FPIES UK (@FPIESuk) header
FPIES UK (@FPIESuk) profile picture

FPIES UK

@FPIESuk

Supporting families and raising awareness of the severe childhood condition , Food Protein Induced Enterocolitis Syndrome.

fpiesuk.org
Joined January 2014
  • Tweets763
  • Following955
  • Followers527
45Media
Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)Photo by FPIES UK (@FPIESuk)
If you would like more information or would like to participate, please contact me on [email protected]. Retweets would be very appreciated 😊
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Replying to @FPIESuk
@FPIESuk calling all Paediatric Dietitians - be aware about FPIES! @BDA_FASG @BDA_Dietitians
Image from BDA Paediatric Group (@BDA_Paediatrics)
Image from BDA Paediatric Group (@BDA_Paediatrics)
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Early start today at #EAACI2023 in a great session on #FoodAllergy #diagnosis! Happy to present what may help predict severe #FPIES reactions at challenge. Credit to all my BIO-FPIES colleagues! @sonsolesinfante @simona_barni @ArasiStefania @fedemartinon @FPIESuk @FPIESFoundation
Image from Marta Vazquez-Ortiz, MD PhD (@marta_allergy)
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A single nurse was left in charge of 17 patients with complex needs on a ward at a hospital run by an NHS trust struggling with ‘significant’ nursing vacancies, a damning report says. Have you been put in a similar position before? rcni.com/nursing-standard/ne…
Image from Nursing Standard (@NurseStandard)
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This survey is for all parents/caregivers of children, under the age of 18, with Acute #FPIES. We would love to hear from you whether eating has been or is an issue or not. Learn more here: buff.ly/411DgCC
Image from The FPIES Foundation (@FPIESFoundation)
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Did you miss it? Our Interview with Free To Feed, discussing ALL things #FPIES is here: buff.ly/41SzbCb
Image from The FPIES Foundation (@FPIESFoundation)
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Pleasure to work with great collaborators on this paper - Better awareness of #FPIES still top unmet need☹️ Insights into living with FPIES 👇@rebeccaknibb81 @KateKhaleva @FPIESFoundation @QianYuanMD @sonsolesinfante @fedemartinon @ImperialMed @FPIESuk - pubmed.ncbi.nlm.nih.gov/3658…
Image from Marta Vazquez-Ortiz, MD PhD (@marta_allergy)
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Love this from @BritishBakeOff Rosie - who has a nut allergy. I think we should ALL be allocated a nut (dairy/egg/sesame etc*) runner tbh (*delete as appropriate) 😜 independent.co.uk/life-style… #nutallergy #GBBO2019 #gbbo #nutrunner
Great British Bake Off's Rosie praises show for handling of nut allergy

Great British Bake Off's Rosie praises show for handling of nut allergy

She was eliminated in latest episode 

independent.co.uk
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Now's the time to #ShowYourRare for #RareDiseaseDay 2019! Get inspired to paint your face and share a selfie to show your support for the rare disease community!
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Out now! Download the official poster for #RareDiseaseDay 2019 now available via rarediseaseday.org/downloads. Share it today to show your support for the rare disease community. #ShowYourRare
Image from Rare Disease Day (@rarediseaseday)
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FPIES UK retweeted
BPSU (@theBPSU) profile picture
BPSU@theBPSU1 Feb 2019
Surveillance of Food protein induced enterocolitis syndrome (FPIES) starts this month. This is the first nationwide surveillance of FPIES in the UK. Find out more at rcpch.ac.uk/bpsu/fpies @Leic_hospital @Sotonchildhosp @AllergyUK1 @FPIESuk
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UK government’s consultation on allergen labelling for foods is now open. This is really important for consumers with food allergies. Please respond as we need to keep this issue at the top of the government’s agenda despite its current preoccupations. consult.defra.gov.uk/agri-fo…
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Are you a parent whose child has #FPIES? Linda Kirste is a Registered Dietician and has some tips to offer for families managing FPIES and EoE. Read here: foodallergycanada.ca/2018/01…
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Food Protein induced Enterocolitis Syndrome - A #FPIES @RCPCHtweets British Paediatric Surveillance Unit (BPSU) study is starting in the UK & ROI. Pls spread the word & report all new cases - see - rcpch.ac.uk/bpsu/fpies @FPIESuk
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So many negative tweets on eating out with #allergies following @BBCWatchdog this evening. Everyone has the right to eat out! It’s not hard to make a clear, detailed menu, and many restaurants are great at this already. @PizzaExpress @carluccios @zizzi @byronhamburgers
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Replying to @BBCWatchdog
@BBCWatchdog thank you for your #allergy investigation. It was a sobering watch for our 10 year old nut allergic son. Please do keep campaigning for improvements. Ten deaths is ten deaths too many.
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We’re very concerned about the @BBCWatchdog investigation and are working with the local authorities and businesses involved to make sure the issues raised tonight are addressed immediately. Everybody deserves food they can trust. #AllergyAware #14Allergens
Image from Food Standards Agency (@foodgov)
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Watch ⁦@Mattallwright⁩ on the ⁦@BBCBreakfast⁩ sofa this morning talking about tonight’s investigation into the leading restaurant and coffee shop chains are giving out incorrect allergy advice ⁦@stephbreakfast⁩ ⁦@FoxNikkiFox⁩ bbc.co.uk/news/business-4636…
Restaurant and cafe chains giving out 'dangerous' allergy advice

Restaurant and cafe chains giving out 'dangerous' allergy advice

Restaurant and coffee shop chains are giving out incorrect food allergy advice, BBC Watchdog Live has found.

bbc.co.uk
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And people still wonder why the allergy community campaign so loudly for improved food allergen practice and labelling - theguardian.com/society/2018…

High street chains gave out wrong information on deadly allergens

Costa Coffee, Starbucks, Pizza Hut, Frankie & Benny’s and Nando’s gave incorrect advice to undercover reporter

theguardian.com
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#allergyhour the 'what would you like to see in an allergy documentary' tweet got 6,846 views and 180 people responding. One of the biggest responses to a tweet of mine ever. What do we do next?
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