BSc Human Physiology, MSc pre-reg physiotherapy student, My dissertation is on ME and LC
Joined October 2024
- Tweets33
- Following54
- Followers35
- Likes647
EleanorMay retweeted
Well done @karenphysiocouk and @EleanorMg01 for presenting at the #physio26 conference about our #ME and #LC research. Great work both of you.
Shortly,@karenphysiocouk will be presenting an abstract at the Chartered Society of Physiotheray conference.
"A mixed-methods randomised controlled feasibility trial of transcutaneous auricular vagus nerve stimulation for people with ME"
EleanorMay retweeted
Looking forward to @csp annual conference. Going with three MSc students - @NiamhLHeeran @ElaKlaveness @EleanorMg01 and PhD student @karenphysiocouk all presenting their work related to #ME and #LC. Raising the profile of #ME and #LC for over 1500 #physios. @PhysiosForME
EleanorMay retweeted
Impact of physical activity on physical function, mitochondrial energetics, ROS production, and Ca2+ handling across the adult lifespan in men: Cell Reports Medicine cell.com/cell-reports-medici…
EleanorMay retweeted
Talks to university physio courses about #ME/CFS and #LC now include: Liverpool, Northumbria, Sheffield and next week Central Lancashire. Added a discussion about the difference between ME, LC and FND. MSc and BSc students and next advanced practitioners. @PhysiosForME
EleanorMay retweeted
V thorough review
mdpi.com/4083736
EleanorMay retweeted
Researchers are linking POTS and Long COVID to autoimmunity.
Evidence suggests immune attacks may inflame or damage autonomic nerves, disrupting control of heart rate and blood pressure and helping explain dizziness, racing heart and fatigue.
nationalgeographic.com/healt…
EleanorMay retweeted
"A 2024 study estimated that 400 million people around the world have long COVID1, with an annual economic burden of around US$1 trillion..
[It is suggested that] around 6% of adults have long COVID..
Evidence points to dysregulated immune cells, chronic low-level inflammation and autoantibodies — immune cells that attack the body’s own tissues [in the long COVID patients]..
SARS-CoV-2 persists in some form.
It can also reactivate other dormant viruses3, in particular those in the herpesvirus family..
Studies have also shown that small blood vessels and the endothelial cells that line them are damaged.
The autonomic nervous system, which regulates heart rate and breathing, is frequently affected and the gut microbiota altered.
Mitochondria, the cell’s power plants, are often damaged; this could contribute to symptoms of fatigue..
[Dr. Scheibenbogen says that] what would happen to us if we ran a marathon happens to ME patients from climbing two stairs."
Indeed.
'When do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes'
nature.com/articles/d41586-0…
EleanorMay retweeted
“My daughter was told to exercise and ended up in a wheelchair... For GPs not to be aware of the harm that exercise can do is hugely damaging.”
Janet Sylvester (MEAction Scotland), speaking about her daughter who has ME while giving evidence to the Scottish Parliament Sept 2026.
EleanorMay retweeted
Four in ten healthcare workers worldwide who were infected with SARS-CoV-2 during the pandemic developed long covid, and a quarter still had symptoms after a year, a report has found
bmj.com/content/394/bmj-2026…
EleanorMay retweeted
#LongCOVID may be leaving behind visible damage to the body’s “rest-and-digest” nervous system.
➡️ For the first time, researchers have demonstrated structural loss of cholinergic (vagal) nerve fibers in the stomach lining of LongCOVID patients.
➡️ The reduction correlated with heart rate variability, providing anatomical evidence for the dysautonomia that many patients experience. 1/
EleanorMay retweeted
Muscle biopsy studies in ME/CFS and Long COVID have found oxidative muscle stress, altered glucose use, mitochondrial changes, capillary injury, nerve-muscle damage and worse muscle pathology after PEM. Let's break down what the findings mean.
EleanorMay retweeted
Really pleased to have another article published. An interview-based article related to experiences of heart rate monitoring. Thank you to all #pwme who took part in the survey and interview study. Thank you to Uni of Liverpool for funding @PhysiosForME
tandfonline.com/doi/full/10.…
EleanorMay retweeted
Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk. - Sign the Petition! c.org/8LVqwKt8wW via @UKChange
EleanorMay retweeted
Well done @KGLeslieWriter @ElaKlaveness @NiamhLHeeran @EleanorMg01 for successful abstracts at the @thecsp conference 2026. Spreading the word about #ME/CFS and #Longcovid. Thank you to all people with #ME/CFS and #Longcovid who took part in all the studies.
EleanorMay retweeted
Channel 4 coverage of the new £4.75M UK government funding for SequenceME. #MECFS
“For decades, many people with ME have been told it is in their heads… But now, a new project will look for the answer in our very DNA, with the world’s first genomic study into ME.”
EleanorMay retweeted
1) 1) Interesting interview of Dr. Audrey Ryback by David Tuller. Her recent study showed that there are likely two age peaks for when people get ME/CFS.
It helps to characterise ME/CFS as a unique clinical entity.
ALT Screenshot of interview of Audrey Ryback by David Tuller on bimodal onset patterns in ME/CFS.
EleanorMay retweeted
1) New sociology paper on severe ME/CFS. The authors analyzed 342 messages on Twitter/X to get insights into the daily reality of people with severe ME/CFS.
They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.
EleanorMay retweeted
We would like to provide a voice for all healthcare professionals affected by #longcovid and #ME. Please share widely. @thecsp @theRCOT @LongCOVIDPhysio @theRCOT @LongCovidOT @MEAssociation @sunsopeningband @Claire145 @Sunny_Rae1 @drclairetaylor @BinitaKane @REvans_Breathe
🚨New survey alert 🚨
The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME
All information can be found on the landing page here.
physiosforme.com/hcpwithmesu…