Mum to Emily, Eve & Benjamin x
burgess hill
Joined August 2010
- Tweets238
- Following488
- Followers45
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Sarah retweeted
What is motor neurone disease (#MND)?
A third of people die within a year, and more than half within two years of diagnosis.
Six people die of MND each day.
It has ๐ง๐จ cure.
Our vision is a world free from MND. You can help.
๐ #LivingWithMND
Sarah retweeted
We can offer support to children and young people who have a loved one who is living with motor neurone disease (#MND).
Our online hub has lots of information that you may find useful.
Click below to find out more.
๐ฌ #ChildrensMentalHealthWeek
Sarah retweeted
Burgess Hill singer, 16, wins competition judged by EastEnders star Anita Dobson
#sussex #brighton
trib.al/R2ZclRP
Sarah retweeted
Tis the season of Hats again. Let the shannigans begin. ๐ Hope ye are all ticking along out there. Grab a cuppa. Also on Afternoon Delight I will be playing here on MSR for the first time. Local girl. Emily Milton's song, Believe all in aid of MND.
mndassociation.org/ โ at Burgess Hill, England
Sarah retweeted
so wonderful to hear that @Rob7Burrow is reading the CBeebies Bedtime Story this weekend ๐
sending love to all the MND family โฅ๏ธ
6:50pm Saturdayโฆ on @CBeebiesHQ ๐
Sarah retweeted
Former Leeds Rhinos player Rob Burrow is to read a CBeebies Bedtime Story using ground-breaking technology, the first time a bedtime story has been read this way.
bbc.com/mediacentre/2022/rugโฆ
Sarah retweeted
Iโm backing the #SupportMNDCarers campaign which launches today. People with #MND are so reliant on carers, often unpaid family & friends. @mndassocโs report shows only 25% of carers have been assessed to check if they need extra support. Please ask your MP to back a review ๐
Unpaid carers are at breaking point.
Today, we launched our #SupportMNDCarers campaign calling on @SteveBarclay to launch an urgent government review into carer's assessments @mndcampaigns
Sarah retweeted
Weโre sorry to hear that Doddie Weir OBE has died.
Since sharing his MND diagnosis in 2017, Doddie became an inspiration to many, raising awareness and campaigning tirelessly on behalf of those with MND.
Our thoughts are with Doddieโs wife Kathy, his 3 sons, family and friends.
Sarah retweeted
ยฃ 1 , 0 0 0 , 0 0 0 ๐ฅน
Heโs done it again. Kevin Sinfield has raised over one million pounds for those living with and affected by motor neurone disease.
Heroic ๐
This is going to make such a massive difference: donate.giveasyoulive.com/funโฆ
Thank you all ๐งก #Ultra7in7
Sarah retweeted
Please watch โLiving with MNDโ tonight on BBC2 ๐ People with MND (and their family) have to get on with life - AND WE DO. But the promised ยฃ50 million towards finding a Cure needs to be given NOW ๐๐ฅฒDO NOT DO A U TURN ON THIS FUNDING ๐
Sarah retweeted
It's #GlobalMNDAwarenessDay - a day to raise awareness of motor neurone disease around the world.
โข 6 people will be diagnosed today
โข 6 people will die today
โข It has NO cure
Please retweet our graphic highlighting the key facts. More people need to know ๐ thank you! #MND
Sarah retweeted
Our five promises are for those living with and affected by motor neurone disease. They will power everything we do.
Hold us to our promises.
Please retweet this to spread the word ready for #GlobalMNDAwarenessDay tomorrow.
๐ค #MNDPromises
Sarah retweeted
I am absolutely disgusted that NO MONEY has been received of the ยฃ50 million over 5 years for MND !!! Government and Health Minister should hang their heads in shame. Was the โpromiseโ just a cruel sick lie ? Give us the money PLEASE ๐
Sarah retweeted
On #InternationalNursesDay we'd like to give thanks to the countless nurses up and down the country caring for those living with motor neurone disease. The work they do, especially in the last two years, is incredible.
We're proud to work alongside @theRCN.
๐ฉโโ๏ธ #NursesDay #MND
Sarah retweeted
๐๐ฎ๐ซ ๐๐ข๐ฏ๐ ๐ฉ๐ซ๐จ๐ฆ๐ข๐ฌ๐๐ฌ ๐ญ๐จ ๐ฒ๐จ๐ฎ...
1: MND is treatable and ultimately curable
2: Everyone gets the care they need when they need it
3: Every day with MND counts
4: You are heard
5: No one faces MND alone
We won't rest until they're kept! #MNDPromises
Sarah retweeted
Motor neurone disease (MND).
It kills a third of people within one year, and more than half within two years of diagnosis. Six people will be diagnosed today. ๐๐ญ ๐ก๐๐ฌ ๐ง๐จ ๐๐ฎ๐ซ๐.
More people need to know this. ๐๐ฅ๐๐๐ฌ๐ ๐ฌ๐ก๐๐ซ๐.
Sarah retweeted
I am absolutely disgusted in this government. They will too busy having parties!
MND Association patron, @Rob7Burrow, shares his thoughts on the #United2EndMND research funding.
Tomorrow, together with the coalition, we meet @GillianKeegan to discuss the ยฃ50 million promised by @GOVUK!
Sarah retweeted
MISSING: Owen is missing from his home in Saltdean in Brighton, East Sussex. He was last seen leaving home at around 7pm on the 26 March. He is 16 years old, 5โ11/6ft and of medium build with dark hair. Last seen wearing a black hoody, grey tracksuit trousers and white trainers.
Sarah retweeted
This is the face of someone who just spent 9 hours in personal protective equipment moving critically ill Covid19 patients around London.
I feel broken - and we are only at the start. I am begging people, please please do social distancing and self isolation #covid19
