Neurological physiotherapist with https://nitter.cf/t.co/3BfNtxTDCW / Co-founder @PhysiosForME / Research Assistant and PHD student at Liverpool University
Liverpool, England
Joined June 2018
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🚨Shameful self-promotion alert 🚨
In my other life I'm a writer, and I’m working on a thriller series.
I’ve just published the first eBook and I'm trying to spread the word, so if you could share widely I'd be forever grateful 😊
It's finally here…
“If they treat you like a monster, how long until you become one?”
The Killing Saga begins with The Killing Complex, a fast-paced survival thriller, now available for free or minimal charge
books2read.com/thekillingcom…
#indieauthors #WritingCommunity
KarenLesliePhysio retweeted
It's our seven year anniversary 🎉🎊💪
We reflect on the last twelve months and offer a sneak peak of the next in our newest blog post
physiosforme.com/post/physio…
Hi #pwME who also have POTS, has anyone got recommendations for compression garments for the chest that were tolerable and beneficial?
KarenLesliePhysio retweeted
The world's first genomic study into ME, or Myalgic Encephalomyelitis, has been announced.
Researchers are hoping that by building a genetic map of the illness, it will help pave the way for a future diagnostic test and even treatments.
But charities have warned that there is more to do and this must only be the start.
KarenLesliePhysio retweeted
This #MEawarenessDay we are delighted to have an article published in in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that's over 67,000!)
csp.org.uk/frontline/article…
KarenLesliePhysio retweeted
Let us talk about the "be as active as possible without triggering PEM" that has recently been perpetuated again - in a Nature publication no less.
I used to be a marathon runner, so I'll use this example to illustrate my point. 1/
Any pwME happy to share their experiences?
Q for #pwME who have given birth (while diagnosed with ME).
Which kind of birth (vaginal birth or C-section) would be most tolerable for pwME? (As tolerable as these things can be!!)
This tweet of mine from two years ago seems to have been picked up again.
Two years on and I've had the privilege of in-depth interviews with pwME as part of my PhD, covering decades of their experiences.
The sentiment of this tweet remains concrete.
When I see medical "professionals" talking about fear avoidance and deconditioning I think...
Gosh, you've never really talked to anyone with ME, have you?
KarenLesliePhysio retweeted
Maybe it initially it could have seemed like a good idea to keep Long Covid and ME separate, but we’re making a mistake by not responding to the research indicating a prevalent subgroup of post Covid ME because ME is a major potential confounder of treatment responses.
KarenLesliePhysio retweeted
Dozens of home visits already done in 2026 but we still need more people!
Please use the following link to determine if you are eligible for the study and if you agree for a member of our team to contact you: redcap.latrobe.edu.au/redcap…
🔬women in VIC, healthy OR w/ ME/CFS OR w/ LC
KarenLesliePhysio retweeted
Vagus nerve stimulation trial: update
A feasibility trial looking at “transcutaneous auricular vagus nerve stimulation” (taVNS) in people with ME/CFS has now completed data collection.
Read the full progress report on the blog: meassociation.org.uk/g1i9
#MECFS #pwME #Research #VagusNerve #MyalgicEncephalomyelitis
This is beyond comprehension. How can they clinically justify anything they are doing? This feels criminal.
Update:
Feeling unsafe Savannah self-discharged & left QEH in a private ambulance. Even with the CEO of a national charity advocating in person, Guy’s refused to admit her. After waiting over two hours in the ambulance, she was forced to return to QEH.
gofundme.com/f/severemergenc…
Not making training mandatory of a condition that has low awareness results in no one:
a) knowing they need to do the training
b) bothering to do the training
Who knew!
(We all did - and fed back as such)
FOI response shows uptake of ME/CFS e-learning from the government delivery plan:
• Intro: 371
• Community care: 101
• Severe ME: <50
From a workforce of ~188k doctors & ~423k nurses
This is the problem when training is “promoted” and not mandatory.
skyview.social/?url=https%3A…
KarenLesliePhysio retweeted
The e-learning wasn't made mandatory and this is a major issue.
@thecsp how do we raise the profile of this essential learning to physiotherapists?
FOI response shows uptake of ME/CFS e-learning from the government delivery plan:
• Intro: 371
• Community care: 101
• Severe ME: <50
From a workforce of ~188k doctors & ~423k nurses
This is the problem when training is “promoted” and not mandatory.
skyview.social/?url=https%3A…
KarenLesliePhysio retweeted
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
🧵 1/n
ALT Email sent to NHS elearning enquiries on 12 January 2026. Subject - Request for information. Dear NHSE elearning hub, I am making a freedom of information request (FOIA 2000) for the following data. In 2024/5, the NHS England elfh e-learning hub introduced 3 new modules on ME/CFS: 1. An introduction to ME/CFS (May 2024). 2. ME/CFS: guidance for community-based healthcare practitioners (January 2025). 3. Managing Severe ME/CFS (September 2025). Please can you tell me how many people have completed each module to date (from date of introduction), and what the breakdown is for logins by NHS staff (nhs.uk), and those in government (gov.uk), academic (ac.uk), and social care sectors (if available). I am happy for your response to be sent to this email address. Many thanks for your help, Lucy B
KarenLesliePhysio retweeted
These are the stories we hear and why we formed to educate, advocate and research.
Physios MUST have a baseline understanding of how to work safely with people who have ME or we risk causing significant harm.
@thecsp
