FPIES UK (@FPIESuk) header
FPIES UK (@FPIESuk) profile picture

FPIES UK

@FPIESuk

Supporting families and raising awareness of the severe childhood condition , Food Protein Induced Enterocolitis Syndrome.

fpiesuk.org
Joined January 2014
  • Tweets763
  • Following955
  • Followers527
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Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)
Our mission is transferring to Allergy UK! We’re closing FPIES UK as an independent charity and contributing our resources & funds to their expert hands to continue supporting FPIES long-term. For full details see facebook.com/FPIESUK, & follow @AllergyUK on Instagram
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What a fanrastic 2 days we had @RCGPAC It was great to speak with so many GPs & other medical professionals. Thank you to everyone who took the time to engage with us. If you want more info just send us a DM 😊 #rcgpac #fpies #raisingawareness
Image from FPIES UK (@FPIESuk)
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@rcgp
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Today, we are at the @RCGPAC raising awareness of FPIES with GPs #RCGPAC #FPIES #fpiesawareness
Image from FPIES UK (@FPIESuk)
Image from FPIES UK (@FPIESuk)
Image from FPIES UK (@FPIESuk)
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FPIES is a delayed non-IgE allergy which leads to repeated vomiting and other gastrointestinal symptoms after eating a trigger food. FPIES still remains poorly understood and diagnosis is often delayed #RareDiseaseDay2024
Image from FPIES UK (@FPIESuk)
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Today is Global FPIES day! A time to raise awareness and show support. We are very happy to be able to collaborate with @FPIESFoundation 😊
Image from FPIES UK (@FPIESuk)
Image from FPIES UK (@FPIESuk)
Image from FPIES UK (@FPIESuk)
Image from FPIES UK (@FPIESuk)
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If you haven't done so yet, please consider taking part in this survey about the parental experiences of diagnosis and management of FPIES in the UK. cardiffmet.eu.qualtrics.com/… #FPIES #foodallergy #research #cardiffmet
Image from FPIES UK (@FPIESuk)
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If you would like more information or would like to participate, please contact me on [email protected]. Retweets would be very appreciated 😊
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Our very own Katrina with @garystiefel talking about FPIES parental perspective at @NutriciaHCPUK paediatric allergy conference #delayedfoodallergy
Image from FPIES UK (@FPIESuk)
Image from FPIES UK (@FPIESuk)
Image from FPIES UK (@FPIESuk)
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Replying to @FPIESuk
@FPIESuk calling all Paediatric Dietitians - be aware about FPIES! @BDA_FASG @BDA_Dietitians
Image from BDA Paediatric Group (@BDA_Paediatrics)
Image from BDA Paediatric Group (@BDA_Paediatrics)
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Early start today at #EAACI2023 in a great session on #FoodAllergy #diagnosis! Happy to present what may help predict severe #FPIES reactions at challenge. Credit to all my BIO-FPIES colleagues! @sonsolesinfante @simona_barni @ArasiStefania @fedemartinon @FPIESuk @FPIESFoundation
Image from Marta Vazquez-Ortiz, MD PhD (@marta_allergy)
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If there is anyone out there with a baby or child with FPIES that has not yet taken part in this survey on feeding difficulties in FPIES, please do take a look before it closes.
FPIES UK (@FPIESuk) profile pictureFPIES UK@FPIESuk6 Apr 2023
Are you a parent or carer for a child with FPIES? You may be eligible to take part in this important survey. We are collaborating with researchers from Imperial College London and @FPIESFoundation to help carry out a research project on FPIES and feeding difficulties.
Image from FPIES UK (@FPIESuk)
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The survey is fully anonymous and takes 10 - 15 minutes to complete. Follow this link for more information and to complete the survey: imperial.eu.qualtrics.com/..…
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If there is anyone out there with a baby or child with FPIES that has not yet taken part in this survey on feeding difficulties in FPIES, please do take a look before it closes. The survey is fully anonymous and takes 10 - 15 minutes to complete. Wu
Image from FPIES UK (@FPIESuk)
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Your participation in research like this will help to build a picture of how FPIES affects babies/children and their families, and how they could be helped in future. Follow this link for more information and to complete the survey: imperial.eu.qualtrics.com/jf…
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It's time to campaign for change! #AllergyAwarenessWeek #FPIESUK
Allergy UK (@AllergyUK1) profile pictureAllergy UK@AllergyUK124 Apr 2023
Despite the growing prevalence of allergy, there are only 40 adult allergy specialists. This is why, we are calling for each ICS to introduce an allergy nurse & dietitian as part of the services offered in GP practices. Join us & pledge your support👉️ allergyuk.org/patientcharter
Image from Allergy UK (@AllergyUK1)
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Today marks the start of allergy awareness week! #fpies #allergyawarenessweek
Image from FPIES UK (@FPIESuk)
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A single nurse was left in charge of 17 patients with complex needs on a ward at a hospital run by an NHS trust struggling with ‘significant’ nursing vacancies, a damning report says. Have you been put in a similar position before? rcni.com/nursing-standard/ne…
Image from Nursing Standard (@NurseStandard)
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This survey is for all parents/caregivers of children, under the age of 18, with Acute #FPIES. We would love to hear from you whether eating has been or is an issue or not. Learn more here: buff.ly/411DgCC
Image from The FPIES Foundation (@FPIESFoundation)
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Did you miss it? Our Interview with Free To Feed, discussing ALL things #FPIES is here: buff.ly/41SzbCb
Image from The FPIES Foundation (@FPIESFoundation)
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