To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
Massachusetts
Joined February 2018
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Massachusetts ME/CFS & FM Association retweeted
An exclusive conversation between OMF CEO Linda Tannenbaum and Dr. Daniel Peterson — a pioneer who refused to give up.
👉 Learn more and watch the interview: ow.ly/Qnz25103pBO
Massachusetts ME/CFS & FM Association retweeted
An exclusive conversation between OMF CEO Linda Tannenbaum and Dr. Daniel Peterson — a pioneer who refused to give up.
👉 Learn more and watch the interview: ow.ly/LMQu5103tFa
Massachusetts ME/CFS & FM Association retweeted
Hi everyone, we’ve been working on something 🙏🏼 I’ve written a second letter to Andy Burnham, alongside 360 sports people, to urge him to meet with me and fund research into my much neglected health issue which impacts millions of others.
I can’t believe 360 people signed in just 1 week, so many amazing names and messages still coming in of people wanting to add theirs (so feel free to message to add yours, we’re keeping on the pressure!!!)
The list includes 114 Olympians, with 77 medals between them (and that’s not even including Worlds and Europeans 🤯). Also some huge names from football and many other sports!!
Thank you SO much to everyone that signed, I can’t tell you how much it means to me when I’m truly at rock bottom ❤️❤️❤️
I know everyone wants their issues taken seriously, but this has been neglected like nothing else. WE HAVE 0 APPROVED TREATMENTS!!! Please listen 🙏🏼 @andyburnham @number10gov @UKLabour @DHSCgovuk
Massachusetts ME/CFS & FM Association retweeted
Athletic's Weekly: Beth Dobbin: ‘I feel like I’ve lost everything’
Beth Dobbin, who ran for Great Britain at the Tokyo Olympic Games in 2021, now spends more than 22 hours a day in bed as she battles myalgic encephalomyelitis (ME), BBC Sport has reported
athleticsweekly.com/news/bet…
Massachusetts ME/CFS & FM Association retweeted
Please join us on November 15th at 4 pm ET for a special talk with Kim Moy of Caregiver Wisdom - "Being on the Same Team: Strengthening Relationships Through Chronic Illness." It is for BOTH the #caregiver & the #pwME/ #pwLC/ etc. . meaction.net/event-details/b…
#FamilyCaregiver
ALT Virtual workshop on strengthening relationships through chronic illness with Kim Moy, November 15 at 3 pm ET, honoring National Family Caregivers Month. Photo of Kim Moy (Asian-American woman with medium length graying hair wearing a floral scarf and long sleeve top with a great big smile) Text: Virtual workshop Being on the Same Team: Strengthening relationships through chronic illness
Massachusetts ME/CFS & FM Association retweeted
September @MassMECFS 2026 recording: Insights from ME/CFS support group leaders. massmecfs.org/events/sunday-… youtu.be/1H8chnKirvw
Massachusetts ME/CFS & FM Association retweeted
CDC 2028 Survey Could Drop ME/CFS/LC Questions: Proposed changes to NHI risk ongoing prevalence tracking. Public comments needed by 10/20 solvecfs.org/cdc-me-cfs-long…
Massachusetts ME/CFS & FM Association retweeted
Annual @MassMECFS Meeting: 10/18, 1–3 PM ET Zoom, Medicaid medical-frailty exemptions & Hidden Disabilities Sunflower. Recorded. form.jotform.com/26270592687…
Massachusetts ME/CFS & FM Association retweeted
@fidjissimo @Forbes & @ChronicleBioAI : AI startup for ME/CFS, POTS & LC aiming to identify subtypes & match patients to potential treatments. forbes.com/sites/amyfeldman/… (paywalled)
Massachusetts ME/CFS & FM Association retweeted
The 2026 Stanford Community Symposium recordings are now on YouTube.
Every talk is now online, including Danielle Meadows, PhD, OMF's VP of Research Programs and Operations, on the clinical trial landscape in ME/CFS and Long COVID.
▶️ ow.ly/I7qV50ZSFYx
ALT Announcement for 2026 Stanford Community Symposium recordings available on YouTube featuring Ronald W. Davis, PhD, and Danielle Meadows, PhD.
Massachusetts ME/CFS & FM Association retweeted
1/4 Das Narrativ von den "aggressiven", "vorwürflichen" oder sonst schwierigen #MECFS-Betroffenen ist besonders toxisch, weil es eine subtile Legitimierungsfunktion für fortdauernde Nichtversorgung und sogar für Schädigungen durch Fehlbehandlungen dieser Patientengruppe erfüllt.
76-mal Danke!
Inzwischen tragen 76 Mitzeichner die gemeinsame Stellungnahme aus Versorgung und Wissenschaft mit:
Ein starkes fachliches Signal für einen respektvollen und sachlich angemessenen Umgang mit Menschen mit #MECFS.
Mitzeichnung weiterhin möglich.
psychotherapie-mecfs.de/stel…
Massachusetts ME/CFS & FM Association retweeted
PRIME International ME/CFS Research Symposium (Free Hybrid), Edinburgh: Sept. 28–29, with online attendance. Includes launch of the International Genetic Epidemiology of ME/CFS Consortium and presentations from early-career researchers and PPI Hub. tickettailor.com/events/univ…
Massachusetts ME/CFS & FM Association retweeted
The Guardian: 'Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed'
By George Monbiot
theguardian.com/commentisfre…
Massachusetts ME/CFS & FM Association retweeted
Two @PlzSolveCFS funded studies: point to GI dysfunction as a key driver of ME/CFS. onlinelibrary.wiley.com/doi/… links gut microbiome changes to neurocognitive symptoms. link.springer.com/article/10… identifies GI symptoms as a core feature tied to inflammation.
Massachusetts ME/CFS & FM Association retweeted
We filed our public comment this week on the federal regulatory guidance that will shape how research gets funded and managed.
1/5
Massachusetts ME/CFS & FM Association retweeted
HELP THAT DOESN'T WAIT: bit.ly/4oKuFkY
Crashes don't wait. Neither should guidance.
Our free ME/CFS Crash Survival Guide provids practical tools for patients, caregivers & clinicians.
Resources: t.mtrbio.com/BHCPatientResou…
ALT ME/CFS crash survival guide for managing flares; icons for medication, tracking, nutrition and self-care.
Massachusetts ME/CFS & FM Association retweeted
Getting answers for ME/CFS, Long COVID & other IACCs can take years. Our free Clinical Care Guide brings 10+ years of clinical expertise into one practical resource for patients, caregivers & clinicians.
Resources: t.mtrbio.com/BHCPatientResou…
Support: bit.ly/4oKuFkY
ALT Free Clinical Care Guide for ME/CFS, Long COVID, & IACCs — tablet cover with stethoscope and Bateman Horne logo
Massachusetts ME/CFS & FM Association retweeted
The whole of Germany is lying down for people who have ME/CFS.
This is called the Liegenddemo and has been happening for the last several years.
It’s been going from strength to strength.
Massachusetts ME/CFS & FM Association retweeted
🌟 Celebrating Stefan Chin of @SciShow & Jaime Seltzer of #MEAction, as finalists in the #emergeaustralia #mecfs Awards for Journalism Excellence for the video Exercise Actually Makes Chronic Fatigue Syndrome Worse.
🔗 Watch: zurl.co/Rzsg7
Thank you Stefan and Jamie!
ALT Promotional graphic inviting people to join a Media Award Finalists announcement. It features two portrait photos in stylised computer windows: Stefan Chin smiling in glasses and a light checked shirt, and Jamie Seltzer wearing glasses, a cream blazer and red top. Their names appear together in a green label below. The background is bright blue with dotted accents, with a megaphone icon at bottom left and the Emerge Australia logo at bottom right.