autoimmune patient advocate + founder @telltalehealth ~ unstoppable force ~ interested in many things!
sf
Joined June 2023
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we are entering the great wearableification of human bodies.
in this world you no longer need to notice the state of your body. you can depend entirely on an external arbiter to tell you if you sleep well or clench your jaw.
finally! we can just be minds and ~data~
okay so i've always had the sensation of "less gunk in my brain" after running 3+ miles, wondering if it does a similar thing....
“Companies are racing to build the ultimate healthcare home – an app that knows your medical history and records, prescribes your annual labs and imaging, connects to your wearable, and uses AI to help you understand what’s going on. And when you need care, it connects you with virtual or in-person clinicians who can prescribe treatment or perform procedures as needed.”
:~)
@a16z State of Longevity report is out!
@evajsteinman and I surveyed 500 Americans to predict what's next.
We're also interviewing people at the cutting edge of health & tech about what they do themselves. My interview with @hubermanlab is out today.
btw i’m looking for more autoimmune patients to work with!
i help manage all of the annoying things that get in the way of your care: making sure your prescriptions are filled, your specialists are up to date, navigating a new diagnosis, helping you build extended care teams, and more
gosh i love what i'm doing so much
like wdym i get to talk about my special interest every day and help people receive the care that they need??
we need more stories that illustrate incremental progress towards outlier results!
in the era of tight feedback loops and a plethora of treatment options, people need to see what is possible with what tools over what time horizon.
i’m 5 weeks into daily morning meditation. i realized pretty quickly that around minute 5, my mind chatter abruptly stops and i start feeling boredom.
at first this felt pretty intolerable, and like i had to white knuckle my way through the rest of the meditation.
but once i realized that this basically happened every day, i started greeting my boredom. like yay, it’s the boredom part of meditation! my mind is finally quiet!
and now that feeling comes much sooner than 5 minutes (something like 2-3) and i get to enjoy the silence and pleasure of presence much longer :)
this weekend i went on a free diving trip with my friends, and i successfully maintained my morning routine, workouts, and macros despite travel and limited food options! it felt like a milestone for me bc normally i drop all of my habits while traveling “because it’s vacation”.
i want to be able to travel with my friends more now that i’m in remission, but i also want to reach my fitness goals and have my dream body. the thing is that i used to be too scared to even allow myself to yearn for things like this because i didn’t want the “burden” of discipline.
so much of my internal struggles over the past few years could be described as overly fixating on the sacrifices i’d need to make to reach my goals, rather than the goals themselves.
but focussing on the desired outcome makes doing the thing so much easier. one of my friends asked me if living more strictly made me happy as i was hunting for lean protein at the airport, and i was like huh that didn’t even occur to me because i was so focussed on the goal.
the irony is that the work is less burdensome when you have a goal that you want that feels within reach.
also! big news, i leaned last week that my Crohn's is in remission :') my gastro was shocked by how good my results were
it took me almost 2 years to go from incorrect autoimmune dx -> Crohn's dx -> medication that works. tbh i started thinking i'd never get out of it.
as more and more treatments become available, it becomes pertinent that we quickly and effectively identify treatments that will work for a given person's autoimmune disease, and then effectively coordinate that care.
anything less is a failure to patients.