Liv-A-Little Foundation
Saugeen Shores, Ontario
Joined February 2016
- Tweets84
- Following64
- Followers68
- Likes82
So much gratitude @ShawnRingel1 not only have you raised thousands of dollars for us but it’s the place Olivia learned how to play basketball 🏀 💜
Our 3rd annual Hoops for Hope event , our biggest fundraiser of 2020 . Please come in , donate , shoot some hoops Help us support @livalittlefound ccsbluewater mix106.5 Every test drive and vehicle sale… instagram.com/p/B9XiqjDF9sR/…
SAVE THE DATE 💜
Be sure to mark your calendars for the 2020 Day of Hope Family Conference! Join us from April 16 to April 18 in Newport Beach, CA at the Fashion Island Hotel for a weekend of community, connection and hope. We look forward to seeing all of you in 2020!
#DayOfHope
Liv-A-Little retweeted
To our brilliant & dedicated researchers - "thank you" will never be enough to express how grateful we are for all you have given us. Your discoveries have given us hope for the possibility of a world without cystinosis. Together, we are turning dreaming into doing!
#CRFresearch
Liv-A-Little retweeted
"It has been our goal from the beginning to do whatever it takes to keep her as healthy as possible because we hoped for the cure someday. And hope is now closer than ever" - Erin Little, Olivia's mom. Together, we shine brighter than ever!
#curecystinosis
$1000 donated to GC Houston Breakfast program on behalf of the 216 golfers that showed up to support our 7th annual Swing, Shoot and Liv Golf Classic.
Nobody needs more stuff but every child needs a full belly to learn.
#BetterTogether
So grateful to partner with #CRF 💜
For years we have fought cystinosis, and at times hope was elusive. But now, we can look back and know it was all worth it. Against all odds, hope was never lost, and now with the stem cell transplant clinical trial underway, we are closer than ever to a cure!
#curecystinosis
Liv-A-Little retweeted
What are you dressing up as this year? Share your pictures with us! Wishing everyone a very safe, fun and happy #Halloween!
#cystinosisresearchfoundation #cystinosis #curecystinosis #CRFcommunity #CRFresearch #NataliesWish
So grateful for the #crf 💜
Did you know ... Since 2003, CRF has raised over $54 million to support cystinosis research. As a result, we have helped other diseases as well. Thanks to our community's tireless fundraising & support, we have been able to affect change & improve millions of lives!
#CRFresearch
Liv-A-Little retweeted
"While I love the twins just as they are, the idea that they might enjoy longer, healthier lives, free from pain and myriad medications would be icing on the cake...A dream come true." - Teresa & Kevin Partington, Jenna & Patrick's parents.
#curecystinosis
Mr. @JustinTrudeau 💜
Mr. @JustinTrudeau I would respectfully request an opportunity to have a 5 minute phone call at your convenience. I think you have the power to step in and help our and other families. cbc.ca/amp/1.5266072
Congrats Sally, thank you for dedication& work hard for the @SMH_Foundation 👍
Congratulations to @sally_kidson who retires Nov 30th as Executive Director of @SMH_Foundation after several years of service to the Southampton Hospital. Retirement party held in her honour at Lakeshore Recreation Club. @GreyBruceHealth @98thebeach @JDivinski
See you tmo Santa Claus Parade Port Elgin 7pm. We will be collecting toys on parade route for the Iota Phi Sorority Xmas Toy Drive. #portelgin #christmastoys #givingback
Liv-A-Little retweeted
Today, Health Committee unanimously passed a motion to study barriers to treatments & drugs, including the Special Access Program, for CDNs with Rare Diseases. Thank you @livalittlefound for all your work advocating for Olivia & CDNs facing similar challenges.