get a break. We can help each other and ourselves. #Alzheimers #dementia #mentalhealth
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Cindy's FTD Journey retweeted
My mom (Cindy) would always make this for our Christmas parties. It was something that was easier for her to make. #Dementia #Recipes
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