Author of SICK GIRL and MY GLORY WAS I HAD SUCH FRIENDS (soon to be limited TV series). Heart tx 1988 & 2014
East coast (and some west)
Joined December 2021
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How can you impact research funding and meaningful improvements in transplant medicine right now? Start by sharing your #truthintransplant with the largest org of transplant professionals (AST) here: myast.org/form/contact
Our beautiful, amazing, spectacular Amy passed away peacefully in her sleep on May 5th, 2023. We will be maintaining this account to provide updates on developments in transplantation and for further information on Amy's writings and upcoming tv show.
Amy Silverstein, author retweeted
Thank you WBUR On Point for sharing some of my story & highlighting key points in our broken organ donation system. A special thank you to Jen Erickson and Senator Elizabeth Warren for speaking up in support of organ donation reform. #MedTwitter #kidney wbur.org/onpoint/2023/05/02/…
Amy Silverstein, author retweeted
Guys we should all get involved here - This should also work for the UK - if you haven’t seen Amy’s story and recent heartbreaking words take a look 💔 xx
How can you impact research funding and meaningful improvements in transplant medicine right now? Start by sharing your #truthintransplant with the largest org of transplant professionals (AST) here: myast.org/form/contact
Amy Silverstein, author retweeted
Listen...
How can you impact research funding and meaningful improvements in transplant medicine right now? Start by sharing your #truthintransplant with the largest org of transplant professionals (AST) here: myast.org/form/contact
Amy Silverstein, author retweeted
Worry a little bit every day and in a lifetime you will lose a couple of years. If something is wrong, fix it if you can. But train yourself not to worry: Worry never fixes anything.
Amy Silverstein, author retweeted
It's this "be thankful" attitude that stifles improvement. In no other patient population would such side effects be tolerated. It's possible to be both grateful and still advocate for improvement.
Amy Silverstein, author retweeted
I am so grateful to @ajsilverstein16 for what she has done. She has shined a beam of light onto the rot which has creeped into our field. I promise to try and do better for her.
And this is why spoke up. If we let this silence us, transplant life and survival will continue as it has for decades. I welcome all viewpoints. But I will not be silenced by them. #truthintransplant
Amy Silverstein, author retweeted
they’re not “much better than before.” what drugs are you referring to specifically, the improved ones? she wrote this for the benefit of all transplant patients, to advocate for a better quality of life for us. nothing about this is “whiny” or incompatible with gratitude.
And this is why spoke up. If we let this silence us, transplant life and survival will continue as it has for decades. I welcome all viewpoints. But I will not be silenced by them. #truthintransplant
Amy Silverstein, author retweeted
Amy, The dialogue and awareness you have stoked is just another gift you have bestowed upon us. You’re an important writer and a remarkable person.
❤️ Lizzie’s little sister.
NY Times, Letters to the Editor:
Aftermath://www.nytimes.com/2023/04/29/opinion/letters/organ-transplants.html?smid=tw-share Truths nytimes.com/2023/04/29/opini…
To those asking how to help bring attention to the urgent need for focus and funding for safer, more effective transplant drugs, the first step is demanding action and attention from the largest org of transplant professionals. State your transplant truth: myast.org/form/contact
Amy Silverstein, author retweeted
Transplant Nurses are the core of organ transplantation - they are central to the success of every program and every patients. Thank you for all you do!
Transplant Nurses are a driving force in our collective mission to save and heal lives. Join us this #TransplantNursesWeek as we celebrate and honor their incredible work!
Amy Silverstein, author retweeted
I just viewed @ajsilverstein16 beautiful video on @CBSSunday Her commentary was so eloquent, balanced, and honest. I hope the @US_FDA @AST_info were listening because our collective patient voice will no longer be silent. Thank you @ajsilverstein16 for your advocacy
On @CBSSunday this Sunday, 4.23, 9 am, I will give a commentary following up on my Opinion in the NY Times : nyti.ms/3N4mChS
Amy Silverstein, author retweeted
My request is that all members of the #transplanttwitter community view @ajsilverstein16 balanced discussion on gratitude + the need for #innovation in #transplantation Thank you @ajsilverstein16
.@ajsilverstein16 - the author of "Sick Girl" and "My Glory Was I Had Such Friends," who has lived for 35 years thanks to two donor hearts, calls for changes needed to improve immunosuppressive drugs necessary for organ transplants. cbsn.ws/3LlowIP
Thank you, CBS Sunday Morning
.@ajsilverstein16 - the author of "Sick Girl" and "My Glory Was I Had Such Friends," who has lived for 35 years thanks to two donor hearts, calls for changes needed to improve immunosuppressive drugs necessary for organ transplants. cbsn.ws/3LlowIP
Amy Silverstein on improving organ donor drug regimens youtu.be/fjnn2Cw5PFU via @YouTube
On @CBSSunday this Sunday, 4.23, 9 am, I will give a commentary following up on my Opinion in the NY Times : nyti.ms/3N4mChS