Support Kits for breastfeeding mums pumping milk for their babies in hospital ⭐️Not-for-profit⭐️ Created after my son had emergency surgery at 6 days old. Jan
Dublin City, Ireland
Joined June 2018
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❤️60 PumpPals delivered to Rotunda Hospital yesterday in memory of my mum who was a strong breastfeeding advocate in her day❤️
She had her 7 children @RotundaHospital + her 19 grandchildren all born there too.
We hope these 60 PumpPals help mums of sick & premature babies❤️
“While doctors are knowledgeable about disease, they do not adequately appreciate that illness changes everything for the patient.”
"Doctors often view illness as a biological phenomenon that needs medical intervention, while patients tend to view illness within the framework of their entire lives." @RitaCharon
Doctors, patients & caregivers see diagnoses differently.
myheartsisters.org/2020/07/2… @HeartSisters
Absolutely shocking and disturbing.
This family have been through enough, they’ve still along way to go to get their child healthy and well.
Instead of @CHI_Ireland assisting the family in every way imaginable, they are having to go to the high court to access his medical records.
As a mum whose son had heart surgery in CHI, the *disregard* shown for this child’s needs is sickening.
“The judge was asked to grant an injunction to the family compelling the hospital to release the records so the family could seek a 2nd opinion.” rte.ie/news/2023/1009/140985…
“What you were presiding over was a recurring, foreseeable, predictable pattern of suboptimal outcomes, leaving children on waiting lists for so long… What did you do about it?”
@TomClonan bravely getting to the heart of the matter today.
Incredibly powerful contribution by @TomClonan at the Oireachtas Committee this afternoon. Worth watching the full thing. We really should be ashamed of the way children are treated in this country. Especially those who are going through so much already.
#HousingCrisis #scoliosis
#Dail
WHERE is the voice of the patient or family at the Oireachtas hearing today?
You would think listening to it that a hospital has suffered, not children and their families.
#healthcommittee when asked about about Register they said there is a hips/knees one but not spine … see below.
secure.amplitude-registry.co…
@CHI_Ireland was it not utilised ?
@davidcullinane @RoisinShortall @SeanCroweTD @neasa_neasa
Excellent much-needed research capturing parents’ exp of childhood cancer in Ireland.
“people say oh isn’t it lucky that he’s still here…I can’t believe what you went through, as if it’s a past tense thing, but it’s not, it’s constantly going to be in your present.”
Congratulations to the very soon-to-be Dr @EmmaDelemere on her latest publication which explores the needs and challenges of families impacted by paediatric cancer.
Thanks also to @IsaiahGitonga @AdvanceCrt @MUpsychdept
tandfonline.com/doi/full/10.…
PumpPal retweeted
I wonder how many of my colleagues and collaborators in nutrition and equity had the same reaction I did to the story about breastfeeding and GCSE results? Which was ‘gaaaah. Argh.’ A THREAD.
“Congenital heart disease not only affects patient wellbeing, it also affects those closest to them”
Introducing the First-Of-Its-Kind Center Focused on Mental Health Care for Heart Patients and Their Families
enewsletter.cincinnatichildr…
Holles Street Hospital leading the way in return to ‘family-centred’ care.
Parents caregiving in Irish children’s hospitals should now be allowed see their other children on ward + sick young people allowed time with their siblings.
@FFallon2020
@CHI_Ireland
@CeoHardiman
Great day speaking at Association of European Paediatric Cardiology annual meeting Representing parents of children with CHD in Ireland.
Next step: work our way onto main stage so all clinicians can hear from parents and families.
@AEPCcongenital
@FFallon2020
@CHI_Ireland
Surely time for @CHI_Ireland to remove ban on siblings visiting sick brother/sister and caregiving parent so?
@FFallon2020
Face masks are no longer mandatory in all settings in healthcare facilities and hospitals from today. However, in some scenarios or settings, they will still be clinically appropriate. Healthcare staff can read guidance on our website healthservice.hse.ie/staff/c…
PumpPal retweeted
Please share/RT to get this to as many families as possible. ❤️ @JanPumpPal @ciaranmullooly @childreninhosp @fussireland @FayeHayden18 @McNiffecent @aarondalydub @janbartspang @itsthatgirlsuzi @CarersIreland @heartchildren_ @22Q11_Ireland @Irishheart_ie @VirginMediaNews – at Roscommon, Ireland
PumpPal retweeted
Three years later, it is time to re-establish the principles of family-centred care in PICUs by including ALL members of the family!
‘…As a person connected to the “real” patient, I always felt like I was not supposed to need help or attention because I was not the sick one…
My husband’s doctors excelled at caring for him medically, but Roger understood how this event impacted our lives’
Oh Roger ❤️
In my 10+ years of co-survivorship, doing life with @DGlaucomflecken through 2 separate cancers, 1 SCA and fighting off his death with 10 mins of #CPR, only ONE (1) of the medical professionals we interacted with has ever asked how I was doing. Meet Roger. authors.elsevier.com/a/1giY0…
A huge PumpPal delivery went to the Children’s Heart Centre in CHI @ Crumlin today thanks to Malahide Sylvester’s Cycling Club.
Leo Ryan + Philip Cleere cycled 500kms in August.
We are so grateful to them for fundraising for mums + babies in need of PumpPals on the way ❤️
PumpPal retweeted
#breastfeeding included as part of the reducing cancer risk new e-learning programme for health and social care staff. 11 short modules now available on hseland #cancerprevention #HSEMyChild @NWIHP @HsehealthW @NWIHP @NurMidONMSD @ALCIreland
