To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
Massachusetts
Joined February 2018
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Massachusetts ME/CFS & FM Association retweeted
An exclusive conversation between OMF CEO Linda Tannenbaum and Dr. Daniel Peterson — a pioneer who refused to give up.
👉 Learn more and watch the interview: ow.ly/Qnz25103pBO
Massachusetts ME/CFS & FM Association retweeted
An exclusive conversation between OMF CEO Linda Tannenbaum and Dr. Daniel Peterson — a pioneer who refused to give up.
👉 Learn more and watch the interview: ow.ly/LMQu5103tFa
Massachusetts ME/CFS & FM Association retweeted
Hi everyone, we’ve been working on something 🙏🏼 I’ve written a second letter to Andy Burnham, alongside 360 sports people, to urge him to meet with me and fund research into my much neglected health issue which impacts millions of others.
I can’t believe 360 people signed in just 1 week, so many amazing names and messages still coming in of people wanting to add theirs (so feel free to message to add yours, we’re keeping on the pressure!!!)
The list includes 114 Olympians, with 77 medals between them (and that’s not even including Worlds and Europeans 🤯). Also some huge names from football and many other sports!!
Thank you SO much to everyone that signed, I can’t tell you how much it means to me when I’m truly at rock bottom ❤️❤️❤️
I know everyone wants their issues taken seriously, but this has been neglected like nothing else. WE HAVE 0 APPROVED TREATMENTS!!! Please listen 🙏🏼 @andyburnham @number10gov @UKLabour @DHSCgovuk
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Sunday Conversations “When Chronic Illness Takes Over Your Life: How to Start Living Again”, 11/15 @ 4pm ET
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Please join us as Melanie Wolf RN explores strategies to create more space to embrace and enjoy life while managing the demands of a chronic illness.
Details here: massmecfs.org/events/sunday-…
free presentation open to all
#massmecfs #chronicfatigue #MyalgicEncephalomyelitis
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How can we make our community’s needs for accommodation more visible? MassME’s 2026 Annual Meeting explored two programs that empower people with ME/CFS, Long COVID, and other IACCIs to own, name, and obtain the accommodations we need.
2/2 We heard from two speakers who shared different ways that Being Seen can improve our lives.
Video and resources here: massmecfs.org/events/annual-…
#massmecfs #chronicfatigue #fibromyalgia #longcovid #chronicfatiguesyndome #invisibleillness #chronicillness #invisabledisability
Massachusetts ME/CFS & FM Association retweeted
Athletic's Weekly: Beth Dobbin: ‘I feel like I’ve lost everything’
Beth Dobbin, who ran for Great Britain at the Tokyo Olympic Games in 2021, now spends more than 22 hours a day in bed as she battles myalgic encephalomyelitis (ME), BBC Sport has reported
athleticsweekly.com/news/bet…
Massachusetts ME/CFS & FM Association retweeted
Please join us on November 15th at 4 pm ET for a special talk with Kim Moy of Caregiver Wisdom - "Being on the Same Team: Strengthening Relationships Through Chronic Illness." It is for BOTH the #caregiver & the #pwME/ #pwLC/ etc. . meaction.net/event-details/b…
#FamilyCaregiver
ALT Virtual workshop on strengthening relationships through chronic illness with Kim Moy, November 15 at 3 pm ET, honoring National Family Caregivers Month. Photo of Kim Moy (Asian-American woman with medium length graying hair wearing a floral scarf and long sleeve top with a great big smile) Text: Virtual workshop Being on the Same Team: Strengthening relationships through chronic illness
Massachusetts ME/CFS & FM Association retweeted
September @MassMECFS 2026 recording: Insights from ME/CFS support group leaders. massmecfs.org/events/sunday-… youtu.be/1H8chnKirvw
Massachusetts ME/CFS & FM Association retweeted
CDC 2028 Survey Could Drop ME/CFS/LC Questions: Proposed changes to NHI risk ongoing prevalence tracking. Public comments needed by 10/20 solvecfs.org/cdc-me-cfs-long…
1/4. Annual Mtg - this weekend
This Sunday! Please join us for our Annual Meeting "Being Seen", October 18 at 1pm ET
Full details and register here:
massmecfs.org/events/annual-…
3/4. Lynn Smith, U.S. Regional Director of Hidden Disabilities Sunflower @sunflowerlanyardscheme on discretely signaling for disability accommodations in public
4/4. All are welcome, we saved you a seat!
This Zoom presentation will be recorded for later viewing.
#massmecfs #chronicfatigue #fibromyalgia #longcovid #chronicfatiguesyndome #invisibleillness #chronicillness #invisabledisability
Massachusetts ME/CFS & FM Association retweeted
Annual @MassMECFS Meeting: 10/18, 1–3 PM ET Zoom, Medicaid medical-frailty exemptions & Hidden Disabilities Sunflower. Recorded. form.jotform.com/26270592687…
Massachusetts ME/CFS & FM Association retweeted
@fidjissimo @Forbes & @ChronicleBioAI : AI startup for ME/CFS, POTS & LC aiming to identify subtypes & match patients to potential treatments. forbes.com/sites/amyfeldman/… (paywalled)
2/2. This Zoom presentation will be recorded for later viewing.
Full details here: massmecfs.org/events/annual-…
#massmecfs #chronicfatigue #fibromyalgia #longcovid #chronicfatiguesyndome #invisibleillness #chronicillness #invisabledisability